Abstract
This article assesses the potential impact of current genomics research on human rights against the backdrop of the eugenics movement in the English-speaking world during first third of the twentieth century, The echo of eugenic interventions in societies far beyond Nazi Germany reverberates in the ethical debates triggered by the potential inherent in recent molecular biological developments. Mandatory eugenic restrictions of reproductive freedom seem less likely in countries committed to civil liberties than under authoritarian governments. More likely, consumer choice might sustain a trend towards voluntary “improvement” of biological inheritance in the future. However, the increasing availability of genetic information and the patenting of human genes may lead, respectively, to a loss of reproductive autonomy and a reduction in equitable access to medical care; hence new regulations and/or legislation may be required to ensure appropriate control over genetic information and use of intellectual property rights in human genes.
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References
Adams, Mark B. ed. 1990. The well-born science: Eugenics in Germany, France, Brazil, and Russia. New York: Oxford University Press.
Allen, Garland. 1986. The Eugenics Record Office at Cold Spring Harbor, 1910–1940: An Essay in Institutional History. Osiris (Second Series) 2: 225–264.
Andrews, Lori. 2002. Genes and patent policy: Rethinking Intellectual Property Rights. Nature Reviews Genetics 3: 803–806.
Bishop, Joseph, and Michael Waldholz. 1990. Genome: The story of the most astonishing scientific adventure of our time––the attempt to map all the genes in the human body. New York: Simon and Schuster.
Broberg, Gunnar, and Nils Roll-Hansen. eds. 1996. Eugenics and the welfare state: Sterilization policy in Denmark, Sweden, Norway, and Finland. East Lansing: Michigan State University Press.
Brunius, Harry. 2006. Better for all the world: The secret history of forced sterilization and America’s quest for racial purity. New York: Alfred A. Knopf.
Cassier, Maurice. 2002. Private property, collective property, and public property in the age of genomics. International Social Science Journal 171: 88–90.
Committee on Intellectual Property Rights in Genomic and Protein Research and Innovation, Board on Science, Technology, and Economic Policy, Committee on Science, Technology, and Law, Policy, and Global Affairs, National Research Council. 2005. Reaping the benefits of genomic and proteomic research: Intellectual Property Rights, Innovation, and Public Health. Washington, D.C.: The National Academies Press.
European Parliament. 1998 Committee on Energy, Research, and Technology. 1989–1991. Report… on the Proposal… for a Decision Adopting a Specific Research Programme in the Field of Health: Predictive Medicine: Human Genome Analysis.
Galton, Francis. 1883. Inquiries into the human faculty. London: Macmillan.
Gillham, Nicholas Wright. 2001. A life of Sir Francis Galton: From African exploration to the birth of eugenics. New York: Oxford University Press.
Gould, Steven Jay. 1985. The Flamingo’s smile: Reflections in natural history. New York: W. W. Norton.
Hodgson, John. 1989. Editorial: Geneticism and freedom of choice. Trends in Biotechnology September: 221.
Kevles, Daniel J. 1995. In the name of eugenics: Genetics and the uses of human heredity. Cambridge: Harvard University Press.
Kevles, Daniel J. 1998. Eugenics in north America. In Essays in the history of eugenics, ed. Robert A. Peel, 208–226. London: The Galton Institute.
Kevles, Daniel J. 2008. Genes, disease, and patents: Cash and community in biomedicine. In Biomedicine in the Twentieth century: Practices, policies, and politics, ed. Caroline Hannaway, 203–216. Amsterdam: IOS Press.
Kühl, Stefan. 1994. The Nazi connection: Eugenics, American Racism, and German National Socialism. New York: Oxford University Press.
La Vie En Kit, 1991. Éthique et Biologie. Paris: L’Arche de la Defense.
Larson, Edward J. 1995. Sex, race, and science: Eugenics in the deep south. Baltimore: The Johns Hopkins University Press.
Lombardo, Paul. 2008. Three generations, no imbeciles: Eugenics, the supreme court, and Buck v. Bell. Baltimore: Johns Hopkins University Press.
McLaren, Angus. 1990. Our own master race: Eugenics in Canada, 1885–1945. Toronto: McClelland & Stewart.
Paul, Diane B. 1995. Controlling human heredity, 1865 to the present. New York: Humanity Books.
Proctor, Robert. 1988. Racial hygiene: Medicine under the Nazis. Cambridge: Harvard University Press.
Reilly, Philip. 1991. The surgical solution: A history of involuntary sterilization in the United States. Baltimore: Johns Hopkins University Press.
Stepan, Nancy L. 1991. The hour of eugenics: Race, gender, and nation in Latin America. Ithaca: Cornell University Press.
U.S. Supreme Court, Buck v. Bell. 1927. 274 U.S. 201-7.
Wright, Robert. 1990. Achilles Helix. The New Republic, 203(July 9 & 16): 27.
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An erratum to this article can be found at http://dx.doi.org/10.1007/s12376-010-0045-1
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Kevles, D.J. Eugenics, the Genome, and Human Rights. Medicine Studies 1, 85–93 (2009). https://doi.org/10.1007/s12376-009-0010-z
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DOI: https://doi.org/10.1007/s12376-009-0010-z