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Nursing and Palliative Care

  • Jane L. PhillipsEmail author
  • Claudia Virdun
  • Priyanka Bhattarai
  • Claire Fraser
Reference work entry

Abstract

Nursing is integral to meeting the growing demand for palliative care which is being driven by population aging and the increasing burden of chronic, noncommunicable disease. Palliative nursing and nursing in general share many of the same principles and practices. Both are committed to addressing the holistic domains of health (physical, psychological, emotional, cultural, social, practical, spiritual, and informational aspects of a person’s health and well-being) (Fitch, Hosp Q 3(4):39–46, 1999). This chapter provides an overview of the role of nursing in the context of contemporary interdisciplinary specialist and primary palliative care, key constructs underpinning palliative nursing, the core competencies of specialist and primary palliative care nursing, and how these competencies can be applied to provide best evidence-based person-centered palliative care, regardless of the care setting.

References

  1. Albers G, Francke AL, de Veer AJE, Bilsen J, Onwuteaka-Philipsen BD. Attitudes of nursing staff towards involvement in medical end-of-life decisions: a national survey study. Patient Educ Couns. 2014;94(1):4–9.CrossRefGoogle Scholar
  2. Anyfantakis D, Symvoulakis EK. Medical decision and patient’s preference: ‘much ethics’ and more trust always needed. Int J Med Sci. 2011;8(4):351.CrossRefGoogle Scholar
  3. Aranda S, Yates P. A National Professional Development Framework for Cancer Nursing Canberra: Cancer Australia. 2009. 2nd:Available from: http://edcan.org.au/assets/edcan/files/docs/EdCanWeb_2nded.pdf.
  4. Barry MJ, Edgman-Levitan S. Shared decision making—the pinnacle of patient-centered care. N Engl J Med. 2012;366(9):780–1.CrossRefGoogle Scholar
  5. Candy B, Holman A, Leurent B, Davis S, Jones L. Hospice care delivered at home, in nursing homes and in dedicated hospice facilities: a systematic review of quantitative and qualitative evidence. Int J Nurs Stud. 2011;48(1):121–33.CrossRefGoogle Scholar
  6. Caresearch. Euthanasia 2017. 12 Apr 2017. Available from: https://www.caresearch.com.au/caresearch/tabid/1545/Default.aspx.
  7. Connors AF, Dawson NV, Desbiens NA, Fulkerson WJ, Goldman L, Knaus WA, et al. A controlled trial to improve care for seriously III hospitalized patients: the study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA. 1995;274(20):1591–8.CrossRefGoogle Scholar
  8. Davies SL, Goodman C, Bunn F, Victor C, Dickinson A, Iliffe S, et al. A systematic review of integrated working between care homes and health care services. BMC Health Serv Res. 2011;11(1):320.CrossRefGoogle Scholar
  9. Earp JAL, French EA, Gilkey MB. Patient advocacy for health care quality: strategies for achieving patient-centered care. Sudbury: Jones & Bartlett Learning; 2008.Google Scholar
  10. European Association for Palliative Care. Core competencies in palliative care: an EAPC white paper on palliative care education – Part 1. Eur J Palliat Care. 2013;20(2):86–91.Google Scholar
  11. Fitch M. Supportive care for cancer patients. Hosp Q. 1999;3(4):39–46.Google Scholar
  12. García-Pérez L, Linertová R, Martin-Olivera R, Serrano-Aguilar P, Benítez-Rosario M. A systematic review of specialised palliative care for terminal patients: which model is better? Palliat Med. 2009;23(1):17–22.CrossRefGoogle Scholar
  13. Hall S, Kolliakou A, Petkova H, Froggatt K, Higginson IJ. Interventions for improving palliative care for older people living in nursing care homes. Cochrane Database Syst Rev. (Online). 2011;1–31.Google Scholar
  14. Higginson IJ, Evans CJ. What is the evidence that palliative care teams improve outcomes for cancer patients and their families? Cancer J. 2010;16:423–35.CrossRefGoogle Scholar
  15. Institute of Medicine. Approaching Death: Improving Care at the End of Life. Washington, DC; 1997.Google Scholar
  16. Luckett T, Phillips J, Agar M, Virdun C, Green A, Davidson P. Elements of effective palliative care models: a rapid review. BMC Health Serv Res. 2014;14(1):136.CrossRefGoogle Scholar
  17. McCormack B, McCance T. Person-Centred practice in nursing and health care–theory and practice. Oxford: Wiley Publishing; 2017.Google Scholar
  18. Mehrdad N, Joolaee S, Joulaee A, Bahrani N. Nursing faculties’ knowledge and attitude on evidence-based practice. Iran J Nurs Midwifery Res. 2012;17(7):506.PubMedPubMedCentralGoogle Scholar
