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Dementia and Caregiving

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Mental Health and Illness of the Elderly

Abstract

In the absence of effective options, interpersonal and environmental management provided by carers forms the foundation of dementia care. Much is known about carers, those family members providing care for someone in their family with dementia, but a comprehensive understanding of their assessment, journey through the stages of caregiving, self-perception, and definition of their own needs is lacking. To ensure carers can engage fully in providing dementia care, carers must be supported and sustained. This chapter will describe current evidence for understanding family carers in dementia and highlight key components of a suite of evidence-informed innovative programs and interventions. Carers deserve to be a consistent target of specific systematic assessment and care, and it can be said that the care of carers is a necessary component of the system of care of individuals with dementia. There are proven interventions for carers that address carer needs and can be brought to scale and disseminated. One such intervention is the Reitman Centre CARERS Program. Carers are the focus of the program with the goal of equipping them with specific skills and knowledge, including problem solving and communication techniques, to sustain them in their difficult and unfamiliar role. Looking after family carers by maximizing their abilities and minimizing their burden will ensure that they are able to be full partners in the care of patients with dementia.

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References

  • Akkerman R, Ostwald S (2004) Reducing anxiety in Alzheimer’s disease family caregivers: the effectiveness of a nine-week cognitive-behavioral intervention. Am J Alzheimer’s Dis Other Dementias 19:117–123

    Article  Google Scholar 

  • Alspaugh M, Stephen M, Townsend A, Zari S, Greene R (1999) Longitudinal patterns of risk for depression in dementia caregivers: objective and subjective primary stress as predictors. Psychol Aging 14:34–43

    Article  CAS  PubMed  Google Scholar 

  • Alzheimer Society of Canada (2011) The rising tide: the impact of dementia on Canadian Society. Alzheimer Society of Canada. Available via http://www.alzheimer.ca/~/media/Files/national/Advocacy/ASC_Rising%20Tide_Full%20Report_Eng.ashx. Accessed 1 June 2016

  • Alzheimer’s Disease International (2015) World Alzheimer report 2015. The Global Impact of Dementia. Available via http://www.alz.co.uk/research/WorldAlzheimerReport2015.pdf. Accessed 15 Jun 2016

  • American Medical Association (2002) Caregiver self-assessment tool. Available via http://www.healthinaging.org/files/documents/caregiver.self_assessment.pdf. Accessed 4 Feb 2016

  • American Psychological Association (2012) Elder abuse and neglect: in search of solutions. Available viahttp://www.apa.org/pi/aging/resources/guides/elder-abuse.aspx. Accessed 4 Jul 2016

  • Anderson M, Kassebaum D (1993) Proceedings of the AAMC’s consensus conference on the use of standardized patients in the teaching and evaluation of clinical skills. Acad Med 68:437–483

    Article  Google Scholar 

  • Andrews M, Stewart N, Morgan D (2010) Dementia awareness in norther nursing practice. Canadian J of Nursing Research 42:56–73

    Google Scholar 

  • Bass D, Bowman K (1990) The transition from caregiving to bereavement. Gerontologist 30:35–42

    Article  CAS  PubMed  Google Scholar 

  • Baumgarten M, Battista R, Infante-Rivard C, Itanely J, Becker R, Gautier S (1992) The psychological and physical health of family members caring for an elderly person with dementia. J Clin Epidemiol 45:61–70

    Article  CAS  PubMed  Google Scholar 

  • Beach S, Schulz R, Williamson G, Miller L, Weiner M, Lance C (2005) Risk factors for potentially harmful informal caregiver behavior. J Am Geriatr Soc 53:255–261

    Article  PubMed  Google Scholar 

  • Bédard M, Molloy D, Squire L, Dubois S, Lever J, O’Donnell M (2001) The Zarit burden interview: a new short version and screening version. The Gerontologist 41:652–657

    Article  PubMed  Google Scholar 

  • Belle S, Burgio, Burns R, Coon D, Czaja S, Gallagher-Thompson et al (2006) Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: a randomized, controlled trial. Ann Intern Med 145:727–738

    Article  PubMed  PubMed Central  Google Scholar 

  • Bollman R, Clemenson H (2008) Structure and change in Canada’s rural demography: an update to 2006, Statistics Canada Rural and Small Town Canada Analysis Bulletin Catalogue no. 21-006-X Vol. 7, No. 7 via http://www.statcan.gc.ca/pub/21-006-x/21-006-x2007007-eng.pdf. Accessed 6 Jul 2016

