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The Ethics of Research and Indigenous Peoples

Closing Borders and Opening Doors

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Handbook of Research Ethics and Scientific Integrity

Abstract

For several centuries, Indigenous peoples around the world have been “subjects” of research by western academics who considered themselves to be authoritative and objective scientists. Therefore, research became a “dirty word” for many Indigenous peoples, seemingly more focused on our deficits and reinforcing negative stereotypes. From the late 1970s, however, Indigenous and other marginalized groups began protesting their lack of rights with regard to research, and closed borders against non-Indigenous researchers, to the strident objection of many. In New Zealand, notions of ethical research arose with the Cartwright Inquiry (1987–1988), development of institutional ethics committees, with the requirement of having Māori members on health-related ethics committees. Today the legitimacy of Indigenous research and Indigenous research methodologies is recognized in many countries, although challenges remain. Indigenous researchers claim the right to develop and enact research ethics based on the premises and cultural mores from within which they research. This chapter will explore an Indigenous research project, associated ethical challenges, and their amelioration, through the utilization of Indigenous cultural knowledges.

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References

  • Anzaldua G (1990) Introduction. In: Anzaldua G (ed) Making face, making soul – Haciendo caras: creative and critical perspectives by women of color. Aunt Lute Foundation Books, San Francisco

    Google Scholar 

  • Ballara A (1998) The dynamics of Māori tribal organisation from c.1769–1869. Victoria University Press, Wellington

    Google Scholar 

  • Bastien B, Kremer JW, Kuokkanen R, Vickers P (2003) Healing the impact of colonization, genocide, missionization, and racism on Indigenous populations. In: Krippner S, McIntyre T (eds) The psychological impact of war trauma on civilians. Greenwood Press, New York. Retrieved from https://library.wisn.org/wp-content/uploads/2016/02/130111-Healing-the-Impact.pdf

  • Bodley JH (2014) Victims of progress, 6th edn. Rowman & Littlefield Publishers, Maryland

    Google Scholar 

  • Borofsky R (1994) Assessing cultural anthropology. McGraw-Hill, New York

    Google Scholar 

  • Brandt AM (1978) Racism and research: the case of the Tuskegee Syphilis study. The Hastings Center Report 8(6):21–29. Retrieved from https://dash.harvard.edu/bitstream/handle/1/3372911/Brandt_Racism.pdf

  • Brave Heart M (2005) Keynote address: from intergenerational trauma to intergenerational healing. Wellbriety – White Bison’s Online Magazine 6(6):2–8

    Google Scholar 

  • Castellano MB, Archibald L (2013) Healing historic trauma: a report from the Aboriginal Healing Foundation. In: White JP, Wingert S, Beavon D (eds) Volume 4: moving forward, making a difference. Aboriginal policy research series. Thompson Educational Publishing, Inc, Canada

    Google Scholar 

  • Coney S, Bunkle P (1987) An unfortunate experiment at National Women’s. Metro. Retrieved from https://www.metromag.co.nz/society/society-etc/an-unfortunate-experiment-at-national-womens

  • Coronial Services of New Zealand (2015) Annual suicide statistics – Media Release. Retrieved from http://www.justice.govt.nz/courts/coroners-court/suicide-in-new-zealand/suicide-statistics-1/2014-2015-annual-suicide-stats-media-release

  • Deloria V (1969) Custer died for your sins: an Indian manifesto. University of Oklahoma Press, Oklahoma, USA

    Google Scholar 

  • Deloria V (1988) Custer died for your sins: an Indian manifesto. University of Oklahoma Press, Oklahoma

    Google Scholar 

  • Durie M (1998) Te mana te kawanatanga: the politics of Māori self-determination. Oxford University Press, Auckland

    Google Scholar 

  • Durie M (2009) Pae ora: Māori health horizons. Te Mata o Te Tau lecture series 2009: the Paerangi Lectures – Māori horizons 2020 and beyond. Te Mata o Te Tau, Massey University, Albany

    Google Scholar 

  • Evans-Campbell T (2008) Historical trauma in American Indian/native Alaska communities: a multilevel framework for exploring impacts on individuals, families, and communities. J Interpers Violence 23(3):316–338

    Article  Google Scholar 

  • Faimon MB (2004) Ties that bind: remembering, mourning, and healing historical trauma. Am Indian Q 28(1/2):238–251. Special issue: empowerment through literature

    Article  Google Scholar 

  • Fast E, Collin-Vezina D (2010) Historical trauma, race-based trauma and resilience of indigenous peoples: a literature review. First Peoples Child Fam Rev 5(1):126–136

