Encyclopedia of Gerontology and Population Aging

Living Edition
| Editors: Danan Gu, Matthew E. Dupre

Dying in Place

  • Bobo Hi Po LauEmail author
Living reference work entry
DOI: https://doi.org/10.1007/978-3-319-69892-2_1024-1

Synonyms

Definition

Dying in place refers to dying at the usual residence of the patient, including home or a long-term care facility.

Overview

Aging in place, defined as “remaining living in the community, with some level of independence, rather than in residential care” (Davey et al. 2004, p.133), facilitates the senses of autonomy, mastery, and attachment needed for aging well (Wiles et al. 2012) (See “Aging in place”). The idea could be extended to the last stretch of one’s life (See “End-of-life care”). Dying in place refers to dying at the usual residence of the patient, which often means home or a long-term care facility, such as a care home. While home is usually cited as the best choice for place of death and dying from surveys and hospice as the second-best (Gomes et al. 2012b; Wilson et al. 2013), most deaths still occur in hospitals especially in societies that are experiencing...

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References

  1. Agar M, Currow DC, Shelby-James TM et al (2008) Preference for place of care and place of death in palliative care: are these different questions? Palliat Med 22(7):787–795CrossRefGoogle Scholar
  2. Bainbridge D, Seow H, Sussman J (2016) Common components of efficacious in-home end-of-life care programs: a review of systematic reviews. J Am Geriatr Soc 64(3):632–639CrossRefGoogle Scholar
  3. Bell CL, Somogyi-Zalud E, Masaki KH (2010) Factors associated with congruence between preferred and actual place of death. J Pain Symptom Manag 39(3):591–604CrossRefGoogle Scholar
  4. Billingham MJ, Billingham SJ (2013) Congruence between preferred and actual place of death according to the presence of malignant or non-malignant disease: a systematic review and meta-analysis. BMJ Support Palliat Care 3(2):144–154CrossRefGoogle Scholar
  5. Bone AE, Gomes B, Etkind SN et al (2018) What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death. Palliat Med 32(2):329–336CrossRefGoogle Scholar
  6. Bonsignore L, Bloom N, Steinhauser K et al (2018) Evaluating the feasibility and acceptability of a telehealth program in a rural palliative care population: TapCloud for palliative care. J Pain Symptom Manag 56(1):7–14CrossRefGoogle Scholar
  7. Broad JB, Gott M, Kim H et al (2013) Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics. Int J Publ Health 58(2):257–267CrossRefGoogle Scholar
  8. Burt J, Shipman C, Richardson A et al (2009) The experiences of older adults in the community dying from cancer and non-cancer causes: a national survey of bereaved relatives. Age Ageing 39(1):86–91CrossRefGoogle Scholar
  9. Chung RYN, Wong ELY, Kiang N et al (2017) Knowledge, attitudes, and preferences of advance decisions, end-of-life care, and place of care and death in Hong Kong. A population-based telephone survey of 1067 adults. J Am Med Dir Assoc 18(4):367. e319–367. e327CrossRefGoogle Scholar
  10. Cohen J, Gott M (2015) Dying in place in old age: public health challenges. In: Van Den Block L, Albers G, Pereira S, Onwuteaka-Philipsen B, Pasman R, Deliens L (eds) Palliative care for older people: public health perspective. Oxford University Press, Oxford, pp 107–119CrossRefGoogle Scholar
  11. Cohen J, Pivodic L, Miccinesi G et al (2015) International study of the place of death of people with cancer: a population-level comparison of 14 countries across 4 continents using death certificate data. Br J Cancer 113(9):1397–1404CrossRefGoogle Scholar
  12. Costa V, Earle CC, Esplen MJ et al (2016) The determinants of home and nursing home death: a systematic review and meta-analysis. BMC Palliat Care 15(1):8CrossRefGoogle Scholar
