Skip to main content

“With Us and About Us”: Participatory Methods in Research with “Vulnerable” or Marginalized Groups

  • Living reference work entry
  • First Online:

Abstract

In much health and social scientific research that includes “vulnerable,” “hard-to-reach” or marginalized groups, claims are often made about participatory methods and techniques that enhance participant engagement and “voice.” In many cases, however, the validity of these claims remains unclear – the nature and extent of participant involvement in such studies is not always defined and the value and efficacy, as well as the challenges, of using participatory methods are often misunderstood. In many respects, these oversights can be explained by the lack of cognate and applicable participatory models or frameworks that can help researchers work more effectively with marginalized participants. This chapter explores these issues drawing on the author’s own extensive research with marginalized groups and participatory models of working that both promote and enhance participant engagement and emancipation in research processes. Such approaches see “vulnerable,” marginalized, or socially excluded research participants in transformative roles in research, including as co-researchers, co-analysts, and designers and producers of their own research agendas and projects.

This is a preview of subscription content, log in via an institution.

References

  • Aldridge J. Picture this: the use of participatory photographic research methods with people with learning disabilities. Disabil Soc. 2007;22(1):1–17.

    Article  Google Scholar 

  • Aldridge J. The participation of vulnerable children in photographic research. Vis Stud. 2012a;27(1):48–58.

    Article  Google Scholar 

  • Aldridge J. Working with vulnerable groups in social research: dilemmas by default and design. Qual Res. 2012b;14(1):112–30.

    Article  Google Scholar 

  • Aldridge J. Participatory research: working with vulnerable groups in social research. Sage Research Methods Cases. 2014. https://doi.org/10.4135/978144627305014540252.

  • Aldridge J. Participatory research: working with vulnerable groups in research and practice. Bristol: The Policy Press; 2015.

    Book  Google Scholar 

  • Aldridge J, Sharpe D. Pictures of young caring. Loughborough: Young Carers Research Group, Loughborough University; 2007.

    Google Scholar 

  • Atkinson D. Engaging competent others: a study of the support networks of people with a mental handicap. Br J Soc Work. 1986;16:83–101.

    Google Scholar 

  • Atkinson D. An auto/biographical approach to learning disability research. Aldershot: Ashgate; 1997.

    Google Scholar 

  • Biggs S. Resource-poor farmer participation in research: a synthesis of experiences from nine national agricultural research systems. OFCOR (On-Farm Client-Oriented Research) Comparative Study Paper 3. The Hague: International Service for National Agricultural Research; 1989.

    Google Scholar 

  • Boddy J, Oliver C. Research governance in children’s services: the scope for new advice. London: Thomas Coram Research Unit, Department for Education; 2010.

    Google Scholar 

  • Bourdieu P. Understanding. Theory Cult Soc. 1996;13(2):17–37.

    Article  Google Scholar 

  • Britzman D. Who has the floor? Curriculum teaching and the English student teacher’s struggle for voice. Curric Inq. 1989;19(2):143–62.

    Article  Google Scholar 

  • Catalani C, Minkler M. Photovoice: a review of the literature. London: Centre for Narrative Research, University of East London; 2010. www.uel.ac.uk/cnr.

    Google Scholar 

  • Chataway C. An examination of the constraints on mutual inquiry in a participatory action research project. J Soc Issues. 1997;53(4):747–65.

    Article  Google Scholar 

  • Chevalier JM, Buckles DJ. Participatory action research: theory and methods for engaged enquiry. Abingdon: Routledge; 2013.

    Google Scholar 

  • Cornwall A, Jewkes R. What is participatory research? Soc Sci Med. 1995;41(12):1667–76.

    Article  Google Scholar 

  • Department of Health (DH). No secrets: guidance on developing and implementing multi-agency policies and procedures to protect vulnerable adults from abuse. London: DH; 2000.

    Google Scholar 

  • Department of Health. Research governance framework for health and social care. London: DH; 2005. www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4122427.pdf.

    Google Scholar 

  • Economic and Social Research Council (ESRC). Framework for research ethics [updated September 2012]. 2010. www.esrc.ac.uk/_images/framework-for-research-ethics-09-12_tcm8-4586.pdf.

  • Fals Borda O. Knowledge and people’s power: lessons with peasants in Nicaragua, Mexico and Colombia. New York: New Horizons Press; 1988.

    Google Scholar 

  • Flynn M. Independent living for adults with mental handicap: a place of my own. London: Cassell; 1989.

    Google Scholar 

  • Goodley D, Moore M. Doing disability research: activist lives and the academy. Disabil Soc. 2000;15(6):861–82.

    Article  Google Scholar 

  • Goodson IF. Developing narrative theory: life histories and personal representation. Abingdon: Routledge; 2013.