  • Boss P (1999) Ambiguous loss: learning to live with unresolved grief. Cambridge University Press

    Google Scholar 

  • Bourgeois M, Schulz R, Burgio L, Beach S (2002) Skills training for spouses of patients with Alzheimer’s disease: outcomes of an intervention. Study J Clin Geropsychol 8:53–73. doi:10.1023/A:1013098124765

    Article  Google Scholar 

  • Brodaty H (1996) Caregivers and behavioral disturbances: effects and interventions. Int Psychogeriatr 8(Suppl 3):455–458

    PubMed  Google Scholar 

  • Brodaty H, Hadzi-Parlovic D (1990) Psychosocial effects on carers of living with persons with dementia. Aust N Z J Psychiatry 24:351–361

    Article  CAS  PubMed  Google Scholar 

  • Brodaty H, Green A, Koschera A (2003) Meta-analysis of psychosocial interventions for carers of people with dementia. J Am Geriatr Soc 51:657–664

    Article  PubMed  Google Scholar 

  • Brown P, Potter J, Foster B (1990) Caregiver burden should be evaluated during geriatric assessment. J Am Geriatr Soc 38:455–460

    Article  PubMed  Google Scholar 

  • Buckner L, Yeandle S (2015) Valuing carers 2015. The rising value of carers’ support. Carers UK. Available via http://www.carersuk.org/for-professionals/policy/policy-library/valuing-carers-2015. Accessed 15 Jun 2016

  • Burns A, Rabins P (2000) Carer burden and dementia. Int J Geriatr Psychopharmacol 15:S9–S13

    Article  Google Scholar 

  • Canadian Home Care Association (2013) Portraits of home care in Canada. Available via http://www.cdnhomecare.ca/media.php?mid=3394. Accessed 27 Jun 2016

  • Canadian Institute for Health Information (CIHI) (2010) Caring for seniors with Alzheimer’s disease and other forms of Dementia. Available via https://secure.cihi.ca/free_products/Dementia_AIB_2010_EN.pdf. Accessed 2 Jul 2016

  • Carers UK (2016) State of caring 2016. Available via http://www.carersuk.org/for-professionals/policy/policy-library/state-of-caring-2016. Accessed 20 Jun 2016

  • Chappell N (2011) Population aging and the evolving care needs of older Canadians: an overview of the policy challenges, IRPP study 21. Institute for Research on Public Policy, Montreal

    Google Scholar 

  • Chiu M, Pauley T, Wesson V, Pushpakumar D, Sadavoy J (2015) Evaluation of a problem solving techniques intervention for informal carers of patients with dementia receiving in-home care. Int Psychogeriatr 27:937–948

    Article  PubMed  Google Scholar 

  • Chiu M, Wesson V, Sadavoy J (2013) Improving caregiving competence, stress coping, and mental well-being in informal dementia carers. World J Psychiatr 3:65–73. Available via http://www.wjgnet.com/2220-3206/full/v3/i3/65.htm. Accessed 2 Jul 2016

    Article  PubMed  PubMed Central  Google Scholar 

  • Cohen C, Colantonio A, Vernich L (2002) Positive aspects of caregiving: rounding out the caregiver experience. Int J Geriatr Psychopharmacol 17:184–188

    Article  Google Scholar 

  • Coon D, Thompson L, Steffen A, Sorocco K, Gallagher-Thompson D (2003) Anger and depression management: psychoeducational skill training interventions for women caregivers of a relative with dementia. The Gerontologist 43:678–689

    Article  PubMed  Google Scholar 

  • Cooper C et al (2008) Coping strategies, anxiety and depression in caregivers of people with Alzheimer’s disease. Int J Geriatr Psychiatry 23:929–936

    Article  PubMed  Google Scholar 

  • Cooper C et al (2010) The determinants of family carers’ abusive behaviour to people with dementia: results of the CARD study. J Affect Disord 121:136–142

    Article  CAS  PubMed  Google Scholar 

  • Cranswick K, Dosman D (2008) Elder care: what we know today. Statistics Canada, Ottawa

    Google Scholar 

  • Cynkar P, Mendes E (2011) More than one in six American workers also act as caregivers. Available via http://www.gallup.com/poll/148640/one-six-american-workers-act-caregivers.aspx. Accessed 5 Jul 2016

