Truth and dare: patients dare to tell the truth when using PROMs in clinical practice Lotte HavermanMichiel A. J. LuijtenClaire Snyder OriginalPaper Open access 03 October 2024
A pilot cross-sectional investigation of symptom clusters and associations with patient-reported outcomes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post COVID-19 Condition Breanna WeigelNatalie Eaton-FitchSonya Marshall-Gradisnik OriginalPaper Open access 03 October 2024
Significant individual change should be used as a lower bound for anchor based estimates of meaningful change on patient-reported outcome scores John Devin PeipertDavid CellaRon D. Hays Commentary Open access 28 September 2024
Correction: Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery Amy M. O’ConnorAmy CassedyBradley S. Marino Correction 26 September 2024
Quality of life impacts associated with comorbid insomnia and depression in adult population Phuong Hong LeLong Khanh-Dao LeCathrine Mihalopoulos OriginalPaper Open access 26 September 2024
Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care James CaielsStacey RandAnn-Marie Towers OriginalPaper Open access 26 September 2024
Exploration of the association between new “Life’s Essential 8” with hyperuricemia and gout among US adults Yingdong HanHong DiXuejun Zeng OriginalPaper Open access 21 September 2024
Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care Eva BoomstraIris WalravenKelly M. de Ligt OriginalPaper 20 September 2024
Quality of life of women with a screen-detected versus clinically detected breast cancer in the Netherlands: a prospective cohort study Abyan IrzaldyJohannes D. M. OttenMireille J. M. Broeders OriginalPaper Open access 17 September 2024
The impact of demographic change on value set validity and obsolescence Marcel F. Jonker OriginalPaper Open access 13 September 2024
The performance relationship between the EQ-5D-5L composite “Anxiety/Depression” dimension and anxiety and depression symptoms in a large, general population sample Emily Stella ScottErica I. LubetkinJuanita A. Haagsma OriginalPaper Open access 13 September 2024
The effect of social care nurses on health related quality of life in patients with advanced cancer: A non-randomized, multicenter, controlled trial Daniel SchindelJohann FrickLiane Schenk OriginalPaper Open access 13 September 2024
Chinese utility weights for the EORTC cancer-specific utility instrument QLU-C10D Yiyin CaoJuan XuNan Luo OriginalPaper 13 September 2024
The association of the comorbidity status of metabolic syndrome and cognitive dysfunction with health-related quality of life Yi-Hsuan LinHsiao-Ting ChangShinn-Jang Hwang OriginalPaper 13 September 2024
Correction: Development of algorithms for estimating the Child Health Utility 9D from Caregiver Priorities and Child Health Index of Life with Disabilities Utsana TonmukayakulKate WilloughbyGang Chen Correction Open access 12 September 2024
Twenty-five years of experience with patient-reported outcome measures in soft-tissue sarcoma patients: a systematic review Jasmijn D. GeneraalMarnix R. JansenBarbara L. van Leeuwen Review Open access 11 September 2024
Screening for depression in patients with epilepsy: same questions but different meaning to different patients Olayinka I. ArimoroColin B. JosephsonTolulope T. Sajobi OriginalPaper 09 September 2024
Using a modified Delphi procedure to select a PRO-CTCAE-based subset for patient-reported symptomatic toxicity monitoring in rectal cancer patients Yvonne M. GeurtsFemke PetersIris Walraven OriginalPaper Open access 08 September 2024
Symptom clusters and impact on quality of life in lung cancer patients undergoing chemotherapy Yuanyuan LuoLe ZhangLili Zhang OriginalPaper Open access 06 September 2024
The SMILE scale: a wellness behavioral tool for patients with cancer Laura B. VaterAli AjrouchNasser H. Hanna OriginalPaper 04 September 2024
Health-related quality of life and caregiver burden of pediatric patients with inborn errors of metabolism in Japan using EQ-5D-Y, PedsQL, and J-ZBI Keiko KonomuraChikahiko NumakuraTakashi Fukuda OriginalPaper Open access 04 September 2024
Development and preliminary validation of a diagnostic prediction model to optimise outpatient management of patients with urolithiasis using urinary stones and intervention quality of life (USIQoL) measure Ruth C. JarvisPhilip PallmannHrishikesh Joshi OriginalPaper 03 September 2024 Pages: 2809 - 2818
Assessing the reliability of a novel cancer-specific multi-attribute utility instrument (FACT-8D) and comparing its validity to EQ-5D-5L in colorectal cancer patients Yiyin CaoHuan ZhangWeidong Huang OriginalPaper 03 September 2024
Psychometric properties of patient-reported outcome measures assessing recovery from hand fractures: a systematic review Christos MousoulisAndrew D. FirthJoel J. Gagnier OriginalPaper 31 August 2024
A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values Marina ZeldovichLeonie KrolNicole von Steinbuechel OriginalPaper Open access 31 August 2024
A framework for best practices in clinical outcome assessment (COA) concept mapping: a case study Meaghan O’ConnorLynne BroderickMichelle Carty OriginalPaper Open access 29 August 2024