    Google Scholar 

  • George L (2010a) Articulating the intellectual tūrangawaewae of an Indigenous anthropologist. In: Proceedings of Māori Association of Social Scientists Conference, 2008. Māori Association of Social Scientists, Wellington

    Google Scholar 

  • George L (2010b) Tradition, invention and innovation: Multiple reflections of an urban marae. Unpublished doctoral thesis. School of Social & Cultural Studies, Massey University, Auckland

    Google Scholar 

  • George L, Dowsett G, Lawson-Te Aho K, Milne M, Pirihi W, Flower L, Ngawaka R (2017) Final Report for project He Ara Toiora: Suicide prevention for Ngātiwai youth through the arts (LGB-2016–28888). Ngātiwai Trust Board, Whangarei. Available at http://www.communityresearch.org.nz/wp-content/uploads/formidable/LCSRF-Final-Report-He-ara-toiora-Ngatiwai-Trust-Board-George-et-al.pdf

  • Hudson M, Milne M, Reynolds P, Russell K, Smith B (2010) Te Ara Tika guidelines for Māori research ethics: a framework for researchers and ethics committee members. HRCNZ, Auckland

    Google Scholar 

  • Jackson M (2013) Ten ethics of Kaupapa Māori research. Presentation to He Manawa Whenua conference. Kotahi Research Institute & University of Waikato, Hamilton

    Google Scholar 

  • Kuper A (2014) Anthropology and anthropologists: the modern British school, 3rd edn. Routledge, London

    Book  Google Scholar 

  • Lawson-Te Aho K (2015) The healing is in the pain: revisiting and re-narrating trauma histories as a starting point for healing. Psychol Dev Soc 26(2):181–212

    Google Scholar 

  • Longbottom S (2016) Love lives here: realising rangatahi potential. Ngā Rangatahi Toa, Auckland. Retrieved from http://www.ngarangatahitoa.co.nz/realising-rangatahi-potential/

  • Lowe S, George L, Deger J (forthcoming) A deeper deep listening: doing pre-ethics fieldwork in Aotearoa New Zealand. In: George L, Tauri J, MacDonald LTAT (eds) Indigenous research ethics: claiming research sovereignty. Emerald Publishing, Bingley

    Google Scholar 

  • Macrae DJ (2007) The Council for International Organizations and Medical Sciences (CIOMS) guidelines on ethics of clinical trials. Proc Am Thorac Soc 4:176–179. https://doi.org/10.1513/pats.200701-011GC

    Article  Google Scholar 

  • Malinowski B (1922) Argonauts of the Western Pacific: an account of native enterprise and adventure in the archipalegoes of Melanesian New Guinea. Routledge and Keagan Paul, London

    Google Scholar 

  • Martin-Hill D, Soucy D (2006) Ethical guidelines for aboriginal research elders and healers roundtable: a report by the indigenous health research development program to the interagency advisory panel on research ethics. Six Nations Polytechnic/Indigenous Studies Programme/McMaster University, Ontario

    Google Scholar 

  • Maybury-Lewis D (1992) Millennium: tribal wisdom and the modern world. Viking, New York

    Google Scholar 

  • Mihesuah D (ed) (1998) Natives and academics: researching and writing about American Indians. University of Nebraska Press, Lincoln

    Google Scholar 

  • Miller S (2014) The role of eugenics in research misconduct. Mo Med 111(5):386–390

    Google Scholar 

  • Narayan K (1998) How ‘native’ is a native anthropologist? In: Thapan M (ed) Anthropological journeys. Sangram Books Ltd., London, pp 163–187

    Google Scholar 

  • Newstalk ZB, the New Zealand Herald (2019) NZ has highest death rate for teenagers in developed world. Retrieved from https://www.newstalkzb.co.nz/on-air/kerre-mcivor-mornings/audio/nathan-wallis-new-zealand-ranks-bottom-of-developed-countries-on-youth-mortality-rates/

  • Penney L, Dobbs T (2014) Promoting whānau and youth resilience in Te Tai Tokerau: evaluation of the Northland District Health Board Suicide Prevention Project 2013. Kiwikiwi Research and Evaluation Services, Kerikeri

    Google Scholar 

  • Radio New Zealand (2019) Number of suicides reaches 10-year peak, new data reveals. Retrieved from https://www.rnz.co.nz/news/national/394061/number-of-suicides-reaches-10-year-peak-new-data-reveals

  • Rodriguez M, Garcia R (2013) First, do no harm: the US sexually transmitted disease experiments in Guatemala. Am J Public Health 103(12):2122–2126. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3828982/