  • Czaja S et al (2009) Development of the risk appraisal measure: a brief screen to identify risk areas and guide interventions for dementia caregivers. J Am Geriatr Soc 57:1064–1072

    Article  PubMed  PubMed Central  Google Scholar 

  • Deloitte Access Economics Pty Limited (2005) The economic value of informal care. Access Economics, Kingston

    Google Scholar 

  • Dempsey M, Baago S (1998) Latent grief: the unique and hidden grief of carers of loved ones with dementia. Am J Alzheimer’s Dis 13:84–91

    Article  Google Scholar 

  • Doka K (ed) (1989) Disenfranchised grief: recognizing hidden sorrow. Lexington Books, Lexington

    Google Scholar 

  • Donaldson C, Burns A (1999) Burden of Alzheimer’s disease: helping the patient and the carer. J Geriatr Psychiatry Neurol 12:21–28. doi:10.1177/089198879901200106

    Article  CAS  PubMed  Google Scholar 

  • Donaldson C, Tarrier N, Burns A (1998) Determinants of carer stress in Alzheimer’s disease. Int J Geriatr Psychopharmacol 13:248–256

    Article  CAS  Google Scholar 

  • Dunkin J, Anderson-Hanley C (1998) Dementia caregiver burden. A review of the literature and guidelines for assessment and intervention. Neurology 51(Suppl 1):S53–S60

    Article  CAS  PubMed  Google Scholar 

  • Dura J, Kiecolt-Glaser J (1991) Sample bias in caregiving research. J Gerontol 45:P200–P204

    Article  Google Scholar 

  • Duxbury L, Higgins C (2012) Revisiting work-life issues in Canada: the 2012 National Study on Balancing work and caregiving in Canada. School of Business, Carleton University, Canada. Available via http://newsroom.carleton.ca/wp-content/files/2012-National-Work-Long-Summary.pdf. Accessed 5 Jul 2016

  • Endler N, Parker J, Butcher J (1993) A factor analytic study of coping styles and the MMPI-2 content scales. J Clin Psychol 49:523–527

    Article  CAS  PubMed  Google Scholar 

  • Family Caregiver Alliance (2009) Caregiving. Available via https://www.caregiver.org/caregiving. Accessed 27 Sept 2016

  • Family Caregiver Alliance (2012) Selected caregiver assessment measures: a resource inventory for practitioners. 2nd edn. Available via https://www.caregiver.org/selected-caregiver-assessment-measures-resource-inventory-practitioners-2012. Accessed 11 May 2016

  • Fanning R, Gaba D (2007) The role of debriefing in simulation-based learning. Simul Healthc 2:115–125. doi:10.1097/SIH.0b013e3180315539

    Article  PubMed  Google Scholar 

  • Feinberg L, Reinhard S, Houser A, and Choula R (2011) Valuing the invaluable: 2011 update. The growing contributions and costs of family caregiving. AARP Public Policy Institute. Available via http://assets.aarp.org/rgcenter/ppi/ltc/i51-caregiving.pdf. Accessed 5 Jul 2016

  • Feldman R, Chiu M, Lawson A, Sadavoy J (2017) A novel assessment of caregiver risk: the Dementia Caregiver Interview Guide (DCIG). International Psychogeriatrics (in preparation)

    Google Scholar 

  • Folkman S (1997) Positive psychological states and coping with severe stress. Soc Sci Med 45:1207–1221

    Article  CAS  PubMed  Google Scholar 

  • Forbes D, Morgan D, Janzen B (2006) Rural and urban Canadians with dementia: use of health care services. Can J Aging 25:321–330

    Article  PubMed  Google Scholar 

  • George L, Gwyther I (1986) Caregiver wellbeing: a multidimensional examination of family caregivers of demented adults. Gerontologist 26:253–259

    Article  CAS  PubMed  Google Scholar 

  • Gilleard C, Boyd W, Watt G (1982) Problems in caring for the elderly mentally infirm at home. Arch Gerontol Geriatr 1:151–158

    Article  CAS  PubMed  Google Scholar 

  • Gitlin L, Belle S, Burgio L, Czaja S, Mahoney D, Gallagher-Thompson D, Burns R, Hauck W, Zhang S, Schulz R, Ory M (2003) Effect of multicomponent interventions on Caregiver Burden and depression: the REACH multisite initiative at 6-month follow-up. Psychol Aging 18:361–374

