Abstract
Facebook advertising is a powerful tool for increasing the outreach and recruitment of research participants. We describe our experience as genetic counselors within the context of an internet-based research study, recruiting subjects for a Parkinson disease (PD) biomarker study.
This is a preview of subscription content, log in via an institution to check access.
Similar content being viewed by others
References
Bender, J. L., Cyr, A. B., Arbuckle, L., & Ferris, L. E. (2017). Ethics and privacy implications of using the internet and social media to recruit participants for Health Research: a privacy-by-design framework for online recruitment. Journal of Medical Internet Research, 19(4), e104. https://doi.org/10.2196/jmir.7029.
Foroud, T., Smith, D., Jackson, J., Verbrugge, J., Halter, C., Wetherill, L., Sims, K., Xin, W., Arnedo, V., Lasch, S., Marek, K., & the Parkinson’s Progression Markers Initiative. (2015). Novel recruitment strategy to enrich for LRRK2 mutation carriers. Molecular Genetics & Genomic Medicine, 3(5), 404–412. https://doi.org/10.1002/mgg3.151.
Greenwood, S., Perrin, A, & Duggan, M. (2016). Social media update 2016. Retrieved August 31, 2017, from http://www.pewinternet.org/2016/11/11/social-media-update-2016/
Reaves, A. C., & Bianchi, D. W. (2013). The role of social networking sites in medical genetics research. American Journal of Medical Genetics. Part A, 161A(5), 951–957. https://doi.org/10.1002/ajmg.a.35903.
SACHRP Committee Recommendations: Considerations and Recommendations Concerning Internet Research and Human Subjects Research Regulations, with Revisions. (2013). Retrieved August 31, 2017, from https://www.hhs.gov/ohrp/sachrp-committee/recommendations/sachrp-recommendations/index.html
Acknowledgements
We thank the participants and their families for their support of this research study. PPMI—a public-private partnership—is funded by The Michael J. Fox Foundation for Parkinson’s Research and funding partners, including Abbvie, Avid Radiopharmaceuticals, Biogen, Bristol Myers Squibb, GE Healthcare, BioLegend, Genentech, GlaxoSmithKline, Eli Lilly and Company, Lundbeck, Merck, Meso Scale Discovery, Pfizer, Piramal, Roche, Sanofi Genzyme, Servier, Takeda, Teva, and UCB.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of Interest
Jennifer Verbrugge, Malia Rumbaugh, Lola Cook, Jeanine Schulze, Mandy Miller, Laura Heathers, Vanessa Arnedo, Maggie McGuire Kuhl and Tatiana Foroud declare that they have no conflict of interest.
Human Studies and Informed Consent
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Animal Studies
This article does not contain any studies with animals performed by any of the authors.
Rights and permissions
About this article
Cite this article
Verbrugge, J., Rumbaugh, M., Cook, L. et al. The Promise and Pitfalls of Facebook Advertising: a Genetic Counselor’s Perspective. J Genet Counsel 27, 326–328 (2018). https://doi.org/10.1007/s10897-017-0207-3
Received:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10897-017-0207-3