Abstract
The transition from adolescence to adulthood may be a challenging period for all young people, yet, for youth with autistic spectrum disorder (ASD) it may present some additional challenges. Developing a more coherent sense of the self, defining one’s values and having a sexual awakening are all important processes for the passage from youth to an adult life. People with ASD have difficulties in the aforementioned areas and also face additional risks for sexual exploitation or even abuse. Those challenges underline the importance of sexual education for individuals with ASD. The aim of this case study is to systematically investigate the effectiveness of a behavior analytic intervention in helping an adolescent with Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) improve in the area of sexual behavior and at the same time minimize his inappropriate behavior. Specifically: (a) to develop a verbal repertoire pertaining to adolescence and sexuality, (b) to improve personal hygiene skills, (c) to develop or improve self-satisfaction related to sexual expression, (d) to decrease inappropriate behavior pertaining to sexuality, and (e) to train the father to undertake a part of the intervention that would be unethical for the researcher to contact—monitor the participant’s masturbation practices. Using a multiple-baseline-across-response-categories experimental design, it was demonstrated that the majority of the aforementioned goals were attained, yet, one goal—the decrease of inappropriate behavior—was only temporarily reached.
Similar content being viewed by others
Notes
Additionally, they should be stated with clear articulation, provided within 5″ following the researcher's question, provided without help, and not accompanied by a disruptive or stereotypic behavior.
References
World Health Organization: Defining Sexual Health. World Health Organization. Retrieved from http://www.who.int/reproductivehealth/publications/sexual_health/defining_sexual_health.pdf (2006)
Koller, R.: Sexuality and adolescents with autism. Sex. Disabil. 18(2), 125–135 (2000)
Feldmann, J., Middleman, A.B.: Adolescent sexuality and sexual behavior. Curr. Opin. Obstet. Gynecol. 14(5), 489–493 (2002)
Ballan, M.S., Freyer, M.B.: Autism spectrum disorder, adolescence, and sexuality education: suggested interventions for mental health professionals. Sex. Disabil. 35(2), 261–273 (2017)
Chan, J., John, R.M.: Sexuality and sexual health in children and adolescents with autism. J. Nurse Pract. 8(4), 306–315 (2012)
Turner, D., Briken, P., Schöttle, D.: Autism-spectrum disorders in adolescence and adulthood: focus on sexuality. Curr. Opin. Psychiatry 30(6), 409–416 (2017)
Mehzabin, P., Stokes, M.A.: Self-assessed sexuality in young adults with high-functioning autism. Res. Autism Spectr. Disord. 5(1), 614–621 (2011)
Corona, L.L., Fox, S.A., Christodulu, K.V., Worlock, J.A.: Providing education on sexuality and relationships to adolescents with autism spectrum disorder and their parents. Sex. Disabil. 34(2), 199–214 (2016)
Haracopos, D., Pedersen, L.: Sexuality and Autism: A Nationwide Survey in Denmark. Retrieved from www.autismmuk.com/?page_id=1293 (1992)
Hénault, I.: Asperger’s Syndrome and Sexuality: From Adolescence Through Adulthood. Jessica Kingsley Publishers, London (2006)
Strunz, S., Schermuck, C., Ballerstein, S., Ahlers, C.J., Dziobek, I., Roepke, S.: Romantic relationships and relationship satisfaction among adults with Asperger syndrome and high-functioning autism. J. Clin. Psychol. 73(1), 113–125 (2017)
Sullivan, A., Caterino, L.C.: Addressing the sexuality and sex education of individuals with autism spectrum disorders. Educ. Treat. Child. 31(3), 381–394 (2008)
Fernandes, L.C., Gillberg, C.I., Cederlund, M., Hagberg, B., Gillberg, C., Billstedt, E.: Aspects of sexuality in adolescents and adults diagnosed with autism spectrum disorders in childhood. J. Autism Dev. Disord. 46(9), 3155–3165 (2016)
Brown-Lavoie, S.M., Viecili, M.A., Weiss, J.A.: Sexual knowledge and victimization in adults with autism spectrum disorders. J. Autism Dev. Disord. 44(9), 2185–2196 (2014)
Pecora, L.A., Mesibov, G.B., Stokes, M.A.: Sexuality in high-functioning autism: a systematic review and meta-analysis. J. Autism Dev. Disord. 46(11), 3519–3556 (2016)
Beddows, N., Brooks, R.: Inappropriate sexual behaviour in adolescents with autism spectrum disorder: what education is recommended and why. Early Interv. Psychiatry 10(4), 282–289 (2016)
Curtiss, S.L., Ebata, A.T.: Building capacity to deliver sex education to individuals with autism. Sex. Disabil. 34(1), 27–47 (2016)
Hellemans, H., Roeyers, H., Leplae, W., Dewaele, T., Deboutte, D.: Sexual behavior in male adolescents and young adults with autism spectrum disorder and borderline/mild mental retardation. Sex. Disabil. 28(2), 93–104 (2010)
Kalyva, E.: Teachers’ perspectives of the sexuality of children with autism spectrum disorders. Res. Autism Spectr. Disord. 4(3), 433–437 (2010)
Howlin, P.: Autism and Asperger Syndrome: Preparing for Adulthood. Routledge, London (2004)
