Encyclopedia of Big Data

Living Edition
| Editors: Laurie A. Schintler, Connie L. McNeely

Ethical and Legal Issues

  • Rochelle E. Tractenberg
Living reference work entry
DOI: https://doi.org/10.1007/978-3-319-32001-4_500-1

Definition

“Ethical and legal issues” are a subset of “ethical, legal, and social issues” – or ELSI – where the “I” sometimes also refers to “implications.” This construct was introduced in 1989 by the National Program Advisory Committee on the Human Genome in the United States, with the intention of supporting exploration, discussion, and eventually the development of policies that anticipate and address the ethical, legal, and social implications of/issues arising from the advanced and speedily advancing technology associated with genome mapping. Since this time, and with ever-increasing technological advances that have the potential to adversely affect individuals and groups (much as genome research has) – including both research and non-research work that involves big data – ELSI relating to these domains are active areas of research and policy development. Since social implications of/issues arising from big data are discussed elsewhere in this encyclopedia, this entry focuses on...

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Further Readings

  1. Collmann, J., & Matei, S. A. (Eds.). (2016). Ethical reasoning in big data: An exploratory analysis. Cham, CH: Springer International Publishing.Google Scholar
  2. Dwork, C., & Muliigan, D. K. (2013). It’s not privacy, and it’s not fair. Stanford Law Review Online, 66(35), 35–40.Google Scholar
  3. Mittelstadt, B. D., & Luciano, F. (Eds.). (2016). The ethics of biomedical big data. Cham, CH: Springer International Publishing.Google Scholar
  4. Steinmann, M., Shuster, J., Collmann, J., Matei, S., Tractenberg, R. E., FitzGerald, K., Morgan, G., & Richardson, D. (2016). Embedding privacy and ethical values in big data technology. In S. A. Matei, M. Russell, & E. Bertino (Eds.), Transparency on social media – tools, methods and algorithms for mediating online interactions (pp. 277–301). New York, NY: Springer.CrossRefGoogle Scholar

Copyright information

© Springer International Publishing AG 2017

Authors and Affiliations

  1. 1.Collaborative for Research on Outcomes and – MetricsWashingtonUSA
  2. 2.Departments of Neurology; Biostatistics, Bioinformatics & Biomathematics; and Rehabilitation MedicineGeorgetown UniversityWashingtonUSA