Abstract
Early detection and prevention of birth defects is necessary to further reduce neonatal morbidity and mortality. A birth defect registry or surveillance system is necessary to assess the exact magnitude, profile and modifiable risk factors for birth defects. We review the existing efforts and suggest possible options for addressing this important issue. Connecting birth defects registry with the pre-existing programs such as National Neonatal Perinatal Database could be one of the option.
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Christianson A, Howson CP, Modell CB. March of Dimes Global Report on Birth Defects: The Hidden Toll of Dying and Disabled Children. The March of Dimes. 2006. Available from: http://www.marchofdimes.com/materials/global-report-on-birth-defects-the-hidden-tollof-dying-and-disabled-children-executive-summary.pdf. Accesssed January 5,2014.
Agarwal SS, Singh U, Singh PS, Singh SS, Das V, Sharma A, et al. Prevalence and spectrum of congenital malformations in a prospective study at a teaching hospital. Indian J Med Res. 1991;94:413–9.
Taksande A, Vilhekar K, Chaturvedi P, Jain M. Congenital malformations at birth in Central India: A rural medical college hospital based data. Indian J Hum Genet. 2010;16:159–63.
Bhat BV, Babu L. Congenital malformations at birth — a prospective study from south India. Indian J Pediatr. 1998;65:873–81.
Chaturvedi P, Banerjee KS. An epidemiological study of congenital malformations in newborn. Indian J Pediatr. 1993;60:645–53.
Stoll C, Alembik Y, Roth MP, Dott B. Parental consanguinity as a cause for increased incidence of births defects in a study of 238,942 consecutive births. Ann Genet. 1999;42:133–9.
Bhide P, Sagoo GS, Moorthie S, Burton H, Kar A. Systematic review of birth prevalence of neural tube defects in India. Birth Defects Res A Clin Mol Teratol. 2013;97:437–43.
Capacity Building for Birth Defect Surveillance in South East Asia. Report of the Regional Workshop on Birth Defects Surveillance. April 2012. Available from: http://www.searo.who.int/entity/child_adolescent/documents/sea_cah_10/en/. Accesssed Febuary 8,2014.
Centers for Disease Control (CDC). Updated guidelines for evaluating public health surveillance systems: Recommen-dations from the guidelines working group. MMWR. 2001;50:1–30.
Report of National Neonatal Perinatal Database (NNPD) 2002-2003. Available from: http://www.newbornwhocc. org/nnpo.html. Accesssed January 20, 2014.
Sankar VH, Phadke SR. Clinical utility of fetal autopsy and comparison with prenatal ultrasound findings. J Perinatol. 2006;26:224–9.
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Gupta, N., Kabra, M. & Kapoor, S. Establishing national neonatal perinatal database and birth defects registry network — Need of the hour!. Indian Pediatr 51, 693–696 (2014). https://doi.org/10.1007/s13312-014-0483-z
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DOI: https://doi.org/10.1007/s13312-014-0483-z