Definition
Ethical issues in medical genetics arise from (a) new and previously unknown information on individual and familial genetic heritage and (b) new knowledge in manipulating genetic traits associated with disorder or disease or for enhancement. Moral subjects to make decisions and assess the ethical parameters of new information and knowledge are individuals, families, communities, legal experts, politicians even humankind; the assessment of who, for a special issue or in a given situation, is or should be the prime moral agent is a highly debated and controversial ethical, cultural and political issue.
Existing and developing knowledge in genetic information and genetic manipulation is a scientific revolution of Copernican dimension and will have far reaching consequences cultural and social consequences in individual and collective attitudes, on values and virtues, lifestyles, hopes and expectations, also in structuring systems of health promotion and disease management.
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References
Wertz D, Nippert I, Wolff G (2003) Patient and professional responsibilities in genetic counseling. In: Sass HM, Schroeder P (eds) Patientenaufklaerung bei genetischem Risiko. Muenster Lit, pp 79–92
Sass HM (2003) Common moral priorities and cultural diversities. Formosan Journal of Medical Humanities 4(1+2):6–21
WHO (1998) Proposed International Guidelines on ethical issues in medical genetics and medical services. WHO (doc.ref.who/hgn/gl/eth/98.1), Geneva
Kielstein R, Sass HM (2002) Genetics in kidney disease; how much do we want to know? Am J Kidney Disease 39:637–652
Paul NW, Roses AD (2003) Pharmacogenetics and pharmacogenomics: recent developments, their clinical relevance and some ethical, social and legal implications. J Molec Med 81:135–140
Sass HM (2001) A Contract Model for Genetic Research and Health Care for Individuals and Families. Eubios 11:130–132
HUGO (2003) Statement on genetic screening. Eubios 13:99
CIOMS (2002) International Ethical Guidelines for Biomedical Research involving Human Subjects, Geneve, CIOMS
Nuffield Council on Bioethics (2002) The Ethics of Research related to Healthcare in Developing Countries. Nuffield Council, London
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© 2006 Springer-Verlag
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Sass, H.M. (2006). Ethical Issues in Medical Genetics. In: Encyclopedic Reference of Genomics and Proteomics in Molecular Medicine. Springer, Berlin, Heidelberg . https://doi.org/10.1007/3-540-29623-9_1450
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DOI: https://doi.org/10.1007/3-540-29623-9_1450
Publisher Name: Springer, Berlin, Heidelberg
Print ISBN: 978-3-540-44244-8
Online ISBN: 978-3-540-29623-2
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