He/She/They - gender inclusivity in developing and using health-related questionnaires: a scoping review Desiree ScottSarah DerrettCassie Withey-Rila Review Open access 29 August 2024
Correction: Introduction and validation of the open symptom framework: a public domain modular framework for patient-reported measurement of symptoms related to cancer and its treatment C. GibbonsG. BrownC. Swisher Correction Open access 28 August 2024 Pages: 2359 - 2359
COSMIN guideline for systematic reviews of patient-reported outcome measures version 2.0 Lidwine B. MokkinkEllen B.M. ElsmanCaroline B. Terwee OriginalPaper Open access 28 August 2024
Correction: Development of an ultra-short measure of eight domains of health-related quality of life for research and clinical care: the patient-reported outcomes measurement information systemⓇ PROMISⓇ-16 profile Maria Orlando EdelenChengbo ZengPatricia M. Herman Correction Open access 27 August 2024
Agreement between patient- and proxy-reported outcome measures in adult musculoskeletal trauma and injury: a scoping review Jochem H. RaatsNoa H. M. PondsM. J. Weaver Review 23 August 2024
A systematic review of health state utility values for older people with acute myeloid leukaemia Elise ButtonHannah CarterNikki McCaffrey Review Open access 22 August 2024
Effect of present state bias on minimal important change estimates: a simulation study Berend TerluinPiper FromyJakob B. Bjorner OriginalPaper Open access 22 August 2024
Life's Essential 8 and its association with osteoarthritis and disability: a cross-sectional study based on the NHANES 2005–2018 database Mi ChenYuebai ChenChao Li OriginalPaper 21 August 2024
Interdisciplinary provider visits attenuate relationship between patient concerns and distress in older adults with cancer Kelly M. McConnellAlexandra K. ZaletaMelissa Miller OriginalPaper 20 August 2024
Association between stigma and quality of life among chronic refractory wounds patients and informal caregivers: an actor-partner interdependence model analysis Ming ChengChenya ZhuHuan Liu OriginalPaper 20 August 2024
Correction: Measuring what matters to older persons for active living: part II cross-sectional validity evidence for OPAL measure across four countries Nancy E. MayoMohammad AuaisAyse Kuspinar Correction 19 August 2024 Pages: 2675 - 2676
Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis Arto OhinmaaJiabi WenDeborah A. Marshall OriginalPaper Open access 14 August 2024 Pages: 2677 - 2691
Comparing patient-reported outcomes measurement information system® (PROMIS®)-16 domain scores with the PROMIS-29 and 5-item PROMIS cognitive function scores Chengbo ZengRon D. HaysMaria Orlando Edelen OriginalPaper Open access 14 August 2024
Response processes for patients providing quantitative self-report data: a qualitative study Øyvind GrindheimAndrew McAleaveyHeidi Brattland OriginalPaper Open access 14 August 2024
Living with faecal incontinence: a qualitative investigation of patient experiences and preferred outcomes through semi-structured interviews S. L. AssmannD. KeszthelyiM. L. Kimman OriginalPaper Open access 14 August 2024
Analyzing quality of life among people with opioid use disorder from the National Institute on Drug Abuse Data Share initiative: implications for decision making Thomas PattonJan R. BoehnkeAnnick Borquez OriginalPaper Open access 08 August 2024 Pages: 2783 - 2796
Health-related quality of life in psychiatric outpatients: a cross-sectional study of associations with symptoms, diagnoses, and employment status Audun HavnenMartin Schevik LindbergStian Solem OriginalPaper Open access 07 August 2024
A systematic review of quality of life (QoL) studies using the CASP scale in older adults Gabriela L. Frias-GoytiaCristina Lojo-SeoaneArturo X. Pereiro Review 07 August 2024
Comprehensive assessment of pain characteristics, quality of life, and pain management in cancer patients: a multi-center cross-sectional study Sunil ShresthaSimit SapkotaSiew Hua Gan OriginalPaper Open access 06 August 2024 Pages: 2755 - 2771
Health-related quality of life is an independent predictor of mortality and hospitalisations in transthyretin amyloid cardiomyopathy: a prospective cohort study Michael PoledniczekChristina KronbergerRoza Badr Eslam OriginalPaper Open access 06 August 2024 Pages: 2743 - 2753
Using a measurement type-independent metric to compare patterns of determinants between patient-reported versus performance-based physical function in hemodialysis patients Gregor LieglFelix H. Fischerthe CONVINCE Scientific Committee OriginalPaper Open access 05 August 2024
Sleep quality in cancer patients: a common metric for several instruments measuring sleep quality Michael FriedrichThomas SchulteAndreas Hinz OriginalPaper Open access 05 August 2024
Patient engagement in quality of life research Natasha RobertsSandra ZelinskyCurrent Co-Chairs for the Patient Engagement Special Interest Group for the International Society for Quality of Life Commentary Open access 03 August 2024 Pages: 2781 - 2782
