Transfer to a Preferred Place of Death

Living reference work entry

Abstract

The preferred place of death is an important consideration in end-of-life care, especially when the dying person is definite about their choice. The preferred place of care may well be the same location, but this is not always the case. When the two venues are different, and the patient’s prognosis is poor, a decision has to be made whether to move the patient or not. The expectation to not only transfer the dying person in a timely fashion but also to minimize the time in the current setting often makes the situation a palliative care emergency. However, should the move occur at all? The risk of dying in transit may be high. Furthermore, respecting the wishes of the dying person needs to be balanced with the practicalities of safe ongoing care. These are practical and ethical decisions that should be made as early as possible.

How do we facilitate the smooth transfer from one location to another? Coordination and communication are vital in planning the process and supporting the discharge. The provision of the right medications and equipment, relevant information, and strategies for managing future problems should increase the chance of a successful transfer. Sometimes a smooth transfer will not be possible, but patients and family members will usually be happy with a successful one.

References

  1. Agar M, Currow DC, Shelby-James TM, Plummer J, Sanderson C, Abernethy AP. Preference for place of care and place of death in palliative care: are these different questions? Palliat Med. 2008;22:787–95. https://journals.sagepub.comCrossRefGoogle Scholar
  2. Ahearn DJ, Nidh N, Kallat A, Adenwala Y, Varman S. Offering older hospitalised patients the choice to die in their preferred place. Postgrad Med J. 2013;89:20–4.CrossRefGoogle Scholar
  3. Ali M, Capel M, Jones G, Gazi T. The importance of identifying preferred place of death. BMJ Suppor Palliat Care. 2015:bmjspcare-2015.Google Scholar
  4. Bergenholtz H, Jarlbaek L, Hølge-Hazelton B. Generalist palliative care in hospital – cultural and organisational interactions. Results of a mixed-methods study. Palliat Med. 2016;30:558–66.CrossRefGoogle Scholar
  5. Billingham MJ, Billingham S-J. Congruence between preferred and actual place of death according to the presence of malignant or non-malignant disease: a systematic review and meta-analysis. BMJ Support Palliat Care. 2013;3:144–54. https://spcare.bmj.comCrossRefGoogle Scholar
  6. Bone AE, Gomes B, Etkind SN, Verne J, Murtagh FE, Evans CJ, et al. What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death. Palliat Med. 2017; 269216317734435. https://journals.sagepub.com.
  7. Cohen J, Pivodic L, Miccinesi G, Onwuteaka-Philipsen BD, Naylor WA, Wilson DM, et al. International study of the place of death of people with cancer: a population-level comparison of 14 countries across 4 continents using death certificate data. Br J Cancer. 2015;113:1397–404. https://nature.comCrossRefGoogle Scholar
  8. Cohen J, Beernaert K, Van den Block L, Morin L, Hunt K, Miccinesi G, et al. Differences in place of death between lung cancer and COPD patients: a 14-country study using death certificate data. NPJ Prim Care Respir Med. 2017;27:14. https://ncbi.nlm.nih.govCrossRefGoogle Scholar
  9. Gage H, Holdsworth LM. Impact of a hospice rapid response service on preferred place of death, and costs. Biomed Chromatogr. 2015. bmcpalliatcare.biomedcentral.com. Available: https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-015-0065-4.
  10. Glare P, Sinclair C, Downing M, Stone P, Maltoni M, Vigano A. Predicting survival in patients with advanced disease. Eur J Cancer. 2008;44:1146–56. ElsevierCrossRefGoogle Scholar
  11. Gomes B, Calanzani N, Gysels M, Hall S, Higginson IJ. Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliat Care. 2013;12:7. https://bmcpalliatcare.biomedcentral.comCrossRefGoogle Scholar
  12. Gomes B, Calanzani N, Koffman J, Higginson IJ. Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study. BMC Med. 2015;13:235. https://bmcmedicine.biomedcentral.comCrossRefGoogle Scholar
  13. Gott M, Frey R, Robinson J, Boyd M, O’Callaghan A, Richards N, et al. The nature of, and reasons for, “inappropriate” hospitalisations among patients with palliative care needs: a qualitative exploration of the views of generalist palliative care providers. Palliat Med. 2013;27:747–56.CrossRefGoogle Scholar
  14. Hui D, Dos Santos R, Chisholm G, Bansal S, Souza Crovador C, Bruera E. Bedside clinical signs associated with impending death in patients with advanced cancer: preliminary findings of a prospective, longitudinal cohort study. Cancer. 2015;121:960–7.CrossRefGoogle Scholar