  13. Covinsky KE, Eng C, Lui LY et al (2003) The last 2 years of life: functional trajectories of frail older people. J Am Geriatr Soc 51(4):492–498CrossRefGoogle Scholar
  14. Davey JA, de JouxV NG, Arcus M (2004) Accommodation options for older people in Aotearoa/New Zealand. Citeseer, WellingtonGoogle Scholar
  15. De Roo ML, Miccinesi G, Onwuteaka-Philipsen BD et al (2014) Actual and preferred place of death of home-dwelling patients in four European countries: making sense of quality indicators. PLoS One 9(4):e93762CrossRefGoogle Scholar
  16. Demiris G, Hensel B (2009) “Smart homes” for patients at the end of life. J Hous Elderl 23(1–2):106–115CrossRefGoogle Scholar
  17. Department of Health HKSAR Government (2019) Leading cause of all deaths. Accessed April 2019 at https://www.healthyhk.gov.hk/phisweb/en/healthy_facts/disease_burden/major_causes_death/major_causes_death/
  18. Earle CC, Park ER, Lai B et al (2003) Identifying potential indicators of the quality of end-of-life cancer care from administrative data. J Clin Oncol 21(6):1133–1138CrossRefGoogle Scholar
  19. Fang MS, Lou WV, Kong ST (2016) Overview of the legal and administrative barriers to caring and dying in place in Residential Care Hones for the Elderly (RCHEs) (Policy No. 4). Accessed April 2019 at http://www.socsc.hku.hk/pp/wp-content/uploads/2016/05/brief_4.pdf
  20. Fleming J, Calloway R, Perrels A et al (2017) Dying comfortably in very old age with or without dementia in different care settings–a representative “older old” population study. BMC Geriatr 17(1):222CrossRefGoogle Scholar
  21. Gomes B, Higginson IJ (2006) Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ 332(7540):515–521CrossRefGoogle Scholar
  22. Gomes B, Calanzani N, Higginson IJ (2012a) Reversal of the British trends in place of death: time series analysis 2004–2010. Palliat Med 26(2):102–107CrossRefGoogle Scholar
  23. Gomes B, Higginson IJ, Calanzani N et al (2012b) Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Ann Oncol 23(8):2006–2015CrossRefGoogle Scholar
  24. Gomes B, Calanzani N, Gysels M et al (2013) Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliat Care 12(1):7CrossRefGoogle Scholar
  25. Gomes B, Calanzani N, Higginson IJ (2014) Benefits and costs of home palliative care compared with usual care for patients with advanced illness and their family caregivers. JAMA 311(10):1060–1061CrossRefGoogle Scholar
  26. Higginson IJ, Sarmento VP, Calanzani N et al (2013) Dying at home–is it better: a narrative appraisal of the state of the science. Palliat Med 27(10):918–924CrossRefGoogle Scholar
  27. Hoare S, Morris ZS, Kelly MP et al (2015) Do patients want to die at home? A systematic review of the UK literature, focused on missing preferences for place of death. PLoS One 10(11):e0142723CrossRefGoogle Scholar
  28. Hospital Authority (2016) Chief executive’s speech – hospital authority convention 2016. Accessed April 2019 at http://www.ha.org.hk/haconvention/hac2016/proceedings/downloads/2016CEEN.pdf
  29. Hospital Authority (2019) Palliative care services. Accessed April 2019 at https://www.ha.org.hk/visitor/ha_visitor_text_index.asp?Content_ID=10096&Lang=ENG&Dimension=100
  30. Houttekier D, Cohen J, Surkyn J, Deliens L (2011) Study of recent and future trends in place of death in Belgium using death certificate data: a shift from hospitals to care homes. BMC Publ Health 11(1):228CrossRefGoogle Scholar
  31. Hui E, Ma HM, Tang WH et al (2014) A new model for end-of-life care in nursing homes. J Am Med Dir Assoc 15(4):287–289CrossRefGoogle Scholar
  32. Jockey Club End-of-Life Community Care Project (2016) Press conference on community-wide survey on end-of-life care in Hong Kong 2016. Accessed April 2019 at http://foss.hku.hk/jcecc/en/press-conference-on-community-wide-survey-on-end-of-life-care-in-hong-kong-2016/
