Comparative characteristic of quality of life with patients suffering from juvenile idiopathic arthritis (JIA), attending school and taught at home

Objective

To compare the quality of life with patients suffering from JIA, attending school and taught at home.

Material

Basing on data of 99 patients 14-17 old with JIA boys/girls - 27%/73%, 1- group of children attending school 62 (63%), 2 – 37 patients taught at home; among whom - 20 (group 2A) on medical indications; 17 (group 2B) at will of the patient and parents. 1^st group (syst. variant-14%, poly-50%, oligo-20% , SA-16%), 2^nd group - (syst-27%, poly-49%, oligo-11%., SA-13%), 2-A (syst-40%, poly-50%, oligo-5%, CA-5%), 2B- (syst-11%, poly-47%, oligo-18%. SA-24%).

Methods

Questionnaire: SF-36, EQ-5D, HAQ, CHAQ; Kettel, author's method of social activity, Spielberger-Khanin scale; Visual analogue scale (VAS) – assessment of pain, VAS – global evaluation of health, Well-Being Index (WHO-5)

Results

VAS of pain ( 23*, 35, 34, 40* mm; p=0,000).

SF-36.PF 1^st group-77, 2^nd group-54, 2A-55, 2B-56; RP- 1gr -62, 2 - 48, 2A - 50, 2B - 50); BP: 70, 47, 57, 37; p=0.07), GH: (57*,43, 52, 37*; p=0.018; VT: 64, 51, 60,42 p=0.014; SF: 76*, 59, 65, 55*; p=0.004; RE: 77*, 70, 22*, 61; p=0.015; MH: 69*, 61, 62, 40*; p=0.035 . * - the difference is statistically reliable.

EQ-5D: 1.5; 1.6; 1.5; 1.3; VAS – global evaluation of health (76 , 57, 52, 64 mm).

HAQ, CHAQ: 0.3* ; 0.9; 1.12*: 0.6.p=0.02

WHO-5 (Norm >13): (15.4; 13.5; 14.2; 13).

Regular communication with equals in age: 1^st group -82%; 2^nd group - 43%; 2A group - 40%; 2B group 45%

Attendance of cultural events at least once a month in the 1^st group - 50%, in the 2^nd group, 30%, 2A group - 20%, 2B group -36%.

Communication disorders: 1^st group - 68%; 2^nd group - 80%, 2A-77%, 2B-72%; fears: 26%, 43%, 46%, 54%. Family stress: 71%, 40%, 38%, 36%.

Conclusion

The quality of life was higher with children attending school and considerably lower with children groundlessly taught at home.