Skip to main content

Dignity in Palliative Care

  • Living reference work entry
  • First Online:
Textbook of Palliative Care
  • 407 Accesses

Abstract

Community demands for death with dignity developed in modern times as a result of the medicalization of death. Confusion has often surrounded the meaning of the term “dignity” at the end of life due to its association with both euthanasia and a peaceful, natural death. While it is recognized that dignity is both intrinsic and inviolable as a universal characteristic of all human beings, it is also experienced as an extrinsic characteristic which can be impacted by external factors. Modern views of dignity conserving care recognize that patient dignity is preserved when healthcare workers refrain from transgressing the patient’s standards and values, or refrain from forcing the patient to transgress his or her standards and values.

In this chapter, models of dignity in dying patients are detailed, along with empirically developed approaches to dignity conserving care. The essence of dignity conserving care is found to be socially constructed, individually perceived, culturally influenced, relational, and embodied. It is impacted by the perceptions of both the patient and the palliative care staff. The experience of dying with dignity is dependent on the dying person knowing that their loved ones, carers, and strangers perceive them to be as fully human as they are, regardless of their frailty.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Institutional subscriptions

References

  • Abiven M. Dying with dignity. World Health Forum. 1991;12:375–99.

    CAS  PubMed  Google Scholar 

  • Akechi T, Akazawa T, Komori Y, Morita T, Otani H, Shinjo T, Okuyama T, Kobayashi M. Dignity therapy: preliminary cross-cultural findings regarding implementation among Japanese advanced cancer patients. Palliat Med. 2012;26(5):768–9.

    Article  Google Scholar 

  • Albers G, Pasman HWR, Rurup ML, de Vet HC, Onwuteaka-Philipsen BD. Analysis of the construct of dignity and content validity of the patient dignity inventory. Health Qual Life Outcomes. 2011;9(1):45.

    Article  Google Scholar 

  • Allmark P. Death with dignity. J Med Ethics. 2002;28(4): 255–7.

    Article  Google Scholar 

  • Antiel RM, Curlin FA, James KM, Sulmasy DP, Tilburt JC. Dignity in end-of-life care: results of a national survey of US physicians. J Pain Symptom Manag. 2012;44(3): 331–9.

    Article  Google Scholar 

  • Best M, Aldridge L, Butow P, Olver I, Webster F. Conceptual analysis of suffering in cancer: a systematic review. Psycho-Oncology. 2015;24(9):977–86.

    Article  Google Scholar 

  • Breitbart W, Rosenfeld B, Pessin H, Kaim M, Funesti-Esch J, Galietta M, Nelson CJ, Brescia R. Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA. 2000;284(22): 2907–11.

    Article  CAS  Google Scholar 

  • Brown L, editor. The new shorter Oxford English dictionary. Oxford: Clarendon Press; 1993.

    Google Scholar 

  • Cassell EJ. The nature of suffering and the goals of medicine. N Engl J Med. 1982;306(11):639–45.

    Article  Google Scholar 

  • Chochinov HM. Dying, dignity, and new horizons in palliative end-of-life care. CA Cancer J Clin. 2006;56(2): 84–103.

    Article  Google Scholar 

  • Chochinov H. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. Br Med J. 2007;335:184–7.

    Article  Google Scholar 

  • Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Dignity in the terminally ill: a cross-sectional, cohort study. Lancet. 2002a;360(9350):2026–30.

    Article  Google Scholar 

  • Chochinov HM, Hack T, McClement S, Hassard T, Kristjanson LJ, Harlos M. Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002b;54(3):433–43.

    Article  Google Scholar 

  • Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol. 2005a;23(24):5520–5.

    Article  Google Scholar 

  • Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Understanding the will to live in patients nearing death. Psychosomatics. 2005b;46(1):7–10.

    Article  Google Scholar 

  • Chochinov HM, et al. The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care. J Pain Symptom Manag. 2008;36(6):559–71.

    Article  Google Scholar 

  • Hall S, Goddard C, Opio D, Speck P, Higginson IJ. Feasibility, acceptability and potential effectiveness of dignity therapy for older people in care homes: a phase II randomized controlled trial of a brief palliative care psychotherapy. Palliat Med. 2012;26(5):703–12.

    Article  Google Scholar 

  • Hemati Z, Ashouri E, AllahBakhshian M, Pourfarzad Z, Shirani F, Safazadeh S, Ziyaei M, Varzeshnejad M, Hashemi M, Taleghani F. Dying with dignity: a concept analysis. J Clin Nurs. 2016;25(9–10):1218–28.

