
Volume 27, issue 1, January 2018
Special Section: Measuring What Matters
- Issue editors
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- Steven I. Blum
- Sara Ahmed
- Emuella Flood
- Frans J. Oort
- Carolyn E. Schwartz
26 articles in this issue
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Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development
Authors (first, second and last of 8)
- Hilary Wilson
- Ebony Dashiell-Aje
- Kathy Wyrwich
- Content type: Special Section: Measuring What Matters (by invitation only)
- Published: 19 April 2017
- Pages: 5 - 16
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Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute
Authors (first, second and last of 5)
- Laura Forsythe
- Andrea Heckert
- Lori Frank
- Content type: Special Section: Measuring What Matters (by invitation only)
- Open Access
- Published: 12 May 2017
- Pages: 17 - 31
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Moving from significance to real-world meaning: methods for interpreting change in clinical outcome assessment scores
Authors
- Cheryl D. Coon
- Karon F. Cook
- Content type: Special Section: Measuring What Matters (by invitation only)
- Published: 15 June 2017
- Pages: 33 - 40
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Prioritizing research topics: a comparison of crowdsourcing and patient registry
Authors (first, second and last of 11)
- Anjali R. Truitt
- Sarah E. Monsell
- Danielle C. Lavallee
- Content type: Special Section: Measuring What Matters (by invitation only)
- Published: 05 April 2017
- Pages: 41 - 50
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Development of a care guidance index based on what matters to patients
Authors (first, second and last of 5)
- John H. Wasson
- Laura Soloway
- Lynn Ho
- Content type: Special Section: Measuring What Matters (by invitation only)
- Published: 11 April 2017
- Pages: 51 - 58
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Measuring what matters MOST: validation of the Measure of Ovarian Symptoms and Treatment, a patient-reported outcome measure of symptom burden and impact of chemotherapy in recurrent ovarian cancer
Authors (first, second and last of 20)
- Madeleine T. King
- Martin R. Stockler
- for the GCIG Symptom Benefit group
- Content type: Special Section: Measuring What Matters (by invitation only)
- Published: 16 December 2017
- Pages: 59 - 74
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Presenting comparative study PRO results to clinicians and researchers: beyond the eye of the beholder
Authors (first, second and last of 7)
- Michael Brundage
- Amanda Blackford
- PRO Data Presentation Stakeholder Advisory Board (various names and locations)
- Content type: OriginalPaper
- Open Access
- Published: 02 November 2017
- Pages: 75 - 90
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Self-rated health as a predictor of mid-term and long-term mortality in older Afro-Caribbeans hospitalised via the emergency department
Authors (first, second and last of 7)
- Lidvine Godaert
- C. Godard-Sebillotte
- M. Dramé
- Content type: OriginalPaper
- Published: 01 September 2017
- Pages: 91 - 96
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Prevalence of patient-reported gastrointestinal symptoms and agreement with clinician toxicity assessments in radiation therapy for anal cancer
Authors (first, second and last of 5)
- Ashlyn Tom
- Antonia V. Bennett
- Karyn A. Goodman
- Content type: OriginalPaper
- Published: 07 September 2017
- Pages: 97 - 103
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Effects of risk factors for and components of metabolic syndrome on the quality of life of patients with systemic lupus erythematosus: a structural equation modeling approach
Authors (first, second and last of 15)
- Jeong-Won Lee
- Ji-Hyoun Kang
- Shin-Seok Lee
- Content type: OriginalPaper
- Published: 22 August 2017
- Pages: 105 - 113
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Health-related quality of life and its determinants in patients with metastatic renal cell carcinoma
Authors (first, second and last of 7)
- S. de Groot
- W. K. Redekop
- C. A. Uyl-de Groot
- Content type: OriginalPaper
- Open Access
- Published: 15 September 2017
- Pages: 115 - 124
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Everyday life following hematopoietic stem cell transplantation: decline in physical symptoms within the first month and change-related predictors
Authors
- Aleksandra Kroemeke
- Małgorzata Sobczyk-Kruszelnicka
- Zuzanna Kwissa-Gajewska
