Autism as Viewed by French Parents
Since the 1960s, the lack of public facilities devoted to autism has been denounced by the French parents’ associations. In the 1990s, with the change in the category of autism and the promotion of educational and behavioral methods, new associations emerged. They accused psychiatrists of fuelling parents’ guilty feelings and not ensuring stimulating environments and access to schooling for their children. The parents’ associations favored the widening of the diagnostic criteria for autism, and they demanded the transfer of the care of autism from hospital to school and the training of professionals in educational and behavioral methods. The genetic and neurobiological origins were emphasized to counter the suspicion of parental guilt.
In order to study the changes, a survey was conducted with the parents of children born between 1960 and 1989 and the parents of children born between 1990 and 2005. The analysis of the parental experiences of the diagnostic process and the services available for autistic children showed earlier age at diagnosis. However, the increase in the number of the diagnosed cases of autism and the arrival of less severe cases has led to even greater shortage of services.
KeywordsAutism Spectrum Disorder Autistic Child Pervasive Developmental Disorder Child Psychiatrist Diagnostic Practice
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.
Chamak B. Autism and social movements: French parents’ associations and international autistic individuals’ organizations. Soc Health Ill. 2008;30:76–96.CrossRefGoogle Scholar
Chamak B, Bonniau B, Oudaya L, Ehrenberg A. The autism diagnostic experiences of French parents. Autism. 2011;15:83–97.PubMedCrossRefGoogle Scholar
Davis N, Carter A. Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: associations with child characteristics. J Autism Dev Disord. 2008;38:1278–91.PubMedCrossRefGoogle Scholar
Farrugia D. Exploring stigma: medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Soc Health Ill. 2009;31:1011–27.CrossRefGoogle Scholar
Fisher P. Wellbeing and empowerment: the importance of recognition. Soc Health Ill. 2008;30:583–98.CrossRefGoogle Scholar
Goin-Kochel R, Mackintosh V, Myers B. How many doctors does it take to make an autism spectrum diagnosis? Autism. 2006;10:439–51.PubMedCrossRefGoogle Scholar
Grinker R. Unstrange minds: remapping the world of autism. Cambridge, MA: Basic Books; 2007.Google Scholar
Howlin P, Moore A. Diagnosis in autism: a survey of over 1200 patients in the UK. Autism. 1997;1:135–62.CrossRefGoogle Scholar
Keen D, Ward S. Autistic spectrum disorder: a child population profile. Autism. 2004;8:39–48.PubMedCrossRefGoogle Scholar
Latif A, Williams W. Diagnostic trends in autistic spectrum disorders in the South Wales valleys. Autism. 2007;11:479–87.PubMedCrossRefGoogle Scholar
Mandell D, Novak M, Zubritsky C. Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics. 2005;116:1480–6.PubMedCrossRefGoogle Scholar
Meadel C. Le spectre “psy” réordonné par des parents d’enfants autiste: l’étude d’un cercle de discussion électronique. Politix. 2006;73:57–82.CrossRefGoogle Scholar
Novas S. The political economy of hope: patients’ organizations, science and biovalue. Biosocieties. 2006;1:289–305.CrossRefGoogle Scholar
Rose N. The politics of life itself: biomedicine, power, and subjectivity in the twenty-first century. Princeton, New Jersey: Princeton University Press; 2006.Google Scholar
Siklos S, Kerns K. Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders. Res Dev Disabil. 2007;28:9–22.PubMedCrossRefGoogle Scholar
Thévenot JP, Philippe A, Casadebaig F. Accès aux institutions des enfants et adolescents avec TED: une étude de cohorte en Ile-de-France de 2002 à 2007. Paris: John Libbey Eurotext; 2008.Google Scholar
Valentine K. A consideration of medicalisation: choice, engagement and other responsibilities of parents of children with autism spectrum disorder. Soc Sci Med. 2010;71:950–7.PubMedCrossRefGoogle Scholar
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