Encyclopedia of Creativity, Invention, Innovation and Entrepreneurship

2013 Edition
| Editors: Elias G. Carayannis

Citizen Science in Health Domain

  • Barbara PrainsackEmail author
Reference work entry
DOI: https://doi.org/10.1007/978-1-4614-3858-8_257


What Is Citizen Science?

Democraticization and Openness

In recent years, we have been witnessing increasing evidence that the separation between roles traditionally associated with knowledge production, on the one hand, and roles associated with utilizing and “consuming” knowledge, on the other, have become blurry (see Gibbons et al. 1994; Nowotny et al. 2001). While this is true in many fields of science (Goodchild 2007; Fischer et al. 2012; Nielsen 2011), the health domain is a particularly illustrative example. Patients have started to organize their own medical studies and trials (Wicks et al. 2011); questions that professional scientists have been struggling for years, or even decades, are solved by people playing computer games (e.g., Khatib et al. 2011), and patients facing difficult treatment decisions put their medical information online to invite experts from all over the world to comment (e.g., Albanello 2011). The notion of “crowdsourcing” has been...

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The author would like to thank David Campbell, Jason Hughes, John Roberts, Hendrik Wagenaar, and the participants of the European Science Foundation (ESF) meeting on personalized medicine in Dubrovnik on 13–14 February 2012 for constructive comments and helpful discussions that informed this entry.


  1. Albanello L. Lorenzo’s brain. 2011. http://lorenzosbrain.blogspot.com/. Accessed 26 Dec 2011.
  2. Angrist M. Here is a human being: at the dawn of personal genomics. New York: Harper Collins Publishers; 2010.Google Scholar
  3. Arvidsson A. The ethical economy of customer coproduction. J Macromark. 2008;28(4):326–38.Google Scholar
  4. Auletta K. Googled. The end of the world as we know it. London: Virgin Books; 2009.Google Scholar
  5. Bonney R, Cooper CB, Dickinson J, Kelling S, Phillips T, Rosenberg KV, et al. Citizen science: a developing tool for expanding science knowledge and scientific literacy. Bioscience. 2009;59(11):977–84.Google Scholar
  6. Bonsu SK, Darmody A. Co-creating second life: market-Consumer cooperation in contemporary economy. J Macromark. 2008;28(4):355–68.Google Scholar
  7. Cohn JP. Citizen science: can volunteers do real research? Bioscience. 2008;58(3):192–7.Google Scholar
  8. Delfanti A. Open science, a complex movement. J Sci Commun. 2010;9(3):1–2.Google Scholar
  9. Fischer DA, Schwamb ME, Schawinski K, Lintott C, Brewer J, Giguere M, et al. Planet hunters: the first two planet candidates identified by the public using the kepler public archive data. Mon Not R Astron Soc. 2012;419:2900–11.Google Scholar
  10. Gezelter D. What, exactly, is open science? 2009. http://www.openscience.org/blog/?p=269. Accessed 26 Dec 2011.
  11. Gibbons M, Limoges C, Nowotny H. The new production of knowledge. London: Sage; 1994.Google Scholar
  12. Goodchild MF. Citizens as sensors: the world of volunteered geography. GeoJ. 2007;69(4):211–21.Google Scholar
  13. Khatib F, DiMaio F, Foldit Contenders Group, et al. Crystal structure of a monomeric retroviral protease solved by protein folding game players. Nat Struct Mol Biol. 2011;18:1175–7.Google Scholar
  14. Nielsen M. Reinventing discovery: the new era of networked science. Princeton: Princeton University Press; 2011.Google Scholar
  15. Nowotny H, Scott P, Gibbons M. Re-thinking science: knowledge and the public in an age of uncertainty. Cambridge, UK: Polity Press; 2001.Google Scholar
  16. Prainsack B. Book review of Elias G. Carayannis and David F. J. Campbell: Mode 3 knowledge production in quadruple helix innovation systems: twenty-first century democracy, innovation, and entrepreneurship for development. New York: Springer, Minerva; In press 2012.Google Scholar
  17. Robinson L, Halle D. Digitization, the Internet, and the Arts: eBay, Napster, SAG, and e-Books. Qual Sociol. 2002;25(3):359–83.Google Scholar
  18. Shirky C. Here comes everybody: the power of organizing without organizations. New York: Penguin; 2008.Google Scholar
  19. Surowiecki J. The wisdom of crowds. New York: Anchor Books; 2005.Google Scholar
  20. Swan M, Hathaway K, Hogg C, McCauley R, Vollrath A. Citizen Science Genomics as a Model for Crowdsourced Preventive Medicine Research. J Particip Med. 2010;2:e20.Google Scholar
  21. Toffler A. Previews and premises. New York: William Morrow; 1983.Google Scholar
  22. von Hippel E. Democratizing innovation. Cambridge, MA: MIT Press; 2005.Google Scholar
  23. Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol. 2011;29:411–4.Google Scholar
  24. Wiggins GN, Stevenson RD, Crowston K. Mechanisms for data quality and validation in citizen science. IEEE Seventh International Conference on eScience Workshops; Stockholm; 2011. http://citsci.syr.edu/sites/citsci.syr.edu/files/sites/voss.syr.edu/files/Wiggins2011eScience.pdf. Accessed 17 Feb 2012.
  25. Ziman J. ‘Postacademic science’: constructing knowledge with networks and norms. Sci Stud. 1996;9:67–80.Google Scholar

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© Springer Science+Business Media LLC 2013

Authors and Affiliations

  1. 1.Department of Sociology and CommunicationsBrunel University School of Social SciencesUxbridge, MiddlesexUK