Abstract
This chapter outlines the connections between dementia, social disadvantage, and social exclusion. It draws on original research to discuss the conceptual and practical implications of applying a social inclusion lens to the issue of dementia. The authors argue that social inclusion-exclusion is an active process arising from the social experience of dementia, although it also interacts with demographic characteristics, and that the effects of dementia need to be understood as an interpersonal and interactive process. As exclusion itself is a compromised position, it raises the question of inclusion into what sort of society. It nevertheless has face validity with many of the carers and people living with dementia in the studies covered here.
Drawing on a selection of research, alongside the policy and practice implications, it addresses both the benefits and challenges of conducting research with people living with dementia as well as their families, friends, supporters, and carers. It shows ways to counter social exclusion and promote the continued participation of people with dementia in daily life, decision-making, and a political voice.
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Carr, A., Biggs, S., Haapala, I. (2021). Dementia and Social Inclusion-Exclusion. In: Liamputtong, P. (eds) Handbook of Social Inclusion. Springer, Cham. https://doi.org/10.1007/978-3-030-48277-0_37-1
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DOI: https://doi.org/10.1007/978-3-030-48277-0_37-1
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