    Article  PubMed  PubMed Central  Google Scholar 

  • Goins R, Spencer S, Byrd J (2009) Research on rural caregiving: a literature review. J Appl Gerontol 28:139–170

    Article  Google Scholar 

  • Greenberg S (2007) How to try this: the geriatric depression scale: short form. Am J Nurs 107:60–69

    Article  PubMed  Google Scholar 

  • Guberman, N, Keefe, J, Fancey, P, Nahmiash, D, Barylak, L (2001) The caregiver risk screen. Developed as part of a project: development of screening and assessment tools for family caregivers funded by the Health Transition Fund. Available at http://www.msvu.ca/site/media/msvu/CRS%20%20English%20WATERMARK.pdf. Accessed 11 Apr 2016

  • Haley W (1987) The family caregiver’s role in Alzheimer’s disease. Neurology 48(Suppl 6):S25–S29

    Google Scholar 

  • Health Council of Canada (2012) Seniors in need, caregivers in distress: what are the homecare priorities for seniors in Canada? Available via http://www.healthcouncilcanada.ca/rpt_det_gen.php?id=348. Accessed 2 Jul 2016

  • Hoff A (2015) Current and future challenges of family care in the UK. Future of an aging population: evidence review. UK Government, Foresight Future of an Aging Population Project. Available via https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/454514/gs-15-18-future-ageing-family-care-er09.pdf. Accessed 2 Jul 2016

  • Hollander M, Liu G, Chappell N (2009) Who cares and how much? The imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Health Q 12:38–47

    Article  Google Scholar 

  • Hooker K, Monahan D, Shifre K, Hutchinson C (1992) Mental and physical health of spouse caregivers: the role of personality. Psychol Ageing 7:367–375

    Article  CAS  Google Scholar 

  • Hopkins R, Kilik, L (2015) Providence Care Kingston Caregiver Stress Scale administration and interpretation manual. Available via http://www.providencecare.ca/clinical-tools/Kingston-Scales/Pages/Caregiver-Stress-Scale.aspx. Accessed 4 Feb 2016

  • Huis in het Veld J, Verkaik R, Mistiaen P, van Meijel B, Francke (2015) The effectiveness of interventions in supporting self-management of informal caregivers of people with dementia; a systematic meta review. Geriatrics 15:147. doi:10.1186/s12877-015-0145-6

    Article  PubMed  PubMed Central  Google Scholar 

  • International Psychogeriatric Association (IPA) (2002) Module 4: role of caregivers. In International Psychogeriatric Association, Behavioural and Psychological Symptoms of Dementia (BPSD) Educational Pack

    Google Scholar 

  • Johannesen M, LoGiudice D (2013) Elder abuse: a systematic review of risk factors in community-dwelling elders. Age Ageing 42:292–298

    Article  PubMed  Google Scholar 

  • Joseph G, Leach B, Turner S (2007) Caring at a distance: working women, rural to urban migration and the compassionate care challenge. Status of Women Canada Available via http://www.worklifecanada.ca/cms/resources/files/261/CADfinalreporttoSWCcomplete.pdf. Accessed 6 Jul 2016

  • Katon W, Kleinman A, Rosen G (1982) Depression and somatization: a review. Am J Med 72:241–247

    Article  CAS  PubMed  Google Scholar 

  • Kiecolt-Glaser J, Glaser R, Shuttleworth E, Dyer C, Ogrocki P, Speicher C (1987) Chronic stress and immunity in family caregivers of Alzheimer’s disease victims. Psychosom Med 48:181–189

    Google Scholar 

  • Kohn R, Verhoek-Oftedahl W (2011) Caregiving and elder abuse. Med Health/Rhode Island 94:47–49

    Google Scholar 

  • Kramer B (1997) Gain in the caregiving experience: where are we? What next? The Gerontologist 37:218–232

    Article  CAS  PubMed  Google Scholar 

  • Lazarus R, Folkman S (1984) Stress, appraisal, and coping. Springer Publishing Company, New York

    Google Scholar 

  • Lund M (2005) Caregiver, take care. Geriatr Nurs 26:152–153

    Article  PubMed  Google Scholar 

  • McCallion P, Toseland R, Lacey D, Banks S (1999) Educating nursing assistants to communicate more effectively with nursing home residents with dementia. The Gerontologist 39:456–458