  33. Luk J (2018) End-of-life services for older people in residential care homes in Hong Kong. Hong Kong Med J 24(1):63–67Google Scholar
  34. Luk J, Liu A, Ng W, Beh S, Chan F (2011) End-of-life care in Hong Kong. Asian J Gerontol Geriatr 6:103–106Google Scholar
  35. Nordly M, Vadstrup ES, Sjøgren P, Kurita GP (2016) Home-based specialized palliative care in patients with advanced cancer: a systematic review. Palliat Support Care 14(6):713–724CrossRefGoogle Scholar
  36. Phongtankuel V, Adelman RD, Reid M (2018) Mobile health technology and home hospice care: promise and pitfalls. Progress Palliat Care 26(3):137–141CrossRefGoogle Scholar
  37. Pivodic L, Pardon K, Morin L et al (2016) Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries. J Epidemiol Community Health 70(1):17–24CrossRefGoogle Scholar
  38. Pocock LV, Ives A, Pring A, Verne J, Purdy S (2016) Factors associated with hospital deaths in the oldest old: a cross-sectional study. Age Ageing 45(3): 372–376CrossRefGoogle Scholar
  39. Pollock K (2015) Is home always the best and preferred place of death? BMJ 351:h4855CrossRefGoogle Scholar
  40. Radbruch L, Payne S (2010) White paper on standards and norms for hospice and palliative care in Europe: part 2. Eur J Palliat Care 17(1):22–33Google Scholar
  41. Raijmakers NJ, de Veer AJ, Zwaan R et al (2018) Which patients die in their preferred place? A secondary analysis of questionnaire data from bereaved relatives. Palliat Med 32(2):347–356CrossRefGoogle Scholar
  42. Reyniers T, Deliens L, Pasman HR et al (2015) International variation in place of death of older people who died from dementia in 14 European and non-European countries. J Am Med Dir Assoc 16(2):165–171CrossRefGoogle Scholar
  43. Ryder S (2013) A time and a place: what people want at the end of life. Demos, LondonGoogle Scholar
  44. Sarmento VP, Gysels M, Higginson IJ, Gomes B (2017) Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers. BMJ Support Palliat Care 7:00CrossRefGoogle Scholar
  45. Schwarz B, Benson JJ (2018) Place of death and dying: introduction. J Hous Elder 32(3–4):267–277CrossRefGoogle Scholar
  46. Singer PA, Martin DK, Kelner M (1999) Quality end-of-life care: patients’ perspectives. JAMA 281(2): 163–168CrossRefGoogle Scholar
  47. Steinhauser KE, Christakis NA, Clipp EC et al (2000) Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 284(19):2476–2482CrossRefGoogle Scholar
  48. Tieman JJ, Swetenham K, Morgan DD et al (2016) Using telehealth to support end of life care in the community: a feasibility study. BMC Palliat Care 15(1):94CrossRefGoogle Scholar
  49. Wiggins N, Droney J, Mohammed K et al (2019) Understanding the factors associated with patients with dementia achieving their preferred place of death: a retrospective cohort study. Age Ageing.  https://doi.org/10.1093/ageing/afz015. [Epub ahead of print]CrossRefGoogle Scholar
  50. Wiles JL, Leibing A, Guberman N et al (2012) The meaning of “aging in place” to older people. Gerontologist 52(3):357–366CrossRefGoogle Scholar
  51. Wilson DM, Cohen J, Deliens L et al (2013) The preferred place of last days: results of a representative population-based public survey. J Palliat Med 16(5):502–508CrossRefGoogle Scholar
  52. Woodman C, Baillie J, Sivell S (2016) The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Support Palliat Care 6(4):418–429CrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1. Department of Counselling and PsychologyHong Kong Shue Yan UniversityHong KongHong Kong

Section editors and affiliations

  • Amy Chow
    • 1
  1. 1.Department of Social Work & Social AdministrationThe University of Hong KongHong KongChina