Skip to main content

Advertisement

Log in

Sexual Education: A Case Study of an Adolescent with a Diagnosis of Pervasive Developmental Disorder-Not Otherwise Specified and Intellectual Disability

  • Original Paper
  • Published:
Sexuality and Disability Aims and scope Submit manuscript

Abstract

The transition from adolescence to adulthood may be a challenging period for all young people, yet, for youth with autistic spectrum disorder (ASD) it may present some additional challenges. Developing a more coherent sense of the self, defining one’s values and having a sexual awakening are all important processes for the passage from youth to an adult life. People with ASD have difficulties in the aforementioned areas and also face additional risks for sexual exploitation or even abuse. Those challenges underline the importance of sexual education for individuals with ASD. The aim of this case study is to systematically investigate the effectiveness of a behavior analytic intervention in helping an adolescent with Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) improve in the area of sexual behavior and at the same time minimize his inappropriate behavior. Specifically: (a) to develop a verbal repertoire pertaining to adolescence and sexuality, (b) to improve personal hygiene skills, (c) to develop or improve self-satisfaction related to sexual expression, (d) to decrease inappropriate behavior pertaining to sexuality, and (e) to train the father to undertake a part of the intervention that would be unethical for the researcher to contact—monitor the participant’s masturbation practices. Using a multiple-baseline-across-response-categories experimental design, it was demonstrated that the majority of the aforementioned goals were attained, yet, one goal—the decrease of inappropriate behavior—was only temporarily reached.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

Notes

  1. Additionally, they should be stated with clear articulation, provided within 5″ following the researcher's question, provided without help, and not accompanied by a disruptive or stereotypic behavior.

References

  1. World Health Organization: Defining Sexual Health. World Health Organization. Retrieved from http://www.who.int/reproductivehealth/publications/sexual_health/defining_sexual_health.pdf (2006)

  2. Koller, R.: Sexuality and adolescents with autism. Sex. Disabil. 18(2), 125–135 (2000)

    Article  Google Scholar 

  3. Feldmann, J., Middleman, A.B.: Adolescent sexuality and sexual behavior. Curr. Opin. Obstet. Gynecol. 14(5), 489–493 (2002)

    Article  PubMed  Google Scholar 

  4. Ballan, M.S., Freyer, M.B.: Autism spectrum disorder, adolescence, and sexuality education: suggested interventions for mental health professionals. Sex. Disabil. 35(2), 261–273 (2017)

    Article  Google Scholar 

  5. Chan, J., John, R.M.: Sexuality and sexual health in children and adolescents with autism. J. Nurse Pract. 8(4), 306–315 (2012)

    Article  Google Scholar 

  6. Turner, D., Briken, P., Schöttle, D.: Autism-spectrum disorders in adolescence and adulthood: focus on sexuality. Curr. Opin. Psychiatry 30(6), 409–416 (2017)

    Article  PubMed  Google Scholar 

  7. Mehzabin, P., Stokes, M.A.: Self-assessed sexuality in young adults with high-functioning autism. Res. Autism Spectr. Disord. 5(1), 614–621 (2011)

    Article  Google Scholar 

  8. Corona, L.L., Fox, S.A., Christodulu, K.V., Worlock, J.A.: Providing education on sexuality and relationships to adolescents with autism spectrum disorder and their parents. Sex. Disabil. 34(2), 199–214 (2016)

    Article  Google Scholar 

  9. Haracopos, D., Pedersen, L.: Sexuality and Autism: A Nationwide Survey in Denmark. Retrieved from www.autismmuk.com/?page_id=1293 (1992)

  10. Hénault, I.: Asperger’s Syndrome and Sexuality: From Adolescence Through Adulthood. Jessica Kingsley Publishers, London (2006)

    Google Scholar 

  11. Strunz, S., Schermuck, C., Ballerstein, S., Ahlers, C.J., Dziobek, I., Roepke, S.: Romantic relationships and relationship satisfaction among adults with Asperger syndrome and high-functioning autism. J. Clin. Psychol. 73(1), 113–125 (2017)

    Article  PubMed  Google Scholar 

  12. Sullivan, A., Caterino, L.C.: Addressing the sexuality and sex education of individuals with autism spectrum disorders. Educ. Treat. Child. 31(3), 381–394 (2008)