Sevlever, M., Roth, M.E., Gillis, J.M.: Sexual abuse and offending in autism spectrum disorders. Sex. Disabil. 31(2), 189–200 (2013)
Stokes, M., Newton, N., Kaur, A.: Stalking, and social and romantic functioning among adolescents and adults with autism spectrum disorder. J. Autism Dev. Disord. 37(10), 1969–1986 (2007)
Baarsma, M.E., Boonmann, C., Lisette, A., de Graaf, H., Doreleijers, T.A., Vermeiren, R.R., Jansen, L.M.: Sexuality and autistic-like symptoms in juvenile sex offenders: a follow-up after 8 years. J. Autism Dev. Disord. 46(8), 2679–2691 (2016)
Vassilikou, K., Ioannidi-Kapolou, E.: Sex education and sex behaviour in Greek adolescents: a research review. Soc. Cohes. Dev. 9(2), 143–154 (2014)
Howard, M., Mitchell, M.: Postponing Sexual Involvement: An Educational Series for Preteens. Adolescent Reproductive Health Center, Grady Health System, Atlanta, GA (1996)
Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., Lobbestael, J., Van Nieuwenhuizen, C.: Sexuality in adolescent boys with autism spectrum disorder: self-reported behaviours and attitudes. J. Autism Dev. Disord. 45(3), 731–741 (2015)
Dewinter, J., Van Parys, H., Vermeiren, R., van Nieuwenhuizen, C.: Adolescent boys with an autism spectrum disorder and their experience of sexuality: an interpretative phenomenological analysis. Autism 21(1), 75–82 (2017)
Kellaher, D.C.: Sexual behavior and autism spectrum disorders: an update and discussion. Curr. Psychiatry Rep. 17(4), 25 (2015)
Melone, M.B., Lettick, A.L.: Sex education at Benhaven. In: Schopler, E., Mesibov, G.B. (eds.) Autism in Adolescents and Adults, pp. 169–186. Springer, Boston (1983)
Makrygianni, M.K., Gena, A., Katoudi, S., Galanis, P.: The effectiveness of applied behavior analytic interventions for children with autism spectrum disorder: a meta-analytic study. Res. Autism Spectr. Disord. 51, 18–31 (2018)
Fein, D., Barton, M., Eigsti, I.M., Kelley, E., Naigles, L., Schultz, R.T., Stevens, M., Helt, M., Orinstein, A., Rosenthal, M.: Optimal outcome in individuals with a history of autism. J. Child Psychol. Psychiatry 54(2), 195–205 (2013)
Reichow, B.: Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. J. Autism Dev. Disord. 42(4), 512–520 (2012)
Georgas, D., Paraskevopoulos, I., Bezevegis, H., Giannitsas, N.J.A.E.G.: Greek Version of Wechsler Intelligence Scale for Children, WISC-III. Ellinika Grammata, Athens (1997)
Sparrow, S.S., Balla, D.A., Cicchetti, D.V., Harrison, P.L., Doll, E.A.: Vineland Adaptive Behavior Scales. American Guidance Service, Circle Pines, MN (1984)
Schopler, E., Reichler, R., Renner, B.: Child Autism Rating Scale. Western Psychological Services Corporation, Los Angeles, CA (1988)
Talbot, T.J., Langdon, P.E.: A revised sexual knowledge assessment tool for people with intellectual disabilities: is sexual knowledge related to sexual offending behaviour? J. Intell. Dis. Res. 50(7), 523–531 (2006)
Eyberg, S., Pincus, D.: ECBI & SESBI-R: Eyberg Child Behavior Inventory and Sutter-Eyberg Student Behavior Inventory-Revised: Professional Manual. Psychological Assessment Resources, Odessa, FL (1999)
Spielberger, C., Gorsuch, R., Lushene, R., Vagg, P., Jacobs, G.J.I.: Manual for the State-Trait Anxiety Inventory. Consulting Psychologists Press, Palo Alto, CA (1983)
Kazdin, A.E.: Single-Case Research Designs: Methods for Clinical and Applied Settings. Oxford University Press, Oxford (2011)
Gilmour, L., Schalomon, P.M., Smith, V.: Sexuality in a community based sample of adults with autism spectrum disorder. Res. Autism Spectr. Disord. 6(1), 313–318 (2012)
Matson, J.L., Shoemaker, M.: Intellectual disability and its relationship to autism spectrum disorders. Res. Dev. Disord. 30(6), 1107–1114 (2009)
Nichols, S., Blakeley-Smith, A.: “I’m not sure we’re ready for this…”: working with families toward facilitating healthy sexuality for individuals with autism spectrum disorders. Soc. Work Ment. Health 8(1), 72–91 (2009)
Schuster, M.A., Corona, R., Elliott, M.N., Kanouse, D.E., Eastman, K.L., Zhou, A.J., Klein, D.J.: Evaluation of talking parents, healthy teens, a new worksite based parenting programme to promote parent-adolescent communication about sexual health: randomised controlled trial. BMJ 337, a308 (2008)
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of interest
All authors declare that they have no conflicts of interest.
Ethical Approval
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed Consent
As described above in the ‘‘Method’’ section, informed consent or assent was obtained from all individual participants included in the study. Parents provided informed consent, and adolescents provided assent.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
About this article
Cite this article
Gkogkos, G., Staveri, M., Galanis, P. et al. Sexual Education: A Case Study of an Adolescent with a Diagnosis of Pervasive Developmental Disorder-Not Otherwise Specified and Intellectual Disability. Sex Disabil 39, 439–453 (2021). https://doi.org/10.1007/s11195-019-09594-3
Published:
Issue Date:
DOI: https://doi.org/10.1007/s11195-019-09594-3