    Article  Google Scholar 

  • Holstein M. Reflections on death and dying. Acad Med. 1997;72(10):848–55.

    CAS  PubMed  Google Scholar 

  • Illich I. Medical nemesis: the expropriation of health. New York: Pantheon Books; 2010.

    Google Scholar 

  • Johnson PRS. An analysis of “dignity”. Theor Med Bioeth. 1998;19(4):337–52.

    Article  CAS  Google Scholar 

  • Johnston B, Ostlund U, Brown H. Evaluation of the dignity care pathway for community nurses caring for people at the end of life. Int J Palliat Nurs. 2012;18:483–9.

    Article  Google Scholar 

  • Killmister S. Dignity: not such a useless concept. J Med Ethics. 2010;36(3):160–4.

    Article  Google Scholar 

  • Lindqvist O, Threlkeld G, Street AF, Tishelman C. Reflections on using biographical approaches in end-of-life care: dignity therapy as example. Qual Health Res. 2015;25(1):40–50.

    Article  Google Scholar 

  • Madan TN. Dying with dignity. Soc Sci Med. 1992;35(4): 425–32.

    Article  CAS  Google Scholar 

  • McClement S, Hassard T, McClement S, Hack T, Kristjanson LJ, Harlos M, Sinclair S, Murray A. The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care. J Pain Symptom Manag. 2008;36(6):559–71.

    Article  Google Scholar 

  • Östlund U, Brown H, Johnston B. Dignity conserving care at end-of-life: a narrative review. Eur J Oncol Nurs. 2012;16(4):353–67.

    Article  Google Scholar 

  • Pellegrino ED. Some things ought never be done: moral absolutes in clinical ethics. Theor Med Bioeth. 2005;26(6):469–86.

    Article  Google Scholar 

  • Proulx K, Jacelon C. Dying with dignity: the good patient versus the good death. Am J Hosp Palliat Med. 2004;21(2):116–20.

    Article  Google Scholar 

  • Pullman D. Human dignity and the ethics and aesthetics of pain and suffering. Theor Med Bioeth. 2002;23(1): 75–94.

    Article  Google Scholar 

  • Smith R, Blazeby J, Bleakley T, Clark J, Cong Y, Durie R, Finkelstein E, Gafer N, Gugliani S, Horton R, Johnson M, Kitzinger C, Kitzinger J, Knaul F, Kraus A, Neuberger J, O’Connell M, O’Mahony S, Rajagopal MR, Sase E, Solomon S, Smith R, Taylor R, Wyatt K. Lancet commission on the value of death. Lancet. 2018;392(10155):1291–3.

    Article  Google Scholar 

  • Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med. 2000;132:825–32.

    Article  CAS  Google Scholar 

  • Street AF, Kissane DW. Constructions of dignity in end-of-life care. J Palliat Care. 2001;17(2):93.

    CAS  PubMed  Google Scholar 

  • Sulmasy DP. A biopsychosocial–spiritual model for the care of patients at the end of life. Gerontologist. 2002;42(Suppl 3):24–33.

    Article  Google Scholar 

  • UN General Assembly. Universal declaration of human rights. Paris: UN General Assembly; 1948.

    Google Scholar 

  • van Gennip IE, Pasman HRW, Oosterveld-Vlug MG, Willems DL, Onwuteaka-Philipsen BD. Dynamics in the sense of dignity over the course of illness: a longitudinal study into the perspectives of seriously ill patients. Int J Nurs Stud. 2015;52(11):1694–704.

    Article  Google Scholar 

  • Wilson KG, Curran D, McPherson CJ. A burden to others: a common source of distress for the terminally ill. Cogn Behav Ther. 2005;34(2):115–23.

    Article  Google Scholar 

  • World Health Organization. WHO definition of palliative care. http://www.who.int/cancer/palliative/definition/en/. 2002. Accessed 20 Apr 2018.

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Megan Best .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2019 Springer Nature Switzerland AG

About this entry

Check for updates. Verify currency and authenticity via CrossMark

Cite this entry

Best, M. (2019). Dignity in Palliative Care. In: MacLeod, R., Van den Block, L. (eds) Textbook of Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-319-31738-0_29-1

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-31738-0_29-1

  • Received:

  • Accepted:

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-31738-0

  • Online ISBN: 978-3-319-31738-0

  • eBook Packages: Springer Reference Biomedicine and Life SciencesReference Module Biomedical and Life Sciences

Publish with us

Policies and ethics