Abstract
Caring for an individual with developmental disabilities can be challenging and time consuming for parents. This study examined the mediating effect of depression in the relationship between caregiving-related stressors (caregiving time and behavior problems) and life satisfaction among parents caring for individuals with developmental disabilities. We performed a secondary analysis of data from the 2011 Survey on the Actual Conditions of Individuals with Developmental Disabilities, conducted by the Korean Ministry of Health and Welfare. Caregiving time, behavior problems, parental depression, and life satisfaction were measured. The proposed path model showed a good fit to the data: caregiving time and severity of behavior problems in individuals with developmental disabilities influenced parental life satisfaction, and these relationships were partially mediated by depression. These results could help health care providers in developing prevention and treatment programs by providing greater insight into the modifiable factors related to depression and life satisfaction among parents caring for individuals with developmental disabilities.
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Ali, A., Hassiotis, A., Strydom, A., & King, M. (2012). Self stigma in people with intellectual disabilities and courtesy stigma in family carers: A systematic review. Research in Developmental Disabilities, 33(6), 2122–2140.
Allik, H., Larsson, J. O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism. Health and Quality of Life Outcomes, 4(1), 1.
Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107(6), 433–444.
Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198.
Choi, G., & Lam, C. S. (2001). Korean students’ differential attitudes toward people with disabilities: An acculturation perspective. International Journal of Rehabilitation Research, 24, 79–81.
Diener, E. D., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49(1), 71–75.
Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: A randomized trial. Pediatrics, 134(2), e454–e463. https://doi.org/10.1542/peds.2013-3164.
Eady, N., Courtenay, K., & Strydom, A. (2015). Pharmacological management of behavioral and psychiatric symptoms in older adults with intellectual disability. Drugs & Aging, 32, 95–102.
Fianco, A., Sartori, R. D., Negri, L., Lorini, S., Valle, G., & Delle Fave, A. (2015). The relationship between burden and well-being among caregivers of Italian people diagnosed with severe neuromotor and cognitive disorders. Research in Developmental Disabilities, 39, 43–54.
Flaherty, E. M., & Masters Glidden, L. (2000). Positive adjustment in parents rearing children with down syndrome. Early Education and Development, 11(4), 407–422.
Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J. A., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74(1), 14–25.
Grein, K. A., & Glidden, L. M. (2015). Predicting well-being longitudinally for mothers rearing offspring with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 59(7), 622–637. https://doi.org/10.1111/jir.12166.
Grey, J. M., Totsika, V., & Hastings, R. P. (2017). Physical and psychological health of family carers co-residing with an adult relative with an intellectual disability. Journal of Applied Research in Intellectual Disabilities., (Suppl 2), 191–202. https://doi.org/10.1111/jar.12353.
Grzywacz, J. G., Hovey, J. D., Seligman, L. D., Arcury, T. A., & Quandt, S. A. (2006). Evaluating short-form versions of the CES-D for measuring depressive symptoms among immigrants from Mexico. Hispanic Journal of Behavioral Sciences, 28(3), 404–424.
Hastings, R. P., Beck, A., & Hill, C. (2005). Positive contributions made by children with an intellectual disability in the family: Mothers’ and fathers’ perceptions. Journal of Intellectual Disabilities, 9(2), 155–165.
Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111(1), 48–61.
Hoe, M. S., Park, B. S., & Bae, S. W. (2015). Testing measurement invariance of the 11-item Korean version CES-D scale. Mental Health and Social Work, 43(2), 313–339.
Hsieh, R. L., Hsieh, W. H., & Lee, W. C. (2016). Short-term family-centered workshop for children with developmental delays enhances family functioning and satisfaction: A prospective clinical trial. Medicine, 95(31), e4200. https://doi.org/10.1097/MD.0000000000004200.
Isa, S. N. I., Ishak, I., Ab Rahman, A., Saat, N. Z. M., Din, N. C., Lubis, S. H., & Ismail, M. F. M. (2016). Health and quality of life among the caregivers of children with disabilities: A review of literature. Asian Journal of Psychiatry, 23, 71–77.