    Article  Google Scholar 

  • McDonald S, Keesler V, Kauffman N, Schneider B (2006) Scaling-up exemplary interventions. Educ Res 35:15–24. doi:10.3102/0013189X035003015

    Article  Google Scholar 

  • Mega M, Cummings J, Fiorello T, Gornbein J (1996) The spectrum of behavioral changes in Alzheimer’s disease. Neurology 46:130–135

    Article  CAS  PubMed  Google Scholar 

  • Melo G, Maroco J, de Mendonca A (2011) Influence of personality on caregivers’s burden, depression and distress related to BPSD. Int J of Geratric Psychiatry 26:1275–1282

    Google Scholar 

  • Mitchell J, Kemp B (2000) Quality of life in assisted living homes: a multidimensional analysis. J Gerontol B Psychol Sci Soc Sci 55:P117–P127

    Article  CAS  PubMed  Google Scholar 

  • Mittelman M (2002) Family caregiving for people with Alzheimer’s disease: results of the NYU spouse caregiver intervention study. Generations 26:1

    Google Scholar 

  • Mittelman M, Haley W, Clay O, Roth D (2006) Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology 67:1592–1599

    Article  PubMed  Google Scholar 

  • Mittelman M, Roth D, Clay O, Haley W (2007) Preserving health of Alzheimer caregivers: impact of a spouse caregiver intervention. Am J Geriatr Psychiatry 15:780–789

    Article  PubMed  Google Scholar 

  • Mittelman M, Ferris S, Shulman E, Steinberg G, Ambinder A, Mackell J, Cohen J (1995) A comprehensive support program: effect on depression in spouse-caregivers of AD patients. Gerontologist 35:792–802

    Article  CAS  PubMed  Google Scholar 

  • Mittelman M, Ferris S, Shulman E, Steinberg G, Lein B (1996) A family intervention to delay nursing home placement of patients with Alzheimer disease. J Am Med Assoc 276:1725–1731

    Article  CAS  Google Scholar 

  • Mittelman M, Roth D, Coon D, Haley W (2004) Sustained benefit of supportive intervention for depressive symptoms in Alzheimer’s caregivers. Am J Psychiatry 161:850–856

    Article  PubMed  Google Scholar 

  • Morgan D, Semchuk K, Stewart N, D’Arcy C (2002) Rural families caring for a relative with dementia: barriers to use of formal services. Soc Sci Med 55:1129–1142

    Article  PubMed  Google Scholar 

  • Mynors-Wallis L, Davies I, Gray A, Barbour F, Gath D (1997) A randomized controlled trial and cost analysis of problem-solving treatment for emotional disorders given by community nurses in primary care. Br J Psychiatry 170:113–119. doi:10.1192/bjp.170.2.113

    Article  CAS  PubMed  Google Scholar 

  • National Alliance for Caregiving and AARP (2015) Caregiving in the US 2015. Available via http://www.caregiving.org/wp-content/uploads/2015/05/2015_CaregivingintheUS_Final-Report-June-4_WEB.pdf

  • O’Connell M, Germaine N, Burton R, Stewart N, Morgan D (2012) Degree of rurality is not related to dementia caregiver distress, burden, and coping in a predominantly rural sample. J Appl Gerontol 32:1015–1029

    Article  PubMed  Google Scholar 

  • Ortega V, Leung P (2015) Personality and dementia caring: a review and commentary. Curr Opin Psychiatry 28:57–65

    Article  Google Scholar 

  • Pearlin L, Mullan J, Semple S, Skaff M (1990) Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist 30:583–594

    Article  CAS  PubMed  Google Scholar 

  • Pepin R, Williams A, Anderson L, Qualls S (2013) A preliminary typology of caregivers and effects on service utilization of caregiver counseling. Aging Ment Health 17:495–507

    Article  PubMed  PubMed Central  Google Scholar 

  • Perel V (1998) Psychosocial impact of Alzheimer disease. J Am Med Assoc 279:1038–1039

    Article  CAS  Google Scholar 

  • Pinquart M, Sorensen S (2006) Helping caregivers of persons with dementia: which interventions work and how large are their effects? Int Psychogeriatr 18:577–595

    Article  PubMed  Google Scholar 

  • Pruchno R, Resch N (1989) Aberrant behaviours in Alzheimer’s disease: mental health effects on spouse carers. J Gerontol 44:S177–S182

