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Personal Health Records and Patient-Oriented Infrastructures: Building Technology, Shaping (New) Patients, and Healthcare Practitioners

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Notes

  1. This phrase, as well as similar ones like `electronic medical record’, usually denote the patient-specific (electronic) record that represents and documents a single stay at a hospital of any patient. On the other hand, electronic health records and personal health record denote both lifelong collections of data and facts that pertain to the health of a single citizen. The difference between the latter two applications seems subtle, if not vague, to many commentators and it is often (NAHIT 2008) related to the degree of autonomy, access and ownership held by the patient (which is stronger in the PHR case)

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Authors and Affiliations

  1. Fondazione Bruno Kessler, Via Sommarive 18, 38121, Trento, Italy

    Enrico Maria Piras

  2. University of Milano-Bicocca, Viale Sarca, 336 -, 20126, Milan, Italy

    Federico Cabitza

  3. IRCCS Istituto Ortopedico Galeazzi, Milano, Italy

    Federico Cabitza

  4. Troyes University of Technology, 12 Rue Marie Curie, CS 42060, 10004, Troyes Cedex, France

    Myriam Lewkowicz

  5. University of Limerick, Computer Science Building, Plassey Park Rd, Castletroy, Limerick, Ireland

    Liam Bannon

  6. Aarhus University, Aarhus, Denmark

    Liam Bannon

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  1. Enrico Maria Piras
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  2. Federico Cabitza
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  4. Liam Bannon
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Correspondence to Enrico Maria Piras.

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Piras, E.M., Cabitza, F., Lewkowicz, M. et al. Personal Health Records and Patient-Oriented Infrastructures: Building Technology, Shaping (New) Patients, and Healthcare Practitioners. Comput Supported Coop Work 28, 1001–1009 (2019). https://doi.org/10.1007/s10606-019-09364-x

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