Jobson, J. D. (1991). Confidence regions for the mean-variance efficient set: An alternative approach to estimation risk. Review of Quantitative Finance and Accounting, 1(3), 235.
Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883–893.
Korea Institute for Health and Social Affairs. (2014). 2014 Basic Analysis Report Korea Welfare Panel. Seoul.
Korea Institute of Child Care and Education (2016). Panel study on Koran children. http://panel.kicce.re.kr/.
Langa, K. M., Fultz, N. H., Saint, S., Kabeto, M. U., & Herzog, A. (2002). Informal caregiving time and costs for urinary incontinence in older individuals in the United States. Journal of the American Geriatrics Society, 50(4), 733–737.
Lee, L. C., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38(6), 1147–1160.
Lin, L. P., Hsu, S. W., Kuo, M. T., Wu, J. L., Chu, C., & Lin, J. D. (2014). Onset aging conditions of adults with an intellectual disability associated with primary caregiver depression. Research in Developmental Disabilities., 35(3), 632–638. https://doi.org/10.1016/j.ridd.2013.12.013.
Lin, E., Balogh, R., McGarry, C., Selick, A., Dobranowski, K., Wilton, A. S., & Lunsky, Y. (2016). Substance-related and addictive disorders among adults with intellectual and developmental disabilities (IDD): An Ontario population cohort study. BMJ Open, 6(9), e011638.
Lunsky, Y., Robinson, S., Blinkhorn, A., & Ouellette-Kuntz, H. (2017). Parents of adults with intellectual and developmental disabilities (IDD) and compound caregiving responsibilities. Journal of Child and Family Studies, 26(5), 1374–1379.
Määttä, T., Kaski, M., Taanila, A., Keinänen-Kiukaanniemi, S., & Iivanainen, M. (2006). Sensory impairments and health concerns related to the degree of intellectual disability in people with down syndrome. Down's syndrome. Research and Practice : the Journal of the Sarah Duffen Centre, 11, 78–83.
Martorell, A., Gutierrez-Recacha, P., Pereda, A., & Ayuso-Mateos, J. L. (2008). Identification of personal factors that determine work outcome for adults with intellectual disability. Journal of Intellectual Disability Research, 52(12), 1091–1101.
McIntyre, L. L., Blacher, J., & Baker, B. L. (2002). Behaviour/mental health problems in young adults with intellectual disability: The impact on families. Journal of Intellectual Disability Research, 46(3), 239–249.
Neece, C. L. (2014). Mindfulness-based stress reduction for parents of young children with developmental delays: Implications for parental mental health and child behavior problems. Journal of Applied Research in Intellectual Disabilities., 27(2), 174–186. https://doi.org/10.1111/jar.12064.
Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability, 31(1), 1–12.
Olobatuyi, M. E. (2006). A User’s guide to path analysis. Oxford: University Press of America.
Park, E. Y., & Nam, S. J. (2018). Time burden of caring and depression among parents of individuals with cerebral palsy. Disability and rehabilitation. https://doi.org/10.1080/09638288.2018.1432705.
Patton, K. A., Ware, R., McPherson, L., Emerson, E., & Lennox, N. (2016). Parent-related stress of male and female Carers of adolescents with intellectual disabilities and Carers of children within the general population: A cross-sectional comparison. Journal of Applied Research in Intellectual Disabilities, 31(1), 51–61.
Pearlin, L. I., & Bierman, A. (2013). Current issues and future directions in research into the stress process. Handbook of the sociology of mental health, 325–340.
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594.
Pelchat, D., Levert, M. J., & Bourgeois-Guérin, V. (2009). How do mothers and fathers who have a child with a disability describe their adaptation/transformation process? Journal of Child Health Care, 13(3), 239–259.
Perkins, E. A., & Haley, W. E. (2010). Compound caregiving: When lifelong caregivers undertake additional caregiving roles. Rehabilitation Psychology, 55(4), 409–417.
Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401.