  15. Kalseth J, Theisen OM. Trends in place of death: the role of demographic and epidemiological shifts in end-of-life care policy. Palliat Med. 2017;31:964–74. https://journals.sagepub.comCrossRefGoogle Scholar
  16. Kellehear A. Compassionate communities: end-of-life care as everyone’s responsibility. QJM. 2013;106:1071–5. https://academic.oup.comCrossRefGoogle Scholar
  17. Lin Y, Myall M, Jarrett N. Uncovering the decision-making work of transferring dying patients home from critical care units: an integrative review. J Adv Nurs. 2017. Wiley Online Library; Available: http://onlinelibrary.wiley.com/doi/10.1111/jan.13368/full.
  18. Love AW, Liversage LM. Barriers to accessing palliative care: a review of the literature. Prog Palliat Care. 2014;22:9–19.CrossRefGoogle Scholar
  19. Lovell N, Jones C, Baynes D, Dinning S, Vinen K, Murtagh FE. Understanding patterns and factors associated with place of death in patients with end-stage kidney disease: a retrospective cohort study. Palliat Med. 2017;31:283–8. https://journals.sagepub.comCrossRefGoogle Scholar
  20. Mann S, Galler D, Williams P, Frost P. Caring for patients and families at the end of life: withdrawal of intensive care in the patient’s home. N Z Med J. 2004;117:U935. https://search.proquest.comPubMedGoogle Scholar
  21. Murphy D, Ellershaw JE, Jack B, Gambles M, Saltmarsh P. The Liverpool care pathway for the rapid discharge home of the dying patient. J Integr Care Pathways. 2004;8:127–8. Sage PublicationsCrossRefGoogle Scholar
  22. Needle JS. Home extubation by a pediatric critical care team: providing a compassionate death outside the pediatric intensive care unit. Pediatr Crit Care Med. 2010;11:401–3. https://journals.lww.comPubMedGoogle Scholar
  23. Poppito SR. Advancing Medical Education in Existential. Psychooncology. American Psychiatric Pub; 2013; 201Google Scholar
  24. Romo RD, Wallhagen MI, Smith AK. Viewing hospice decision making as a process. Am J Hosp Palliat Care. 2016;33:503–10.CrossRefGoogle Scholar
  25. Sallnow L, Kumar S, Numpeli M. Home-based palliative care in Kerala, India: the neighbourhood network in palliative care. Prog Palliat Care. 2010;18:14–7. Taylor & FrancisCrossRefGoogle Scholar
  26. Sallnow L, Richardson H, Murray S, Kellehear A. Understanding the impact of a new public health approach to end-of-life care: a qualitative study of a community led intervention. Lancet. 2017;389:S88. ElsevierCrossRefGoogle Scholar
  27. Scibetta C, Kerr K, Mcguire J, Rabow MW. The costs of waiting: implications of the timing of palliative care consultation among a cohort of decedents at a comprehensive cancer center. J Palliat Med. 2016;19:69–75. https://online.liebertpub.comCrossRefGoogle Scholar
  28. Seow H, Bainbridge D. A Review of the Essential Components of Quality Palliative Care in the Home. J Palliat Med. Mary Ann Liebert Inc.; 2018;21:S37–S44Google Scholar
  29. Smith S, Brick A, O’Hara S, Normand C. Evidence on the cost and cost-effectiveness of palliative care: a literature review. Palliat Med. 2014;28:130–50. https://journals.sagepub.comCrossRefGoogle Scholar
  30. Smith C, Bosanquet N, Riley J, Koffman J. Loss, transition and trust: perspectives of terminally ill patients and their oncologists when transferring care from the hospital into the community at the end of life. BMJ Support Palliat Care. 2016.  https://doi.org/10.1136/bmjspcare-2015-001075. https://spcare.bmj.com
  31. Stajduhar K, Sawatzky R, Robin Cohen S, Heyland DK, Allan D, Bidgood D, et al. Bereaved family members’ perceptions of the quality of end-of-life care across four types of inpatient care settings. BMC Palliat Care. 2017;16:59. https://bmcpalliatcare.biomedcentral.comCrossRefGoogle Scholar
  32. Thomas RL, Zubair MY, Hayes B, Ashby MA. Goals of care: a clinical framework for limitation of medical treatment. Med J Aust. 2014;201:452–5.CrossRefGoogle Scholar
  33. Unger KM. Withdrawal of ventilatory support at home on hospice. J Pain Symptom Manage. 2016;52:305–12. ElsevierCrossRefGoogle Scholar
  34. Virdun C, Luckett T, Lorenz K, Davidson PM, Phillips J. Dying in the hospital setting: a meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important. Palliat Med. 2016.  https://doi.org/10.1177/0269216316673547. https://pmj.sagepub.com
  35. Wahid AS, Sayma M, Jamshaid S, Kerwat D’A, Oyewole F, Saleh D, et al. Barriers and facilitators influencing death at home: a meta-ethnography. Palliat Med. 2017; 269216317713427. https://journals.sagepub.com.

Copyright information

© Springer International Publishing AG 2018

Authors and Affiliations

  1. 1.Monash Health, Eastern HealthMonash UniversityMelbourneAustralia

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