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Health Research in Intellectual and Developmental Disabilities

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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

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Abstract

Information on the health and wellness of people with intellectual and developmental disability (IDD) has been furthered by direct clinical assessments, community surveys, and health service research. Each of these presents with limitations, particularly in the area of generalization. Population based surveillance methods address this limitation and provide a representative look at the lives of people with IDD. National surveillance datasets are successful in presenting rich, nationally-representative information on health issues, however, they also present with limitations that do not apply to other methods of health research. For example, this methodology is unable to confirm diagnoses of health conditions endorsed by respondents, and information may not be as in-depth as smaller-scale studies such as direct assessment, community-based surveys, and health record reviews. Despite these limitations, we will in this chapter share examples of research findings that have been published using national surveillance data. Surveillance data has led to many discoveries in terms health status, care, and quality that can help health care providers anticipate the needs of patients with IDD and their families, and ultimately provide better care.

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Author information

Authors and Affiliations

  1. Department of Psychology, The Ohio State University Nisonger Center, UCEDD, 1581 Dodd Dr, Columbus, OH, 43210, USA

    Rose E. Nevill & Haleigh M. Scott

  2. Department of Psychiatry and Psychology, The Ohio State University Nisonger Center, UCEDD, 1581 Dodd Dr, Columbus, OH, 43210, USA

    Susan M. Havercamp Ph.D.

Authors
  1. Rose E. Nevill
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  2. Haleigh M. Scott
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  3. Susan M. Havercamp Ph.D.
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Corresponding author

Correspondence to Susan M. Havercamp Ph.D. .

Editor information

Editors and Affiliations

  1. Innovative Solutions for Disadvantage and Disability and Department of Pediatrics, Morehouse School of Medicine, Atlanta, GA, USA

    I. Leslie Rubin

  2. National Institute of Child Health and Human Development and Medical Services, Division for Developmental and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, Israel

    Joav Merrick

  3. Department of Pediatric and Adolescent Medicine, Western Michigan University Homer Stryker MD School of Medicine, Western Michigan University, Kalamazoo, MI, USA

    Donald E. Greydanus  & Dilip R. Patel  & 

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Nevill, R.E., Scott, H.M., Havercamp, S.M. (2016). Health Research in Intellectual and Developmental Disabilities. In: Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (eds) Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_167

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  • DOI: https://doi.org/10.1007/978-3-319-18096-0_167

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-18095-3

  • Online ISBN: 978-3-319-18096-0

  • eBook Packages: MedicineMedicine (R0)

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