Correction to: Orphanet J Rare Dis (2021) 16:104 https://doi.org/10.1186/s13023-021–01729-0

Following the publication of the original article [1] the authors requested to update their funding declarations as follows:

This research has been partially funded by Kyowa Kirin Farmacéutica S.L.U., project PI17/01745 from Instituto de Salud Carlos III, Acción Estratégica en Salud 2017–2020 and FEDER funds, Fondo de Investigaciones Sanitarias (FIS), Fundación Nutrición y Crecimiento (FUNDNYC), Instituto de Investigación Sanitaria del Principado de Asturias (ISPA) and Fundación para la Investigación y la Innovación Biosanitaria del Principado de Asturias (FINBA).

The Funding section has also been updated in the original article.