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Patient-Reported Outcome Measures in Neurogenic Lower Urinary Tract Dysfunction

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Handbook of Neurourology

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Abstract

Patient-reported outcome measures, generally in the form of questionnaires, are arguably the most reliable assessment of patient quality of life. They convey a personal account of the patient without any outside interpretation. Medical conditions in individuals with neurogenic lower urinary tract dysfunction do not necessary correlate with symptom perception, and thus patient-reported outcome measures are particularly important in this population. When the clinician selects and/or interprets PROMs, it is useful to understand their utility, development process, and measures of quality. The important features of patient-reported outcome measure development and metrics for critical assessment are discussed. Then, specific patient-reported outcome measures, which have been developed and validated in patient populations with neurogenic bladder, including the Qualiveen, Neurogenic Bladder Symptom Score, Actionable Bladder Symptom Screening Tool, Incontinence Quality of Life Questionnaire, and Urinary Symptom Questionnaires for People with Neurogenic Bladder, are introduced and their details discussed.

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Authors and Affiliations

  1. Glickman Urological and Kidney Institute, The Cleveland Clinic, Lerner College of Medicine, Cleveland, OH, USA

    Glenn T. Werneburg & Howard B. Goldman

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  1. Glenn T. Werneburg
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  2. Howard B. Goldman
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Correspondence to Glenn T. Werneburg .

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Editors and Affiliations

  1. Department of Urology Department of Neurourology, China Rehabiliation Research Center China Rehabilitation Science InstituteCapital Medical University, Beijing, China

    Limin Liao

  2. Department of Urology, Medical University Innsbruck, University Hospital, Innsbruck, Austria

    Helmut Madersbacher

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Werneburg, G.T., Goldman, H.B. (2023). Patient-Reported Outcome Measures in Neurogenic Lower Urinary Tract Dysfunction. In: Liao, L., Madersbacher, H. (eds) Handbook of Neurourology. Springer, Singapore. https://doi.org/10.1007/978-981-99-1659-7_87

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  • DOI: https://doi.org/10.1007/978-981-99-1659-7_87

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