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A Study of School Adjustment, Self-concept, Self-esteem, General Wellbeing and Parent Child Relationship in Juvenile Idiopathic Arthritis

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Abstract

Objective

To assess school adjustment, self-concept, self-esteem, general wellbeing and parent–child relationship in children with Juvenile Idiopathic Arthritis (JIA)and to study the correlation of these parameters with chronicity of disease, number of active joints, laboratory parameters of disease activity and JIA subtypes.

Methods

A total of 64 children (32 cases and 32 controls) were recruited for analysis. Self report questionnaires which included PGI General Wellbeing Measure, Adjustment Inventory for School Students, Parent Child Relationship Scale, Self Esteem Inventory and Self Concept Questionnaires were used to assess all the enrolled subjects.

Results

Cases had significantly lower general physical well being (p < 0.001), self- esteem (p = 0.039), social self-concept (p = 0.023) and poorer social (p = 0.002), educational (p = 0.002) and overall (p = 0.006) adjustment as compared to controls. Both parents of cases were significantly more demanding (p = 0.028, p = 0.004)and mothers were over protective (p = 0.009) and pampering with object rewards (p = 0.02). PGI wellbeing score (p = 0.042, p = 0.019) and self concept (p = 0.002, for social SCQ p = 0.030) correlated well with number of active joints and ESR. As the disease duration increased, fathers tended to neglect their children (p = 0.043) and with persistent disease activity (reflected by CRP positivity) even resorted to punishment (p = 0.022) or remained indifferent (p = 0.048).

Conclusions

JIA significantly hampers the child’s self-esteem, self-concept, adjustment in school, general wellbeing and evokes disturbed parent–child relationship.

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References

  1. Cassidy JT, Petty RE. Systemic arthritis. In: Cassidy JT, Petty RE, Laxer RM, Lindsley CB, eds. Textbook of pediatric rheumatology. Philadelphia: WB Saunders; 2005. pp. 291–303.

    Google Scholar 

  2. Petty RE, Southwood TR, Baum J, et al. Revition of the proposed classification criteria for juvenile idiopathic arthritis: Durban 1997. J Rheumatol. 1997;25:1991–4.

    Google Scholar 

  3. Verma SK, Verma A. Manual for PGI general well being measure. Chandigarh: Punjab University; 1989.

    Google Scholar 

  4. Prasad MS, Thakur GP. Manual and directions for self esteem inventory. Muzaffarpur: University of Bihar; 1977.

    Google Scholar 

  5. RaoNalini. Manual for parent child relationship scale. Agra: National Psychological Corporation; 1971.

  6. Sinha AKP, Singh RP. Manual for adjustment inventory for school students. Patna: University of Patna; 1993.

    Google Scholar 

  7. Saraswat RK. Manual for self concept questionnaire. Agra: National Psychological Corporation; 1971.

    Google Scholar 

  8. Ding T, Hall A, Jacobs K, David J. Psychological functioning of children and adolescents with juvenile idiopathic arthritis is related to physical disability but not to disease status. Rheumatol. 2008;47:660–4.

    Article  CAS  Google Scholar 

  9. Huygen ACJ, Kuis W, Sinnema G. Psychological, behavioural and social adjustment in children and adolescents with juvenile chronic arthritis. Ann Rheum Dis. 2000;59:276–82.

    Article  PubMed  CAS  Google Scholar 

  10. Gerhardt CA, McGoron KD, Thompson AL, et al. Social outcomes among emerging adults with juvenile idiopathic arthritis. Children's Health Care. 2011;40:70–84.

    Article  Google Scholar 

  11. Wagner JL, Chaney JM, Hommel KA, et al. The influence of parental distress on child depressive symptoms in juvenile rheumatic diseases: the moderating effect of illness intrusiveness. J Pediatr Psychol. 2003;28:453–62.

    Article  PubMed  Google Scholar 

  12. Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: social function, relationships and sexual activity. Rheumatology. 2002;41:1440–3.

    Article  PubMed  CAS  Google Scholar 

  13. Ennett ST, DeVellis BM, Earp JA, Kredich D, Warren RW, Wilhelm CL. Disease experience and psychosocial adjustment in children with juvenile rheumatoid arthritis: children's versus mothers' reports. J Pediatr Psychol. 1991;16:557–68.

    Article  PubMed  CAS  Google Scholar 

  14. LeBovidge JS, Lavigne JV, Donenberg GR, Miller ML. Psychological adjustment of children and adolescents with chronic arthritis: a meta-analytic review. J Pediatr Psychol. 2003;28:29–39.

    Article  PubMed  Google Scholar 

  15. Sturge C, Garralda ME, Boissin M, Doreâ CJ, Woo P. School attendance and juvenile chronic arthritis. Br J Rheumatol. 1997;36:1218–23.

    Article  PubMed  CAS  Google Scholar 

  16. Sandstrom MJ, Schanberg LS. Brief report: peer rejection, social behavior, and psychological adjustment in children with juvenile rheumatic disease. J Pediatr Psychol. 2004;29:29–34.

    Article  PubMed  Google Scholar 

  17. Timko C, Stovel KW, Moos RF. Functioning among mothers and fathers of children with juvenile rheumatic disease: a longitudinal study. J Pediatr Psychol. 1992;17:705–24.

    Article  PubMed  CAS  Google Scholar 

  18. Litt IF, Cuskey WR, Rosenberg A. Role of self-esteem and autonomy in determining medication compliance among adolescents with juvenile rheumatoid arthritis. Pediatrics. 1982;69:15–7.

    PubMed  CAS  Google Scholar 

  19. Connelly TW Jr. Family functioning and hope in children with juvenile rheumatoid arthritis. MCN Am J Matern Child Nurs. 2005;30:245–50.

    Article  PubMed  Google Scholar 

  20. Swahney S, Aggarwal M. Outcome measures in pediatric rheumatology. Indian J Pediatr. 2010;77:1183–9.

    Article  Google Scholar 

Download references

Contributions

TPY critically analyzed and finalized the manuscript for important intellectual content and will also act as the corresponding author. AY collected data and drafted the paper and reviewed the literature. The final manuscript was approved by all the authors.

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Authors and Affiliations

  1. Department of Pediatrics, PGIMER, Dr Ram Manohar Lohia Hospital, New Delhi, India

    Anita Yadav & T. P. Yadav

  2. H 1571 GF Chittaranjan Park, New Delhi, 110019, India

    T. P. Yadav

Authors
  1. Anita Yadav
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  2. T. P. Yadav
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Correspondence to T. P. Yadav.

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Yadav, A., Yadav, T.P. A Study of School Adjustment, Self-concept, Self-esteem, General Wellbeing and Parent Child Relationship in Juvenile Idiopathic Arthritis. Indian J Pediatr 80, 199–206 (2013). https://doi.org/10.1007/s12098-012-0804-y

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  • DOI: https://doi.org/10.1007/s12098-012-0804-y

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