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Health Services Information: Personal Health Records as a Tool for Engaging Patients and Families

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Data and Measures in Health Services Research

Part of the book series: Health Services Research ((HEALTHSR))

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Abstract

Personal Health Records have evolved from stand alone websites requiring manual entry of data to automated mobile applications fully integrated into care management workflow. Technology issues such as interoperability, security, and patient identification have matured. Policies such as who can see what for what purpose have been enumerated. Regulations now require a deeper level of interaction between care teams and patients. Many myths about the risks of engaging patients and families have been shattered. Research continues to expand the scope of information shared with families, enhance usability of patient facing applications, and improving the utility of solutions automating patient/provider workflow.

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References

  • AHIMA e-HIM Personal Health Record Work Group. The role of the personal health record in the EHR. J AHIMA. 2005;76(7):64A–D.

    Google Scholar 

  • Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc. 2011;18(4):515–22. doi:10.1136/amiajnl-2011-000105. Review.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Beard L, Schein R, Morra D, Wilson K, Keelan J. The challenges in making electronic health records accessible to patients. J Am Med Inform Assoc. 2012;19(1):116–20.

    Article  PubMed  Google Scholar 

  • Bourgeois FC, Taylor PL, Emans SJ, Nigrin DJ, Mandl KD. Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc. 2008a;15(6):737–43.

    Article  PubMed  PubMed Central  Google Scholar 

  • Bourgeois FC, Taylor PL, Emans SJ, Nigrin DJ, Mandl KD. Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc. 2008b;15(6):737–43. doi:10.1197/jamia.M2865. Epub 2008 Aug 28.

    Article  PubMed  PubMed Central  Google Scholar 

  • Brennan PF, Downs S, Casper G. Project HealthDesign: rethinking the power and potential of personal health records. J Biomed Inform. 2010;43 Suppl 5:S3–5. doi:10.1016/j.jbi.2010.09.001.

    Article  PubMed  Google Scholar 

  • Britto MT, Wimberg J. Pediatric personal health records: current trends and key challenges. Pediatrics. 2009;123 Suppl 2:S97–9. doi:10.1542/peds.2008-1755I.

    Article  PubMed  Google Scholar 

  • Collins SA, Vawdrey DK, Kukafka R, Kuperman GJ. Policies for patient access to clinical data via PHRs: current state and recommendations. J Am Med Inform Assoc. 2011;18 Suppl 1:i2–7. doi:10.1136/amiajnl-2011-000400. Epub 2011 Sep 7.

    Article  PubMed  PubMed Central  Google Scholar 

  • Council on Clinical Information Technology. Policy Statement–Using personal health records to improve the quality of health care for children. Pediatrics. 2009;124(1):403–9. doi:10.1542/peds.2009-1005.

    Article  Google Scholar 

  • Forsyth R, Maddock CA, Iedema RA, Lassere M. Patient perceptions of carrying their own health information: approaches towards responsibility and playing an active role in their own health – implications for a patient-held health file. Health Expect. 2010;13(4):416–26. doi:10.1111/j.1369-7625.2010.00593.x.

    Article  PubMed  Google Scholar 

  • Goel MS, Brown TL, Williams A, Cooper AJ, Hasnain-Wynia R, Baker DW. Patient reported barriers to enrolling in a patient portal. J Am Med Inform Assoc. 2011;18 Suppl 1:i8–12. doi:10.1136/amiajnl-2011-000473. Epub 2011 Nov 9.

    Article  PubMed  PubMed Central  Google Scholar 

  • Haggstrom DA, Saleem JJ, Russ AL, Jones J, Russell SA, Chumbler NR. Lessons learned from usability testing of the VA’s personal health record. J Am Med Inform Assoc. 2011;18 Suppl 1:i13–7. doi:10.1136/amiajnl-2010-000082. Epub 2011 Oct 8.

    Article  PubMed  PubMed Central  Google Scholar 

  • Kaelber J. A research agenda for personal health records. Am Med Inform Assoc. 2008;15:729–36.

    Article  Google Scholar 

  • Kim EH, Stolyar A, Lober WB, Herbaugh AL, Shinstrom SE, Zierler BK, Soh CB, Kim Y. Challenges to using an electronic personal health record by a low-income elderly population. J Med Internet Res. 2009;11(4), e44. doi:10.2196/jmir.1256.

    Article  PubMed  PubMed Central  Google Scholar 

  • Poulton M. Patient confidentiality in sexual health services and electronic patient records. Sex Transm Infect. 2013;89(2):90. doi:10.1136/sextrans-2013-051014.

    Article  PubMed  Google Scholar 

  • Rudd P, Frei T. How personal is the personal health record?: comment on “the digital divide in adoption and use of a personal health record”. Arch Intern Med. 2011;171(6):575–6. doi:10.1001/archinternmed.2011.35. No abstract available.

    Article  PubMed  Google Scholar 

  • Saparova D. Motivating, influencing, and persuading patients through personal health records: a scoping review. Perspect Health Inf Manag. 2012;9:1f. Epub 2012 Apr 1.

    PubMed  PubMed Central  Google Scholar 

  • Sittig DF, Singh H. Rights and responsibilities of users of electronic health records. CMAJ. 2012;184(13):1479–83.

    Article  PubMed  PubMed Central  Google Scholar 

  • Sittig DF, Singh H, Longhurst CA. Rights and responsibilities of electronic health records (EHR) users caring for children. Arch Argent Pediatr. 2013;111(6):468–71.

    PubMed  Google Scholar 

  • Wynia M, Dunn K. Dreams and nightmares: practical and ethical issues for patients and physicians using personal health records. J Law Med Ethics. 2010;38(1):64–73. doi:10.1111/j.1748-720X.2010.00467.x.

    Article  PubMed  Google Scholar 

  • Yamin CK, Emani S, Williams DH, Lipsitz SR, Karson AS, Wald JS, Bates DW. The digital divide in adoption and use of a personal health record. Arch Intern Med. 2011;171(6):568–74. doi:10.1001/archinternmed.2011.34.

    Article  PubMed  Google Scholar 

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Correspondence to John Halamka .

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Halamka, J. (2015). Health Services Information: Personal Health Records as a Tool for Engaging Patients and Families. In: Sobolev, B., Levy, A., Goring, S. (eds) Data and Measures in Health Services Research. Health Services Research. Springer, Boston, MA. https://doi.org/10.1007/978-1-4899-7673-4_13-1

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  • DOI: https://doi.org/10.1007/978-1-4899-7673-4_13-1

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  • Online ISBN: 978-1-4899-7673-4

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