    Article  Google Scholar 

  13. Fernandes, L.C., Gillberg, C.I., Cederlund, M., Hagberg, B., Gillberg, C., Billstedt, E.: Aspects of sexuality in adolescents and adults diagnosed with autism spectrum disorders in childhood. J. Autism Dev. Disord. 46(9), 3155–3165 (2016)

    Article  PubMed  Google Scholar 

  14. Brown-Lavoie, S.M., Viecili, M.A., Weiss, J.A.: Sexual knowledge and victimization in adults with autism spectrum disorders. J. Autism Dev. Disord. 44(9), 2185–2196 (2014)

    Article  PubMed  PubMed Central  Google Scholar 

  15. Pecora, L.A., Mesibov, G.B., Stokes, M.A.: Sexuality in high-functioning autism: a systematic review and meta-analysis. J. Autism Dev. Disord. 46(11), 3519–3556 (2016)

    Article  PubMed  Google Scholar 

  16. Beddows, N., Brooks, R.: Inappropriate sexual behaviour in adolescents with autism spectrum disorder: what education is recommended and why. Early Interv. Psychiatry 10(4), 282–289 (2016)

    Article  PubMed  Google Scholar 

  17. Curtiss, S.L., Ebata, A.T.: Building capacity to deliver sex education to individuals with autism. Sex. Disabil. 34(1), 27–47 (2016)

    Article  Google Scholar 

  18. Hellemans, H., Roeyers, H., Leplae, W., Dewaele, T., Deboutte, D.: Sexual behavior in male adolescents and young adults with autism spectrum disorder and borderline/mild mental retardation. Sex. Disabil. 28(2), 93–104 (2010)

    Article  Google Scholar 

  19. Kalyva, E.: Teachers’ perspectives of the sexuality of children with autism spectrum disorders. Res. Autism Spectr. Disord. 4(3), 433–437 (2010)

    Article  Google Scholar 

  20. Howlin, P.: Autism and Asperger Syndrome: Preparing for Adulthood. Routledge, London (2004)

    Book  Google Scholar 

  21. Sevlever, M., Roth, M.E., Gillis, J.M.: Sexual abuse and offending in autism spectrum disorders. Sex. Disabil. 31(2), 189–200 (2013)

    Article  Google Scholar 

  22. Stokes, M., Newton, N., Kaur, A.: Stalking, and social and romantic functioning among adolescents and adults with autism spectrum disorder. J. Autism Dev. Disord. 37(10), 1969–1986 (2007)

    Article  PubMed  Google Scholar 

  23. Baarsma, M.E., Boonmann, C., Lisette, A., de Graaf, H., Doreleijers, T.A., Vermeiren, R.R., Jansen, L.M.: Sexuality and autistic-like symptoms in juvenile sex offenders: a follow-up after 8 years. J. Autism Dev. Disord. 46(8), 2679–2691 (2016)

    Article  PubMed  PubMed Central  Google Scholar 

  24. Vassilikou, K., Ioannidi-Kapolou, E.: Sex education and sex behaviour in Greek adolescents: a research review. Soc. Cohes. Dev. 9(2), 143–154 (2014)

    Google Scholar 

  25. Howard, M., Mitchell, M.: Postponing Sexual Involvement: An Educational Series for Preteens. Adolescent Reproductive Health Center, Grady Health System, Atlanta, GA (1996)

    Google Scholar 

  26. Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., Lobbestael, J., Van Nieuwenhuizen, C.: Sexuality in adolescent boys with autism spectrum disorder: self-reported behaviours and attitudes. J. Autism Dev. Disord. 45(3), 731–741 (2015)

    Article  PubMed  Google Scholar 

  27. Dewinter, J., Van Parys, H., Vermeiren, R., van Nieuwenhuizen, C.: Adolescent boys with an autism spectrum disorder and their experience of sexuality: an interpretative phenomenological analysis. Autism 21(1), 75–82 (2017)

    Article  PubMed  Google Scholar 

  28. Kellaher, D.C.: Sexual behavior and autism spectrum disorders: an update and discussion. Curr. Psychiatry Rep. 17(4), 25 (2015)

    Article  Google Scholar 

  29. Melone, M.B., Lettick, A.L.: Sex education at Benhaven. In: Schopler, E., Mesibov, G.B. (eds.) Autism in Adolescents and Adults, pp. 169–186. Springer, Boston (1983)

