Skip to main content

Advertisement

Log in

Pediatric palliative care

  • Published:
Current Oncology Reports Aims and scope Submit manuscript

Abstract

Pediatric medicine is moving toward a greater appreciation that the delivery of quality medical care involves a partnership including the health care team, the child, and the family. Pediatric medicine now emphasizes the importance of information exchange among these groups. This paper discusses two models for communicating with children and their families throughout a complex life-threatening illness. Both models serve as a framework for integrating the medical and nonmedical aspects of the illness experience.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References and Recommended Reading

  1. Britto MT, Kotagal UR, Boat TF: Listening to families: first steps toward improved hospital care. Arch Pediatr Adolesc Med 2005, 159:187–188.

    Article  PubMed  Google Scholar 

  2. Crossing the Quality Chasm: a New Health System for the 21st Century. Report of the Institute of Medicine. Washington, DC: The National Academies Press; 2001.

  3. FAQ. The Institute for Family-Centered Care; 2005. Available at http://www.familycenteredcare.org/faq.html. Accessed May 4, 2007.

  4. Dokken DL, Heller KS, Levitown M, et al.; The Initiative for Pediatric Palliative Care (IPPC): Quality Domains, Goals, and Indicators of Family-centered Care of Children Living with Life-threatening Conditions. Newton: Education Development Center; 2001.

    Google Scholar 

  5. Co JP, Ferris TG, Marino BL, et al.: Are hospital characteristics associated with parental view of pediatric inpatient care quality? Pediatrics 2003, 11:308–314.

    Article  Google Scholar 

  6. Lanford A, Clausen R, Mulligan J, et al.: Measuring and improving patients’ and families perceptions of care in a system of pediatric hospitals. Jt Comm J Qual Improv 2001, 27:415–429.

    PubMed  CAS  Google Scholar 

  7. Meyer EC, Ritholz MD, Burns JR, Troug RD: Improving the quality of end-of-life care in the pediatric intensive care unit: parents’ priorities and recommendations. Pediatrics 2006, 117:649–657.

    Article  PubMed  Google Scholar 

  8. Contro NA, Larson J, Scofield S, et al.: Hospital staff and family perspectives regarding quality of pediatric palliative care. Pediatrics 2004, 114:1248–1252.

    Article  PubMed  Google Scholar 

  9. Mack JW, Hilden JM, Watterson J, et al.: Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol 2005, 23:9155–9161.

    Article  PubMed  Google Scholar 

  10. Hammes B, Klevan J, Kempf M, Williams MS: Pediatric advance care planning. J Palliat Med 2005, 8:766–773.

    Article  PubMed  Google Scholar 

  11. Hays RM, Valentine J, Haynes G, et al.: The Seattle pediatric palliative care project: effects on family satisfaction and health-related quality of life. J Palliat Med 2006, 9:716–728.

    Article  PubMed  Google Scholar 

  12. Baker JN, Barfield R, Hinds P, Kane JR: A process to facilitate decision making in pediatric stem cell transplantation: the individualized care planning and coordination model. Biol Blood Marrow Transplant 2007, 13:245–254.

    Article  PubMed  Google Scholar 

  13. Wolfe J, Friebert S, Hilden J: Caring for children with advanced cancer: integrating palliative care. Pediatr Clin North Am 2002, 49:1043–1062.

    Article  PubMed  Google Scholar 

  14. Browning D: To show our humanness—relational and communicative competence in pediatric palliative care. Bioethics Forum 2003, 18:23–28.

    Google Scholar 

  15. Bluebond-Langer M: The Private Worlds of Dying Children. Princeton: Princeton University Press; 1978.

    Google Scholar 

  16. Spinetta J, Regler D, Karon M: Anxiety in the dying child. Pediatrics 1973, 52:841–845.

    PubMed  CAS  Google Scholar 

  17. Glazer JP, Hilden JM, Poltorak DY: Pediatric palliative medicine. Child Adolescent Psychiatr Clin North Am 2006, 15:xvii–xx.

    Article  Google Scholar 

  18. Beale EA, Baile WF, Aaron J: Silence is not golden: communicating with children dying from cancer. J Clin Oncol 2005, 23:3629–3631.

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Norbert J. Weidner.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Weidner, N.J. Pediatric palliative care. Curr Oncol Rep 9, 437–439 (2007). https://doi.org/10.1007/s11912-007-0061-9

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11912-007-0061-9

Keywords

Navigation