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Evaluation of Acceptance and Commitment Therapy (ACT) for Mothers of Children and Youth with Autism SpectrumDisorder

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Abstract

Mothers of children with autism spectrum disorder (ASD) often face high levels of stress. While there have been interventions for parents of children with ASD targeting their parenting skills, there have been fewer studies that aim to target the psychological or physical well-being of the mothers themselves. This study included mothers of children with ASD to cofacilitate acceptance and commitment therapy (ACT) to other mothers of children with ASD. The intervention consisted of one evening session and a full-day workshop, followed by a refresher session 1 month later. Of the 33 mothers that enrolled in the study, 29 attended all three sessions and completed the outcome measures. Significant changes were observed over time in terms of depression, stress, social isolation and physical health scores. Post hoc analyses showed reductions in stress and depression and improvements in physical health which were maintained at follow-up. Results suggest that a brief parent-facilitated ACT group intervention may be effective in improving the mental and physical health of mothers of children with ASD.

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References

  • Abidin, R. R. (1995). Parenting stress index (PSI). Charlottesville: Pediatric Psychology Press.

    Google Scholar 

  • Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28, 1–18.

    Article  Google Scholar 

  • Cachia, R. L., Anderson, A., & Moore, D. W. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: a systematic review. Journal of Child and Family Studies, 25, 1–14.

    Article  Google Scholar 

  • Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134, e454–e463. https://doi.org/10.1542/peds.2013-3164.

    Article  PubMed  PubMed Central  Google Scholar 

  • Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387.

    Article  PubMed  Google Scholar 

  • Fung, K. P., & Zurowski, M. (2008). ACT vs CBT groups for treatment of chronic pain in Toronto. Chicago: Acceptance and Commitment Therapy Summer Institute IV.

    Google Scholar 

  • Fung, K. P., & Zurowski, M. (2016). Chair sculpture of suffering exercise. In A. Peterkin & P. Brett-McLean (Eds.), Keeping reflection fresh: top educators share their innovations in health professional education. Kent: Kent State Press.

    Google Scholar 

  • Fung, K. P., Li, A., Wong, J., Kapac, J., Murray, J., Luyombya, H., Miao, A., Abdulghani, O., Desbien, M., Ongoiba, F., & Zurowski, M. (2011). Addressing HIV-related stigma: the possibilities in using acceptance commitment therapy (ACT). Toronto: OHTN Research Conference.

    Google Scholar 

  • Fung, K. P., Lunsky, Y., Steel, L., Bryce, K., & Lake, J. (2017). Using acceptance and commitment therapy for parents with children with autism spectrum disorder. In K. Guastaferro & J. Lutzker (Eds.), Evidence-based parenting programs for parents of children with autism and intellectual or developmental disabilities. London: Jessica Kingsley Publishers (in press).

  • Grossman, P., Niemann, L., Schmidt, S., & Walach, H. (2004). Mindfulness-based stress reduction and health benefits: a meta-analysis. Journal of Psychosomatic Research, 57, 35–43.

    Article  PubMed  Google Scholar 

  • Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (1999). Acceptance and commitment therapy: an experiential approach to behavior change. New York: Guilford.

    Google Scholar 

  • Henry, J. D., & Crawford, J. R. (2005). The short-form version of the Depression Anxiety Stress Scales (DASS-21): construct validity and normative data in a large non-clinical sample. British Journal of Clinical Psychology, 44, 227–239.

    Article  PubMed  Google Scholar 

  • Joekar, S., Farid, A. A., Birashk, B., Gharraee, B., & Mohammadian, M. (2016). Effectiveness of acceptance and commitment therapy in the support of parents of children with high-functioning autism. International Journal of Humanities and Cultural Studies, 2, 2763–2772.

    Google Scholar 

  • Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: past, present, and future. Clinical Psychology: Science and Practice, 10, 144–156.

