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Patient-Perceived Self-Management Tasks and Support Needs of People with Chronic Illness: Generic or Disease Specific?

  • Original Article
  • Published:
Annals of Behavioral Medicine

Abstract

Background

Self-management is widely accepted as an essential component of chronic care. Nevertheless, little is known about patients’ perceptions of self-management.

Purpose

This study aims to explore which self-management tasks and support needs people with chronic illness perceive for themselves, and to establish whether these tasks and support needs are disease specific.

Methods

A nationwide representative sample of 2,064 people with chronic disease filled in the Patient Assessment of Self-management Tasks questionnaire.

Results

Many respondents perceive self-management tasks in the daily management of their condition, although few indicate a need for support. Respondents who feel a need for support in one aspect of self-management are likely to feel a need for support in other aspects as well. Type of disease has a small effect on self-management tasks and even smaller on support needs.

Conclusion

Although the self-management tasks patients perceive may be partly disease specific, self-management support does not necessarily need to be disease specific.

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Acknowledgments

The authors thank all people who responded to the questionnaires.

Support

This study formed part of the research program “National Panel of people with Chronic illness or Disability”, which is financed by the Netherlands Ministry of Public Health, Welfare and Sports and the Netherlands Ministry of Social Affairs and Employment. This study is part of a PhD project that is financed by the Netherlands Ministry of Education, Culture and Science.

Authors’ Statement of Conflict of Interest and Adherence to Ethical Standards

Lieke van Houtum, Monique Heijmans, Mieke Rijken, and Peter Groenewegen declare that they have no conflict of interest. All procedures, including the informed consent process, were conducted in accordance with the Helsinki Declaration of 1975, as revised in 2000. According to the Dutch Medical Research Involving Human Subjects Act, this study does not require ethics approval.

Author information

Authors and Affiliations

  1. Netherlands Institute for Health Services Research (NIVEL), PO Box 1568, 3500 BN, Utrecht, Netherlands

    Lieke van Houtum MSc, Mieke Rijken PhD, Monique Heijmans PhD & Peter Groenewegen PhD

  2. Department of Sociology and Department of Human Geography, Utrecht University, Utrecht, The Netherlands

    Peter Groenewegen PhD

Authors
  1. Lieke van Houtum MSc
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  2. Mieke Rijken PhD
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  3. Monique Heijmans PhD
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  4. Peter Groenewegen PhD
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Corresponding author

Correspondence to Lieke van Houtum MSc.

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van Houtum, L., Rijken, M., Heijmans, M. et al. Patient-Perceived Self-Management Tasks and Support Needs of People with Chronic Illness: Generic or Disease Specific?. ann. behav. med. 49, 221–229 (2015). https://doi.org/10.1007/s12160-014-9649-0

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  • DOI: https://doi.org/10.1007/s12160-014-9649-0

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