    Chapter  Google Scholar 

  30. Makrygianni, M.K., Gena, A., Katoudi, S., Galanis, P.: The effectiveness of applied behavior analytic interventions for children with autism spectrum disorder: a meta-analytic study. Res. Autism Spectr. Disord. 51, 18–31 (2018)

    Article  Google Scholar 

  31. Fein, D., Barton, M., Eigsti, I.M., Kelley, E., Naigles, L., Schultz, R.T., Stevens, M., Helt, M., Orinstein, A., Rosenthal, M.: Optimal outcome in individuals with a history of autism. J. Child Psychol. Psychiatry 54(2), 195–205 (2013)

    Article  PubMed  PubMed Central  Google Scholar 

  32. Reichow, B.: Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. J. Autism Dev. Disord. 42(4), 512–520 (2012)

    Article  PubMed  Google Scholar 

  33. Georgas, D., Paraskevopoulos, I., Bezevegis, H., Giannitsas, N.J.A.E.G.: Greek Version of Wechsler Intelligence Scale for Children, WISC-III. Ellinika Grammata, Athens (1997)

    Google Scholar 

  34. Sparrow, S.S., Balla, D.A., Cicchetti, D.V., Harrison, P.L., Doll, E.A.: Vineland Adaptive Behavior Scales. American Guidance Service, Circle Pines, MN (1984)

    Google Scholar 

  35. Schopler, E., Reichler, R., Renner, B.: Child Autism Rating Scale. Western Psychological Services Corporation, Los Angeles, CA (1988)

    Google Scholar 

  36. Talbot, T.J., Langdon, P.E.: A revised sexual knowledge assessment tool for people with intellectual disabilities: is sexual knowledge related to sexual offending behaviour? J. Intell. Dis. Res. 50(7), 523–531 (2006)

    Article  Google Scholar 

  37. Eyberg, S., Pincus, D.: ECBI & SESBI-R: Eyberg Child Behavior Inventory and Sutter-Eyberg Student Behavior Inventory-Revised: Professional Manual. Psychological Assessment Resources, Odessa, FL (1999)

    Google Scholar 

  38. Spielberger, C., Gorsuch, R., Lushene, R., Vagg, P., Jacobs, G.J.I.: Manual for the State-Trait Anxiety Inventory. Consulting Psychologists Press, Palo Alto, CA (1983)

    Google Scholar 

  39. Kazdin, A.E.: Single-Case Research Designs: Methods for Clinical and Applied Settings. Oxford University Press, Oxford (2011)

    Google Scholar 

  40. Gilmour, L., Schalomon, P.M., Smith, V.: Sexuality in a community based sample of adults with autism spectrum disorder. Res. Autism Spectr. Disord. 6(1), 313–318 (2012)

    Article  Google Scholar 

  41. Matson, J.L., Shoemaker, M.: Intellectual disability and its relationship to autism spectrum disorders. Res. Dev. Disord. 30(6), 1107–1114 (2009)

    Article  Google Scholar 

  42. Nichols, S., Blakeley-Smith, A.: “I’m not sure we’re ready for this…”: working with families toward facilitating healthy sexuality for individuals with autism spectrum disorders. Soc. Work Ment. Health 8(1), 72–91 (2009)

    Article  Google Scholar 

  43. Schuster, M.A., Corona, R., Elliott, M.N., Kanouse, D.E., Eastman, K.L., Zhou, A.J., Klein, D.J.: Evaluation of talking parents, healthy teens, a new worksite based parenting programme to promote parent-adolescent communication about sexual health: randomised controlled trial. BMJ 337, a308 (2008)

    Article  PubMed  PubMed Central  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Georgios Gkogkos.

Ethics declarations

Conflict of interest

All authors declare that they have no conflicts of interest.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

As described above in the ‘‘Method’’ section, informed consent or assent was obtained from all individual participants included in the study. Parents provided informed consent, and adolescents provided assent.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Gkogkos, G., Staveri, M., Galanis, P. et al. Sexual Education: A Case Study of an Adolescent with a Diagnosis of Pervasive Developmental Disorder-Not Otherwise Specified and Intellectual Disability. Sex Disabil 39, 439–453 (2021). https://doi.org/10.1007/s11195-019-09594-3

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11195-019-09594-3

Keywords

Navigation