  19. Morrison RS, Dietrich J, Ladwig S, Quill T, Sacco J, Tangeman J, et al. Palliative care consultation teams cut hospital costs for Medicaid beneficiaries. Health Aff. (Project Hope). 2011;30(3):454–63.CrossRefGoogle Scholar
  20. New South Wales Department of Health. Guidelines for end-of-life care and decision making. Sydney: NSW Health. 2005.Google Scholar
  21. Nursing and Midwifery Board of Australia. Registered Nurses standards for practice Melbourne: Nursing and Midwifery Board of Australia; 2016.Google Scholar
  22. Owens DA. A final thought on evidence-based practice. J. Hosp. Palliat. Nurs. 2009;11(6):313–4.CrossRefGoogle Scholar
  23. Pace JC, Lunsford B. The evolution of palliative care nursing education. J. Hosp. Palliat. Nurs. 2011;13(6):S8–19.CrossRefGoogle Scholar
  24. Palliative Care Australia. A guide to palliative care service development: A population based approach. Canberra: ACT; 2005.Google Scholar
  25. Palliative Care Competence Framework Steering Group. Palliative care competence framework. Dublin: Health Service Executive; 2014.Google Scholar
  26. Palliative Care Nurses New Zealand. National Professional Development Framework for Palliative Care Nursing Practice in Aotearoa New Zealand Wellington, New Zealand: Ministry of Health; 2014. Contract No: ISBN 978–0–478-42898-8.Google Scholar
  27. Parry SB. The quest for competences: competency studies can help you make HR decision, but the results are only as good as the study. Training. 1996;33:48–56.Google Scholar
  28. Phillips JL. Implementing evidence-based palliative care. Int J Palliat Nurs. 2015;21(2):55. London.Google Scholar
  29. Phillips J, Davidson PM, Kristjanson LJ, Jackson D, Daly J. Residential aged care: the last frontier for palliative care. J Adv Nurs. 2006;55(4):416–24.CrossRefGoogle Scholar
  30. Phillips JL, Ingham J, McLeod R. In: Bruera EIH, editor. The development of palliative medicine in Australia and New Zealand. 2nd ed: Hodder Arnold; 2015.Google Scholar
  31. Picker Institute Europe. Principles of patient centred care 2017. Available from: http://www.picker.org/about-us/principles-of-patient-centred-care/.
  32. Quill TE, Abernethy AP. Generalist plus specialist palliative care—creating a more sustainable model. N Engl J Med. 2013;368(13):1173–5.CrossRefGoogle Scholar
  33. Rosenberg W, Donald A. Evidence based medicine: an approach to clinical problem-solving. Br Med J. 1995;310(6987):1122.CrossRefGoogle Scholar
  34. Scott K, McSherry R. Evidence-based nursing: clarifying the concepts for nurses in practice. J Clin Nurs. 2009;18(8):1085–95.CrossRefGoogle Scholar
  35. Stokke K, Olsen NR, Espehaug B, Nortvedt MW. Evidence based practice beliefs and implementation among nurses: a cross-sectional study. BMC Nurs. 2014;13(1):8.CrossRefGoogle Scholar
  36. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Jacobsen J, Pirl WF, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010;363(8):733–42.CrossRefGoogle Scholar
  37. Tieman J, Sladek R, Currow D. Changes in the quantity and level of evidence of palliative and hospice care literature: the last century. J Clin Oncol Off J Am Soc Clin Oncol. 2008;26(35):5679–83.CrossRefGoogle Scholar
  38. Virdun C, Luckett T, Davidson PM, Phillips J. Dying in the hospital setting: a systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important. Palliat Med. 2015;29(9):774–96.CrossRefGoogle Scholar
  39. Virdun C, Luckett T, Lorenz K, Davidson PM, Phillips J. Dying in the hospital setting: a metasynthesis identifying the elements of end-of-life care that patients and their families describe as being important. Palliat Med. 2017;31(7):587–601.CrossRefGoogle Scholar
  40. Webb PA. Ethical issues in palliative care. Radcliffe: Abingdon; 2005.Google Scholar
  41. World Health Organisation. WHO definition of palliative care 2003. Available from: http://www.who.int/cancer/palliative/definition/en/.

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  • Jane L. Phillips
    • 1
    • 2
    Email author
  • Claudia Virdun
    • 3
  • Priyanka Bhattarai
    • 1
    • 2
  • Claire Fraser
    • 1
  1. 1.Faculty of Health, Improving Palliative, Aged and Chronic Care Through Clinical Research and TranslationUniversity of Technology SydneyUltimoAustralia
  2. 2.School of NursingUniversity of Notre Dame Australia-SydneyDarlinghurstAustralia
  3. 3.Improving Palliative, Aged, and Chronic Care through Clinical Research and Translation (IMPACCT), Faculty of HealthUniversity of Technology SydneyUltimoAustralia

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