Abstract:
Fibromyalgia (FM) is a chronic, widespread and painful disorder of affecting approximately 2–3% of the general population, with an approximately 90% female preponderance. Health-related quality of life (HRQoL) outcome assessment is crucial in patients with FM because of their multiple symptoms, which include chronic pain, fatigue, weakness, hyperalgesia, secondary depression and allodynia. These can produce substantial work disability and disruptions in quality of life, with impaired social and family functioning. The diverse symptomatology of patients with FM may be assessed holistically using HRQoL questionnaires. These questionnaires can be classified into generic measures and disease-specific measures. SF-36 and EQ-5D represent the generic tools most commonly used in FM studies, but other questionnaires include the Sickness Impact Profile (SIP), Nottingham Health Profile (NHP), Health Utilities Index (HUI) and Quality of Well Being Index (QWB). The fibromyalgia-specific instruments most commonly used are the Fibromyalgia Impact Questionnaire (FIQ) and FibroFatigue Scale (FFS). To date, few cost-utility analyses exist. Examples include EQ-5D and SF-6D. Using these questionnaires it has been shown that patients with FM perform worse than other chronic pain patients, such as those with rheumatoid arthritis and chronic back pain, specifically when vitality, bodily pain, mental health, social functioning, mobility, usual activities, pain/discomfort and anxiety/depression scores were analyzed. The impact of illness, adjusted for co-morbidities, increased in younger adults but the symptomatology decreased with age.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Abbreviations
- ACR:
-
American College of Rheumatology
- AIMS:
- CFS:
- EQ-5D:
-
Euroqol five item Questionnaire
- EQ-5D VAS:
-
The EQ-5D Visual Analogue Scale
- FFS:
- FIQ:
- FM:
-
Fibromyalgia
- HAQ:
- NHP:
-
Nottingham Health Profile
- QALYs:
-
quality-adjusted life-years
- QWB:
-
quality of well being index
- HRQoL:
-
health-related quality of life
- HUI:
-
the health utilities index
- 15-D:
-
the health state descriptive system questionnaire
- SF-36:
-
Short Form Health Survey questionnaire with 36 questions
- SF-6D:
-
6-item Short Form Health Survey Questionnaire
- SIP:
-
sickness impact profile
References
Arnold LM, Lu Y, Crofford LJ, Wohlreich M, Detke MJ, Iyengar S, Goldstein DJ. (2004). Arthritis Rheum, 50: 2974–2984.
Bakker C, Rutten M, Van Santen-Hoeufft M, Bolwijn P, Van Doorslaer E, Bennett K, Van Der Linden S. (1995). J Rheumatol. 22: 1536–1543.
Bennett R. (2005). Clin Exp Rheumatol. 23: S154–S162.
Birtane M, Uzunca K, Tastekin N, Tuna H. (2007). Clin Rheumatol. 26: 679–684.
Blumenstiel K, Eich W. (2003). Schmerz. 17: 399–404.
Bosch Romero E, Saenz Moya N, Valls Esteve M, Vinolas Valer S. (2002). Aten Primaria. 30: 16–21.
Burckhardt CS, Clark SR, Bennett RM. (1991). J Rheumatol. 18: 728–733.
Cacace E, Ruggiero V, Anedda C, Denotti A, Minerba L, Perpignano G. (2006). Reumatismo. 58: 226–229.
Carmona L, Ballina J, Gabriel R, Laffon A. (2001). Ann Rheum Dis. 60: 1040–1045.
Cronan TA, Serber ER, Walen HR, Jaffe M. (2002). J Aging Health. 14: 370–384.
Crooks VA. (2007). Soc Sci Med. 64: 577–588.
Cuatrecasas G, Riudavets C, Guell MA, Nadal A. (2007). Bmc Musculoskelet Disord. 8: 119.
Deyo RA, Patrick DL. (1989). Med Care. 27: S254–S268.
Edlinger G, Wach P, Pfurtscheller G. (1998). IEEE Trans Biomed Eng. 45: 736–745.
Garcia-Campayo J, Pascual A, Alda M, Marzo J, Magallon R, Fortes S. (2006). Gen Hosp Psychiatry. 28: 154–160.
Gusi N, Tomas-Carus P. (2008). Arthritis Res Ther. 10: R24.
Gusi N, Tomas-Carus P, Hakkinen A, Hakkinen K, Ortega-Alonso A. (2006). Arthritis Rheum. 55: 66–73.
Gusi N, Tomas-Carus P, Ortega-Alonso A, Garcia Y, Leal A. (2003). Relationship between the Fibromyalgia Impact Questionnaire and the Euroqol 5-D and its Sensitivity to Assess a Physical Therapy Program. In: Prevolnik V (ed.) 20th Plenary Meeting of the Euroqol Group. Ministry of Health, Republic of Slovenia, Bled, Slovenia.
Kaplan RM. (2006). How to Measure Quality of Life. In: Porzsolt F, Kaplan RM, (eds.) Optimizing Health: Improving the Value of Healthcare Delivery. Springer US.