    Article  Google Scholar 

  • Schoder EM (2010) Paulo Friere’s pedagogy of love. Unpublished doctor of education thesis, Rutger State University of New Jersey, New Jersey

    Google Scholar 

  • Seidelman WE (1988) Mengele Medicus: Medicine’s Nazi heritage. Milbank Q 66(2):221–239. Retrieved from https://www.milbank.org/wp-content/uploads/mq/volume-66/issue-02/66-2-Mengele-Medicus.pdf

    Article  Google Scholar 

  • Sherwood J, Anthony T (forthcoming) Ethical conduct in indigenous research: it’s just good manners. In: George L, Tauri J, MacDonald LTAT (eds) Indigenous research ethics: claiming research sovereignty. Emerald Publishing, Bingley

    Google Scholar 

  • Shuster E (1997) Fifty years later: the significance of the Nuremberg code. N Engl J Med 337:1436–1440. https://doi.org/10.1056/NEJM199711133372006

    Article  Google Scholar 

  • Simmons DR (1976) The great New Zealand myth: a study of the discovery and origin traditions of the Māori. A.H. and A.W. Reed, Wellington

    Google Scholar 

  • Smith LT (1999) Decolonising methodologies: research and indigenous peoples. University of Otago Press/Zed Books, Dunedin/London

    Google Scholar 

  • Smith LT (2012) Decolonising methodologies: research and indigenous peoples, 2nd edn. University of Otago Press/Zed Books, Dunedin/London

    Google Scholar 

  • Smith B, Hudson M (2012) Ethics. Presentation to Hui Whakapiripiri. Health Research Council of New Zealand, Auckland

    Google Scholar 

  • Sotero M (2006) A conceptual model of historical trauma: implications for public health practice and research. J Health Dispar Res Pract 1(1):93–108

    Google Scholar 

  • South African San Institute (2017) San code of research ethics. SASI, Kimberley. Available from http://www.globalcodeofconduct.org/affiliated-codes/

    Google Scholar 

  • Tomoana N, Whittred G, Graham B, Packer D, Stuart G, Rangi G, Tupuhi G, McCabe J, Solomon M (2012) He kai kei aku ringa: the Crown-Māori economic growth partnership – strategy to 2040. Māori Economic Development Panel, Ministry of Business, Innovation & Employment, Wellington

    Google Scholar 

  • Tuck E (2013) Commentary: decolonizing methodologies – 15 years later. AlterNative 9(4):365–372

    Article  Google Scholar 

  • Walker R (1987) Ngā tau tohetohe: years of anger. Penguin Books, Auckland

    Google Scholar 

  • Wallerstein N, Duran B (2010) Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity. Am J Public Health. Online version. e1–e6. https://doi.org/10.2105/AJPH.2009.184036

  • Walters K (2007) Indigenous perspectives in survey research: conceptualising and measuring historical trauma, microaggressions, and colonial trauma response. In: Te Rito JS (ed) Proceedings of the Mātauranga Taketake: traditional knowledge conference – indigenous indicators of well-being: perspectives, practices, solutions. University of Auckland, Auckland, pp 27–44

    Google Scholar 

  • Walters K, Simoni J (2002) Reconceptualising native women’s health: an “Indigenist” stress-coping model. Am J Public Health 92(4):520–523

    Article  Google Scholar 

  • Watkins J (2006) Obituary: he forced us into the fray: Vine Deloria, Jr. (1933–2005). Antiquity 80:506–507

    Article  Google Scholar 

  • Weber-Pillwax C (2001) What is indigenous research? Can J Nativ Educ 25(2):166–174

    Google Scholar 

  • Webster S (1998) Māori hapū as a whole way of struggle. Oceania 69:4–35

    Google Scholar 

  • Woodthorpe K (2007) My life after death: connecting the field, the findings and the feelings. Anthropol Matters 9(1). Retrieved from https://www.anthropologymatters.com/index.php/anth_matters/article/view/54/102

  • Zuber-Skerrit O (2001) Chapter one: action learning and action research: paradigm, praxis and programs. In: Sankara S, Dick B, Passfield R (eds) Effective change management through action research and action learning: concepts, perspectives, processes and applications. Southern Cross University Press, Lismore, pp 1–20

    Google Scholar 

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George, L. (2020). The Ethics of Research and Indigenous Peoples. In: Iphofen, R. (eds) Handbook of Research Ethics and Scientific Integrity. Springer, Cham. https://doi.org/10.1007/978-3-030-16759-2_31

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