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Palliative Care in Dementia

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Textbook of Palliative Care

Abstract

An optimal approach to palliative care for people with dementia has been defined by the European Association for Palliative Care with 11 domains including applicability of palliative care; person-centered care, communication, and shared decision-making; and setting care goals and advance care planning. Not all people with dementia will require specialist palliative care, and all involved in dementia care should be able to provide palliative care focusing on care and treatment which aims to increase the comfort and quality of life of the individual and supporting their family. There are many complications and symptoms which may arise for someone with dementia including increased infections, shortness of breath, swallowing difficulties, and pain which the individual may not be able to clearly express. These complications can lead to difficult decisions which need to be made by not only practitioners but also family caregivers as proxy. There should be a shared decision-making approach to these complications and symptoms, with advance care planning performed where possible. Caring for someone with dementia is one of the most difficult caring roles; support for family caregivers as part of a palliative approach is essential. Each person with dementia is different, and needs should be assessed on an individual basis, adopting a person-centered approach to care.

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Authors and Affiliations

  1. Centre for Ageing Population Studies, Research Department of Primary Care and Population Health, University College London, London, UK

    Nathan Davies

  2. Healthcare Organisation Marente, Voorhout, The Netherlands

    Maartje S. Klapwijk

  3. Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands

    Maartje S. Klapwijk & Jenny T. van der Steen

  4. Radboud university medical center, Department of Primary and Community Care, Nijmegen, The Netherlands

    Jenny T. van der Steen

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  1. Nathan Davies
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  2. Maartje S. Klapwijk
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  1. HammondCare Learning and Research Centre, Greenwich Hospital, Greenwich, New South Wales, Australia

    Roderick Duncan MacLeod

  2. Vrije Universiteit Brussel, VUB-UGent End-of-Life Care Research Grou Vrije Universiteit Brussel, Brussels, Belgium

    Lieve Van den Block

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Davies, N., Klapwijk, M.S., van der Steen, J.T. (2018). Palliative Care in Dementia. In: MacLeod, R., Van den Block, L. (eds) Textbook of Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-319-31738-0_113-1

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