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Health Services Data: The Ontario Cancer Registry (a Unique, Linked, and Automated Population-Based Registry)

  • Sujohn Prodhan
  • Mary Jane King
  • Prithwish DeEmail author
  • Julie Gilbert
Reference work entry
Part of the Health Services Research book series (HEALTHSR)

Abstract

Since its creation in 1964, the Ontario Cancer Registry (OCR) has been an important source of high-quality information on cancer incidence and mortality. As a population-based registry, the OCR can be used to assess the provincial burden of cancer, track the progress of cancer control programs, identify health disparities among subpopulations, plan and improve healthcare, perform health services research, verify clinical guideline adherence, evaluate screening effectiveness, and much more. With over one third of Canadians residing in Ontario, the OCR is the nation’s largest provincial cancer registry and a major contributor to the Canadian Cancer Registry. In 2015 alone, the OCR collected data on an estimated 83,000 malignant cases.

Through its active participation in Canadian, North American, and international standard setting bodies, the OCR adopts the latest methods for registry data collection and reporting. The OCR is created entirely from records generated for purposes other than cancer registration. These records include pathology reports, treatment-level activity, hospital discharges, surgery data, and death certificates. Electronic records are linked at the person level and then “resolved” into incident cases of cancer using a unique computerized medical logic. Recent technological updates to the OCR have further modernized the registry and prepared it for future developments in the field of cancer registration.

This chapter describes the evolution of the OCR, its basic processes and components of automation, data elements, data quality measures, linkage processes, and other aspects of the registry that make it of particular interest to health services researchers and more broadly to the healthcare and public health community.

List of Abbreviations

AJCC

American Joint Committee on Cancer

ALR

Activity Level Reporting

CCO

Cancer Care Ontario

CIHI

Canadian Institute for Health Information

CS

Collaborative Stage

DAD

CIHI’s Discharge Abstract Database

DCO

Death certificate only

DSA

Data sharing agreement

eCC

Electronic Cancer Checklist

EDW

Enterprise Data Warehouse

EDW-OCR

Enterprise Data Warehouse based OCR

eMaRC

Electronic Mapping, Reporting, and Coding Plus

ePath

Electronic pathology data collection system

IACR

International Association of Cancer Registries

IARC

International Agency for Research on Cancer

ICBP

International Cancer Benchmarking Partnership

ICD

International Classification of Diseases

ICD-O

International Classification of Diseases for Oncology

MPH

Multiple Primary and Histology

NAACCR

North American Association of Central Cancer Registries

NACRS

CIHI’s National Ambulatory Care Reporting System

OCR

Ontario Cancer Registry

OCRIS

Ontario Cancer Registry Information System

OCTRF

Ontario Cancer Treatment and Research Foundation

RCC

Regional Cancer Center

SEER

Surveillance, Epidemiology, and End Results program

SSF

Site-specific factors

TNM

Tumor Node Metastasis staging

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Copyright information

© Her Majesty the Queen in Right of Canada 2019

Authors and Affiliations

  • Sujohn Prodhan
    • 1
  • Mary Jane King
    • 1
  • Prithwish De
    • 1
    Email author
  • Julie Gilbert
    • 2
  1. 1.Surveillance and Ontario Cancer RegistryCancer Care OntarioTorontoCanada
  2. 2.Planning and Regional ProgramsCancer Care OntarioTorontoCanada

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