AHIMA e-HIM Personal Health Record Work Group. The role of the personal health record in the EHR. J AHIMA. 2005;76(7):64A–D.
Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc. 2011;18(4):515–22. https://doi.org/10.1136/amiajnl-2011-000105. Review.
Beard L, Schein R, Morra D, Wilson K, Keelan J. The challenges in making electronic health records accessible to patients. J Am Med Inform Assoc. 2012;19(1):116–20.
Bourgeois FC, Taylor PL, Emans SJ, Nigrin DJ, Mandl KD. Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc. 2008a;15(6):737–43.
Bourgeois FC, Taylor PL, Emans SJ, Nigrin DJ, Mandl KD. Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc. 2008b;15(6):737–43. https://doi.org/10.1197/jamia.M2865. Epub 2008 Aug 28.
Brennan PF, Downs S, Casper G. Project HealthDesign: rethinking the power and potential of personal health records. J Biomed Inform. 2010;43 Suppl 5:S3–5. https://doi.org/10.1016/j.jbi.2010.09.001.
Britto MT, Wimberg J. Pediatric personal health records: current trends and key challenges. Pediatrics. 2009;123 Suppl 2:S97–9. https://doi.org/10.1542/peds.2008-1755I.
Collins SA, Vawdrey DK, Kukafka R, Kuperman GJ. Policies for patient access to clinical data via PHRs: current state and recommendations. J Am Med Inform Assoc. 2011;18 Suppl 1:i2–7. https://doi.org/10.1136/amiajnl-2011-000400. Epub 2011 Sep 7.
Council on Clinical Information Technology. Policy Statement–Using personal health records to improve the quality of health care for children. Pediatrics. 2009;124(1):403–9. https://doi.org/10.1542/peds.2009-1005.
Forsyth R, Maddock CA, Iedema RA, Lassere M. Patient perceptions of carrying their own health information: approaches towards responsibility and playing an active role in their own health – implications for a patient-held health file. Health Expect. 2010;13(4):416–26. https://doi.org/10.1111/j.1369-7625.2010.00593.x.
Goel MS, Brown TL, Williams A, Cooper AJ, Hasnain-Wynia R, Baker DW. Patient reported barriers to enrolling in a patient portal. J Am Med Inform Assoc. 2011;18 Suppl 1:i8–12. https://doi.org/10.1136/amiajnl-2011-000473. Epub 2011 Nov 9.
Haggstrom DA, Saleem JJ, Russ AL, Jones J, Russell SA, Chumbler NR. Lessons learned from usability testing of the VA’s personal health record. J Am Med Inform Assoc. 2011;18 Suppl 1:i13–7. https://doi.org/10.1136/amiajnl-2010-000082. Epub 2011 Oct 8.
Kaelber J. A research agenda for personal health records. Am Med Inform Assoc. 2008;15:729–36.
Kim EH, Stolyar A, Lober WB, Herbaugh AL, Shinstrom SE, Zierler BK, Soh CB, Kim Y. Challenges to using an electronic personal health record by a low-income elderly population. J Med Internet Res. 2009;11(4), e44. https://doi.org/10.2196/jmir.1256.
Poulton M. Patient confidentiality in sexual health services and electronic patient records. Sex Transm Infect. 2013;89(2):90. https://doi.org/10.1136/sextrans-2013-051014.
Rudd P, Frei T. How personal is the personal health record?: comment on “the digital divide in adoption and use of a personal health record”. Arch Intern Med. 2011;171(6):575–6. https://doi.org/10.1001/archinternmed.2011.35. No abstract available.
Saparova D. Motivating, influencing, and persuading patients through personal health records: a scoping review. Perspect Health Inf Manag. 2012;9:1f. Epub 2012 Apr 1.
Sittig DF, Singh H. Rights and responsibilities of users of electronic health records. CMAJ. 2012;184(13):1479–83.
Sittig DF, Singh H, Longhurst CA. Rights and responsibilities of electronic health records (EHR) users caring for children. Arch Argent Pediatr. 2013;111(6):468–71.
Wynia M, Dunn K. Dreams and nightmares: practical and ethical issues for patients and physicians using personal health records. J Law Med Ethics. 2010;38(1):64–73. https://doi.org/10.1111/j.1748-720X.2010.00467.x.
Yamin CK, Emani S, Williams DH, Lipsitz SR, Karson AS, Wald JS, Bates DW. The digital divide in adoption and use of a personal health record. Arch Intern Med. 2011;171(6):568–74. https://doi.org/10.1001/archinternmed.2011.34.