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Exploring barriers to the receipt of necessary medical care among cancer survivors under age 65 years

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Abstract

Purpose

With increasing cancer care costs and greater patient cost-sharing in the USA, understanding access to medical care among cancer survivors is imperative. This study aims to identify financial, psychosocial, and cancer-related barriers to the receipt of medical care, tests, or treatments deemed necessary by the doctor or patient for cancer among cancer survivors age < 65 years.

Methods

We used data on 4321 cancer survivors aged 18–64 years who completed the 2012 LIVESTRONG Survey. Multivariable logistic regression was used to identify risk factors associated with the receipt of necessary medical care, including sociodemographic, financial hardship, debt amount, caregiver status, and cancer-related variables.

Results

Approximately 28% of cancer survivors were within 1 year, and 43% between 1 and 5 years, since their last treatment at the time of survey. Nearly 9% of cancer survivors reported not receiving necessary medical care. Compared to survivors without financial hardship, the likelihood of not receiving necessary medical care significantly increased as the amount of debt increased among those with financial hardship (RRFinancial hardship w/< $10,000 debt = 1.94, 95% CI 1.55–2.42, and RR RRFinancial hardship w/≥ $10,000 debt = 3.41, 95% CI 2.69–4.33, p < 0.001). Survivors who reported lack of a caregiver, being uninsured, and not receiving help understanding medical bills were significantly more likely to not receive necessary medical care.

Conclusion

We identified key financial and insurance risk factors that may serve as significant barriers to the receipt of necessary medical care among cancer survivors age < 65 in the USA

Implications for cancer survivors

The majority of cancer survivors reported receiving medical care either they or their doctors deemed necessary. However, identifying potentially modifiable barriers to receipt of necessary medical cancer care among cancer survivors age < 65 is imperative for developing interventions to ensure equitable access to care and reducing cancer disparities.

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Correspondence to Matthew P. Banegas.

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This article does not contain any studies with human participants performed by any of the authors. Informed consent was obtained from all individual participants included in the study.

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The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the American Cancer Society, Centers for Disease Control and Prevention, National Cancer Institute, or the Department of Health and Human Services.

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Banegas, M.P., Dickerson, J.F., Kent, E.E. et al. Exploring barriers to the receipt of necessary medical care among cancer survivors under age 65 years. J Cancer Surviv 12, 28–37 (2018). https://doi.org/10.1007/s11764-017-0640-1

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