    Google Scholar 

  • Hart RA. Children’s participation from tokenism to citizenship. Florence: UNICEF Innocenti Research Centre; 1992. www.freechild.org/ladder.htm.

    Google Scholar 

  • Higginbottom G, Liamputtong P, editors. Participatory qualitative research methodologies in health. London: SAGE; 2015.

    Google Scholar 

  • Hill M, Davis J, Prout A, Tisdall K. Moving the participation agenda forward. Child Soc. 2004;18(2):77–96.

    Article  Google Scholar 

  • Hurdley R. In the picture or off the wall? Ethical regulation, research habitus and unpeopled ethnography. Qual Inq. 2010;16(6):517–28.

    Article  Google Scholar 

  • Joanou JP. The bad and the ugly: ethical concerns in participatory photographic methods with children living and working on the streets of Lima, Peru. Vis Stud. 2009;2(3):214–23.

    Article  Google Scholar 

  • Larkin M. Vulnerable groups in health and social care. London: SAGE; 2009.

    Book  Google Scholar 

  • Lewis A, Porter J. Interviewing children and young people with learning disabilities: guidelines for researchers and multi-professional practice. Br J Learn Disabil. 2004;32(4):191–7.

    Article  Google Scholar 

  • Liamputtong P. Researching the vulnerable: a guide to sensitive research methods. London: SAGE; 2007.

    Book  Google Scholar 

  • Lieblich A, Tuval-Mashiach R, Zilber T, editors. Narrative research: reading, analysis, and interpretation. London: SAGE; 1998.

    Google Scholar 

  • McTaggart R, editor. Participatory action research: international contexts and consequences. Albany: State University of New York Press; 1997.

    Google Scholar 

  • Moore LW, Miller M. Initiating research with doubly vulnerable populations. J Adv Nurs. 1999;30(5):1034–40.

    Article  Google Scholar 

  • O’Neill M, Giddens S, Breatnach P, Bagley C, Bourne D, Judge T. Renewed methodologies for social research: ethno-mimesis as performative praxis. Sociol Rev. 2002;50(1):69–88.

    Google Scholar 

  • Parrott L, Jacobs G, Roberts D. Stress and resilience factors in parents with mental health problems and their children, Social Care Institute for Excellence Research Briefing, vol. 23. London: Social Care Institute for Excellence; 2008.

    Google Scholar 

  • Rapoport RN. Three dilemmas in action research. Hum Relat. 1970;26(3):499–513.

    Article  Google Scholar 

  • Rapport F. The poetry of holocaust survivor testimony: towards a new performative social science. Forum Qual Soc Res. 2008;9(2):1–16. article 28.

    Google Scholar 

  • Rogers AC. Vulnerability, health and health care. J Adv Nurs. 1997;27:65–72.

    Article  Google Scholar 

  • Sempik J, Aldridge J, Becker S. Health, well-being and social inclusion: therapeutic horticulture in the UK. Bristol: Policy Press; 2005.

    Google Scholar 

  • Steel R. Involving marginalised and vulnerable groups in research: a consultation document. Involve. London: NHS; 2001.

    Google Scholar 

  • Thomson P, editor. Doing visual research with children and young people. London: Routledge; 2008.

    Google Scholar 

  • Walker R, Schratz B, Egg P. Seeing beyond violence: visual research applied to policy and practice. In: Thomson P, editor. Doing visual research with children and young people. Abingdon: Routledge; 2008. p. 164–74.

    Google Scholar 

  • Walmsley J, Johnson K. Inclusive research with people with learning disabilities: past, present and futures. London: Jessica Kingsley Publishers; 2003.

    Google Scholar 

  • Whyte WF. Advancing scientific knowledge through participatory action research. Sociol Forum. 1989;4(3):367–85.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Jo Aldridge .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2017 Springer Nature Singapore Pte Ltd.

About this entry

Cite this entry

Aldridge, J. (2017). “With Us and About Us”: Participatory Methods in Research with “Vulnerable” or Marginalized Groups. In: Liamputtong, P. (eds) Handbook of Research Methods in Health Social Sciences . Springer, Singapore. https://doi.org/10.1007/978-981-10-2779-6_126-1

Download citation

  • DOI: https://doi.org/10.1007/978-981-10-2779-6_126-1

  • Received:

  • Accepted:

  • Published:

  • Publisher Name: Springer, Singapore

  • Print ISBN: 978-981-10-2779-6

  • Online ISBN: 978-981-10-2779-6

  • eBook Packages: Springer Reference Social SciencesReference Module Humanities and Social SciencesReference Module Business, Economics and Social Sciences

Publish with us

Policies and ethics