Reppermund, S., & Trollor, J. N. (2016). Successful ageing for people with an intellectual disability. Current Opinion in Psychiatry, 29, 149–154.
Rillotta, F., Kirby, N., Shearer, J., & Nettelbeck, T. (2012). Family quality of life of Australian families with a member with an intellectual/developmental disability. Journal of Intellectual Disability Research, 56(1), 71–86. https://doi.org/10.1111/j.1365-2788.2011.01462.x.
Robinson, S., Hastings, R. P., Weiss, J. A., Pagavathsing, J., & Lunsky, Y. (2018). Self‐compassion and psychological distress in parents of young people and adults with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 31(3), 454–458.
Rubin, I. L., Merrick, J., Greydanus, D. E., & Patel, D. R. (Eds.). (2016). Health care for people with intellectual and developmental disabilities across the lifespan. Springer.
Schulte-Körne, G. (2016). Mental health problems in a school setting in children and adolescents. Deutsches Ärzteblatt International, 113(11), 183.
Scior, K. (2011). Public awareness, attitudes and beliefs regarding intellectual disability: A systematic review. Research in Developmental Disabilities, 32(6), 2164–2182.
Sheridan, J., & Scior, K. (2013). Attitudes towards people with intellectual disabilities: A comparison of young people from British south Asian and white British backgrounds. Research in Developmental Disabilities, 34(4), 1240–1247.
Shin, J. Y. (2002). Social support for families of children with mental retardation: Comparison between Korea and the United States. Mental Retardation, 40(2), 103–118.
Shivers, C. M., Leonczyk, C. L., & Dykens, E. M. (2016). Life satisfaction among mothers of individuals with Prader-Willi syndrome. Journal of Autism and Developmental Disorders, 46(6), 2126–2137. https://doi.org/10.1007/s10803-016-2741-5.
Singer, G. H. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155–169.
Slinker, B. K., & Glantz, S. A. (1985). Multiple regression for physiological data analysis: The problem of multicollinearity. American Journal of Physiology-Regulatory, Integrative and Comparative Physiology, 249(1), R1–R12.
Umberson, D. (1992). Relationships between adult children and their parents: Psychological consequences for both generations. Journal of Marriage and the Family, 54, 664–674.
Van Der Veek, S. M., Kraaij, V., & Garnefski, N. (2009). Down or up? Explaining positive and negative emotions in parents of children with Down's syndrome: Goals, cognitive coping, and resources. Journal of Intellectual and Developmental Disability, 34(3), 216–229.
Verdonschot, M. M., De Witte, L. P., Reichrath, E., Buntinx, W. H. E., & Curfs, L. M. (2009). Community participation of people with an intellectual disability: A review of empirical findings. Journal of Intellectual Disability Research, 53(4), 303–318.
Walsh, C. E., Mulder, E., & Tudor, M. E. (2013). Predictors of parent stress in a sample of children with ASD: Pain, problem behavior, and parental coping. Research in Autism Spectrum Disorders, 7(2), 256–264.
Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34(11), 4103–4114. https://doi.org/10.1016/j.ridd.2013.08.029.
Wilson, N. J., Parmenter, T. R., Stancliffe, R. J., Shuttleworth, R. P., & Parker, D. (2010). A masculine perspective of gendered topics in the research literature on males and females with intellectual disability. Journal of Intellectual & Developmental Disability, 35, 1–8.
Yavuzer, Y., & Civilidag, A. (2014). Mediator role of depression on the relationship between mobbing and life satisfaction of health professionals. Düşünen Adam, 27(2), 115.
Yoong, A., & Koritsas, S. (2012). The impact of caring for adults with intellectual disability on the quality of life of parents. Journal of Intellectual Disability Research, 56(6), 609–619.
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Park, EY., Kim, JH. Depression and Life Satisfaction among Parents Caring for Individuals with Developmental Disabilities in South Korea. J Dev Phys Disabil 31, 453–469 (2019). https://doi.org/10.1007/s10882-018-9647-4
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DOI: https://doi.org/10.1007/s10882-018-9647-4