- Content type: OriginalPaper
- Open Access
- Published: 12 September 2017
- Pages: 125 - 135
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Combat exposure, emotional and physical role limitations, and substance use among male United States Army Reserve and National Guard soldiers
Authors (first, second and last of 4)
- R. A. Hoopsick
- B. M. Vest
- G. G. Homish
- Content type: OriginalPaper
- Published: 18 September 2017
- Pages: 137 - 147
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Assessing health-related quality of life in patients with breast cancer: a reply to Maratia et al
Authors (first, second and last of 6)
- Karin Ribi
- Alan Coates
- Jürg Bernhard
- Content type: Commentary
- Published: 05 September 2017
- Pages: 149 - 152
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The relationship of five boarding school experiences and physical health status among Northern Plains Tribes
Authors (first, second and last of 6)
- Ursula Running Bear
- Calvin D. Croy
- The AI-SUPERPFP Team
- Content type: Brief Communication
- Published: 18 November 2017
- Pages: 153 - 157
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Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
Authors (first, second and last of 9)
- P. F. Limperg
- L. Haverman
- M. A. Grootenhuis
- Content type: OriginalPaper
- Open Access
- Published: 12 September 2017
- Pages: 159 - 171
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How is weight stigma related to children’s health-related quality of life? A model comparison approach
Authors
- Veronica Guardabassi
- Alberto Mirisola
- Carlo Tomasetto
- Content type: OriginalPaper
- Published: 07 September 2017
- Pages: 173 - 183
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The roles of physical activity and sedentary behavior on Hispanic children’s mental health: a motor skill perspective
Authors (first, second and last of 4)
- Xiangli Gu
- M. Jean Keller
- Tao Zhang
- Content type: OriginalPaper
- Published: 16 August 2017
- Pages: 185 - 193
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Perceived medication adherence barriers mediating effects between gastrointestinal symptoms and health-related quality of life in pediatric inflammatory bowel disease
Authors (first, second and last of 15)
- James W. Varni
- Robert J. Shulman
- On Behalf of the Pediatric Quality of Life Inventory™ Gastrointestinal Symptoms Module Testing Study Consortium
- Content type: OriginalPaper
- Published: 08 September 2017
- Pages: 195 - 204
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Physical activity and health-related quality of life among schoolchildren from disadvantaged neighbourhoods in Port Elizabeth, South Africa
Authors (first, second and last of 9)
- Marina Salvini
- Stefanie Gall
- Markus Gerber
- Content type: OriginalPaper
- Published: 30 September 2017
- Pages: 205 - 216
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Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions
Authors (first, second and last of 9)
- Christopher B. Forrest
- Janine Devine
- Ulrike Ravens-Sieberer
- Content type: OriginalPaper
- Published: 21 August 2017
- Pages: 217 - 234
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Differential item functioning by language on the PROMIS® physical functioning items for children and adolescents
Authors (first, second and last of 5)
- Ron D. Hays
- José Luis Calderón
- Sylvia H. Paz
- Content type: OriginalPaper
- Published: 05 September 2017
- Pages: 235 - 247
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Assessing responsiveness over time of the PROMIS® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease
Authors (first, second and last of 12)
- Bryce B. Reeve
- Lloyd J. Edwards
- Darren A. DeWalt
- Content type: OriginalPaper
- Published: 07 September 2017
- Pages: 249 - 257
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Assessing the measurement invariance of the Brief Multidimensional Students’ Life Satisfaction Scale in Chinese and American adolescents
Authors (first, second and last of 5)
- Yifang Zeng
- Yu Ling
- Peng Fu
- Content type: OriginalPaper
- Published: 14 August 2017
- Pages: 259 - 266
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Cross-cultural adaptation and validation of the Danish version of the Short Musculoskeletal Function Assessment questionnaire (SMFA)
Authors (first, second and last of 6)
- Marianne Lindahl
- Signe Andersen
- Eirikur Benedikz
- Content type: Brief Communication
- Published: 04 July 2017
- Pages: 267 - 271
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