Kaplan RM, Schmidt SM, Cronan TA. (2000). J Rheumatol. 27: 785–789.
Liedberg GM, Henriksson CM. (2002). Arthritis Rheum. 47: 266–274.
Mannerkorpi K, Svantesson U, Broberg C. (2006). Arch Phys Med Rehabil. 87: 259–264.
Meenan RF, Gertman PM, Mason JH. (1980). Arthritis Rheum. 23: 146–152.
Merkesdal S, Busche T, Bauer J, Mau W. (2003). Int J Rehabil Res. 26: 183–189.
Meyer BB, Lemley KJ. (2000). Med Sci Sports Exerc. 32: 1691–1697.
Mo F, Choi BC, Li FC, Merrick J. (2004). Scientificworldjournal. 4: 746–757.
Myers C, Wilks D. (1999). Qual Life Res. 8: 9–16.
Neumann L, Berzak A, Buskila D. (2000). Semin Arthritis Rheum. 29: 400–408.
Nordlund A, Ekberg K, Kristenson M. (2005). Qual Life Res. 14: 1099–1109.
Ozcetin A, Ataoglu S, Kocer E, Yazici S, Yildiz O, Ataoglul A, Icmeli C. (2007). West Indian Med J. 56: 122–129.
Pagano T, Matsutani LA, Ferreira EA, Marques AP, Pereira CA (2004). Sao Paulo Med J. 122: 252–258.
Patrick DL, Deyo RA. (1989). Med Care. 27: S217–S232.
Picavet HS, Hoeymans N. (2004). Ann Rheum Dis. 63: 723–729.
Pincus T, Summey JA, Soraci, SA Jr, Wallston KA, Hummon NP. (1983). Arthritis Rheum. 26: 1346–1353.
Schlenk EA, Erlen JA, Dunbar-Jacob J, Mcdowell J, Engberg S, Sereika SM, Rohay JM, Bernier MJ. (1998). Qual Life Res. 7: 57–65.
Sintonen H. (2001). Ann Med. 33: 328–336.
Skrabek RQ, Galimova L, Ethans K, Perry D. (2008). J Pain. 9: 164–173.
Tander B, Cengiz K, Alayli G, Ilhanli I, Canbaz S, Canturk F. (2008). A comparative evaluation of health related quality of life and depression in patients with fibromyalgia syndrome and rheumatoid arthritis. Rheumatol Int. 28: 858–865.
Tavafian SS, Jamshidi A, Mohammad K, Montazeri A. (2007). BMC Musculoskelet Disord. 8: 21.
Tikiz C, Muezzinoglu T, Pirildar T, Taskn EO, Frat A, Tuzun C. (2005). J Urol. 174: 620–623.
Tomas-Carus P, Hakkinen A, Gusi N, Leal A, Hakkinen K, Ortega-Alonso A. (2007). Med Sci Sports Exerc. 39: 1044–1050.
Vargas-Alarcon G, Fragoso JM, Cruz-Robles D, Vargas A, Lao-Villadoniga JI, Garcia-Fructuoso F, Ramos-Kuri M, Hernandez F, Springall R, Bojalil R, Vallejo M, Martinez-Lavin M. (2007). Arthritis Res Ther. 9: R110.
Verbunt JA, Pernot DH, Smeets RJ. (2008). Health Qual Life Outcomes. 6: 8.
Vishne T, Fostick L, Silberman A, Kupchick M, Rubinow A, Amital H, Amital D. (2008). Rheumatol Int. 28: 831–836.
White KP, Speechley M, Harth M, Ostbye T. (1999). J Rheumatol. 26: 1570–1576.
Wolfe F, Anderson J, Harkness D, Bennett RM, Caro XJ, Goldenberg DL, Russell IJ, Yunus MB. (1997). Arthritis Rheum. 40: 1560–1570.
Wolfe F, Smythe HA, Yunus MB, Bennett RM, Bombardier C, Goldenberg DL, Tugwell P, Campbell SM, Abeles M, Clark P, et al. (1990). Arthritis Rheum. 33: 160–172.
Wood-Dauphinee S. (2000). CMAJ. 163: 283–284.
Zachrisson O, Regland B, Jahreskog M, Kron M, Gottfries CG. (2002). J Psychosom Res. 52: 501–509.
Zijlstra TR, Braakman-Jansen LM, Taal E, Rasker JJ, Van De Laar MA. (2007). Rheumatology (Oxford). 46: 1454–1459.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2010 Springer Science+Business Media LLC
About this entry
Cite this entry
Gusi, N., Olivares, P.R., Carmelo Adsuar, J., Paice, A., Tomas-Carus, P. (2010). Quality of Life Measures in Fibromyalgia. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_231
Download citation
DOI: https://doi.org/10.1007/978-0-387-78665-0_231
Publisher Name: Springer, New York, NY
Print ISBN: 978-0-387-78664-3
Online ISBN: 978-0-387-78665-0
eBook Packages: MedicineReference Module Medicine