Description
The Autism Family Experience Questionnaire (AFEQ) is a measure developed to reflect the intervention priorities of parents of children with autism spectrum disorder (ASD), and to assess the impact of interventions on family experience and quality for life (The PACT Consortium et al. 2018).
The AFEQ consists of 48 items in the domains: (1) experience of being a parent of a child with autism; (2) family life, (3) child development (development, understanding, and social relationships); and (4) child symptoms (feelings and behavior) (The PACT Consortium et al. 2018). All items are scored on an order scale: 1 = always to 5 = never, with an option for “Not Applicable.”
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References and Reading
Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with autism: Raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health, 12(2), 80–86. https://doi.org/10.1111/j.1475-3588.2006.00432.x.
Sigafoos, J., & Waddington, H. (2016). 6 year follow-up supports early autism intervention. The Lancet, 388(10059), 2454–2455. https://doi.org/10.1016/S0140-6736(16)31656-7.
The PACT Consortium, Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., … Green, J. (2018). The Autism Family Experience Questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention. Journal of Autism and Developmental Disorders, 48(4), 1052–1062. https://doi.org/10.1007/s10803-017-3350-7
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Larsen, K. (2020). The Autism Family Experience Questionnaire (AFEQ). In: Volkmar, F. (eds) Encyclopedia of Autism Spectrum Disorders. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-6435-8_102421-1
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DOI: https://doi.org/10.1007/978-1-4614-6435-8_102421-1
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