    Article  CAS  PubMed  Google Scholar 

  • Reinhard S, Feinberg L, Choula R, House A (2015) Valuing the invaluable: 2015 update. Undeniable progress, but big gaps remain. Available via http://www.aarp.org/content/dam/aarp/ppi/2015/valuing-the-invaluable-2015-update-new.pdf. Accessed 19 May 2016

  • Reis M, Gold D, Gauthier S (1994) Personality traits as determinations of burden and health complaints in caregiving. Int J Aging Hum Dev 39:257–271

    Article  CAS  PubMed  Google Scholar 

  • Saad K, Hartman J, Ballared C, Kurina M, Graham C, Wilcock G (1995) Coping by the carers of dementia suffers. Age Aging 24:495–498

    Article  CAS  Google Scholar 

  • Sadavoy J, Wesson V (2012) Refining dementia intervention: the caregiver-patient Dyad as the unit of care. Can Geriatr Soc J Can Med Educ 2:5–10

    Google Scholar 

  • Schoenmakers B, Buntinx F, Delepereire J (2010) Factors determining impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas 66:191–200

    Article  PubMed  Google Scholar 

  • Schulz R, Belle S, Czaja S, Gitlin L, Wisniewski S, Ory M (2003) Introduction to the special section on resources for enhancing Alzheimer’s caregiver health (REACH). Psychol Aging 18:357–360

    Article  PubMed  Google Scholar 

  • Schulz R, O’Brien A, Bookwala J, Fleissner K (1995) Psychiatric and physical morbidity effects of dementia caregiving: prevalence correlates and cause. Gerontologist 35:771–791

    Article  CAS  PubMed  Google Scholar 

  • Sinha M (2013) Portrait of Canadian caregivers. Statistics Canada. http://www.statcan.gc.ca/pub/89-652-x/89-652-x2013001-eng.pdf. Accessed 14 Jun 2016

  • Skaff M, Pearlin L (1992) Caregiving: role engulfment and the loss of self. The Gerontologist 32:656–664. doi: http://dx.doi.org/10.1093/geront/32.5

    Article  CAS  PubMed  Google Scholar 

  • Smale B, Dupuis S (2002) Highlights: preliminary results from the study on needs of caregivers of persons with Alzheimer disease or a related dementia and community support services in Ontario. Murray Alzheimer Research and Education Program/Alzheimer Society of Ontario/Caregivers’ Association of Ontario, Waterloo

    Google Scholar 

  • Sorensen S, Pinquart M, Duberstein P (2002) How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist 42:356–372

    Article  PubMed  Google Scholar 

  • Spurlock W (2005) Spiritual well-being and caregiver burden in Alzheimer’s caregivers. Geriatr Nurs 26:154–161

    Article  PubMed  Google Scholar 

  • Turcotte M (2013) Family caregiving: what are the consequences? Statistics Canada. Available via http://www.statcan.gc.ca/pub/75-006-x/2013001/article/11858-eng.pdf

  • Vitaliano P, Young H, Russo J, Romano J, Magana-Amato A (1993) Does expressed emotion in spouses predict subsequent problems among care recipients with Alzheimer’s disease? J Gerontol 48:202–209

    Article  Google Scholar 

  • Williams R, Briggs R, Coleman P (1995) Carer rated personality changes associated with senile dementia. Int J Geriatr Psychopharmacol 10:231–236

    Article  Google Scholar 

  • Witters D (2011) Caregiving costs US economy nearly $25.2 billion in lost productivity. Available via http://www.gallup.com/poll/148670/caregiving-costs-economy-billion-lost-productivity.aspx. Accessed 5 Jul 2016

  • Yesavage J, Brink T, Rose T, Lum O, Huang V, Adey M, Leirer V (1982-1983) Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res 17:37–49

    Article  PubMed  Google Scholar 

  • Zarit S, Reever K, Bach-Peterson J (1980) Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 20:1980

    Article  Google Scholar 

  • Zarit S, Todd P, Zarit J (1986) Subjective burden of husbands and wives as caregivers: a longitudinal study. The Gerontologist 26:260–266

    Article  CAS  PubMed  Google Scholar 

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Wesson, V., Chiu, M., Feldman, R., Nelles, L.J., Sadavoy, J. (2016). Dementia and Caregiving. In: Chiu, H., Shulman, K. (eds) Mental Health and Illness of the Elderly. Mental Health and Illness Worldwide. Springer, Singapore. https://doi.org/10.1007/978-981-10-0370-7_22-1

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