Encyclopedia of Autism Spectrum Disorders

Living Edition
| Editors: Fred R. Volkmar

Family-Centered Care, 2nd edition

  • Laura Foran Lewis
Living reference work entry
DOI: https://doi.org/10.1007/978-1-4614-6435-8_102252-1

Synonyms

Definition

Family-centered care is an approach to care that is based on the understanding that the family is a child’s primary source of strength and support (American Academy of Pediatrics 2012). As such, the family is recognized as an integral part of the team in collaboration with service providers to best support the care of the child. Family may include parents, extended family, and/or other caregivers who are determined to be most meaningful and supportive to the child in time of need (Baas 2012).

Core principles of family-centered care include: listening to and respecting the unique preferences of the child and family; ensuring flexibility in policies and practices to tailor care to individual family needs, beliefs and cultural values; providing complete, honest, and unbiased information to families; providing and/or ensuring formal and information support; collaborating with families at all levels of health...

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References and Readings

  1. American Academy of Pediatrics Committee on Hospital Care and Institute for Patient- and Family-Centered Care. (2012). Policy statement: Patient- and family-centered care and the pediatrician’s role. Pediatrics, 129(2), 394–404.CrossRefGoogle Scholar
  2. Baas, L. S. (2012). Patient- and family-centered care. Heart & Lung: The Journal of Acute and Critical Care, 41(6), 534–535.  https://doi.org/10.1016/j.hrtlng.2012.08.001.CrossRefPubMedGoogle Scholar
  3. Christon, L. M., & Myers, B. J. (2015). Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States. Research in Autism Spectrum Disorders, 20, 47–57.  https://doi.org/10.1016/j.rasd.2015.08.004.CrossRefGoogle Scholar
  4. Prelock, P. A., & Hutchins, T. L. (2008). The role of family-centered care in research: Supporting the social communication of children with autism spectrum disorder. Topics in Language Disorders, 28(4), 323–339.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2018

Authors and Affiliations

  1. 1.College of Nursing & Health SciencesUniversity of VermontBurlingtonUSA