    Google Scholar 

  • Losada, A. S., Marquez-Gonzalez, M. A., Romero-Moreno, R., Mausbach, B. T., Lopez, J., Fernandez-Fernandez, V., & Nogales-Gonzalez, C. (2015). Cognitive-behavioral therapy (CBT) versus acceptance and commitment therapy (ACT) for dementia family caregivers with significant depressive symptoms: Results of a randomized clinical trial. Journal of Consulting and Clinical Psychology, 83, 760–772.

    Article  PubMed  Google Scholar 

  • Lunsky, Y., Fung, K., & Zurowski, M. (2012). Acceptance and commitment therapy (ACT) for parents of youth with autism spectrum disorders: preliminary findings. Journal of Intellectual Disability Research, 56(7–8), 743–748.

  • Miodrag, N., & Hodapp, R. M. (2010). Chronic stress and health among parents of children with intellectual and developmental disabilities. Current Opinion in Psychiatry, 23, 407–411.

    Article  PubMed  Google Scholar 

  • Neece, C. L., & Lima, E. J. (2016). Interventions for parents of people with intellectual disabilities. Current Developmental Disorders Reports, 3, 124–128.

    Article  Google Scholar 

  • Poddar, S., Sinha, V., & Urbi, M. (2015). Acceptance and commitment therapy on parents of children and adolescents with autism spectrum disorders. International Journal of Educational and Psychological Researches, 1, 221.

    Article  Google Scholar 

  • Reid, C., Gill, F., Gore, N., & Brady, S. (2016). New ways of seeing and being: evaluating an acceptance and mindfulness group for parents of young people with intellectual disabilities who display challenging behaviour. Journal of Intellectual Disabilities, 20, 5–17. https://doi.org/10.1177/1744629515584868.

    Article  PubMed  Google Scholar 

  • Singer, G. H., Marquis, J., Powers, L. K., Blanchard, L., DiVenere, N., Santelli, B., et al. (1999). A multi-site evaluation of parent to parent programs for parents of children with disabilities. Journal of Early Intervention, 22, 217–229.

    Article  Google Scholar 

  • Taylor, J. L., & Warren, Z. E. (2012). Maternal depressive symptoms following autism spectrum diagnosis. Journal of Autism and Developmental Disorders, 42, 1411–1418.

    Article  PubMed  Google Scholar 

  • The Change Foundation. (2015). Out of the shadows and into the circle: from listening and learning to action. Retrieved from http://www.changefoundation.ca/stories-shared-family-caregiver-report/.

  • Whittingham, K. (2014). Parents of children with disabilities, mindfulness and acceptance: a review and a call for research. Mindfulness, 5, 704–709.

    Article  Google Scholar 

  • Whittingham, K., Sanders, M. R., McKinlay, L., & Boyd, R. N. (2016). Parenting intervention combined with acceptance and commitment therapy: a trial with families of children with cerebral palsy. Journal of Pediatric Psychology, 41, 531–542. https://doi.org/10.1093/jpepsy/jsv118.

    Article  PubMed  Google Scholar 

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Authors and Affiliations

Authors

Contributions

YL co-designed and executed the study, led the data analyses, and wrote the paper. KF co-designed the study, designed and co-facilitated the intervention, and collaborated in the interpretation and writing of the study. JL collaborated with the design and assisted with the data collection, analysis, and interpretation and writing of the study. LS and KB collaborated with the design, co-facilitated the parent groups, and collaborated in the writing and editing of the final manuscript. This study was funded by the Women’s Health XChange, a provincial program housed at Women’s College Hospital, Canada.

Corresponding author

Correspondence to Kenneth Fung.

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The authors declare that they have no conflict of interest.

Ethics Statement

This study was approved by the institutional IRBs at the University Health Network and Surrey Place Centre.

Informed Consent

Informed consent was obtained from all participants included in this study.

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Lunsky, Y., Fung, K., Lake, J. et al. Evaluation of Acceptance and Commitment Therapy (ACT) for Mothers of Children and Youth with Autism SpectrumDisorder. Mindfulness 9, 1110–1116 (2018). https://doi.org/10.1007/s12671-017-0846-3

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  • DOI: https://doi.org/10.1007/s12671-017-0846-3

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