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Long-term health-related quality of life for patients with Hirschsprung’s disease at 5 years after transanal endorectal pull-through operation

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Abstract

Purpose

This study aims to evaluate the health-related quality of life (HRQoL) for children as well as parents’ satisfaction 5–7 years after transanal pull-through operation of Hirschsprung’s disease.

Methods

The PedsQL™ 4.0—Core Measurement Model—and the PedsQL™ 3.0 Healthcare Satisfaction Generic Module were used to evaluate the quality of life and parents’ satisfaction, respectively. Parents of 53 children who were operated by transanal pull-through operation 5–7 years earlier were included in the study.

Results

The HRQoL of children was generally good. The mean scores were 87.3, 95.5, 92.3 and 93.2 % for physical, emotional, social and school functioning, respectively. Overflow incontinence was significantly affecting physical (ß = −.261), emotional (ß = −.299), social (ß = −.42) and school functioning (ß = −.534). Constipation significantly affected emotional (ß = −.742), social (ß = −.108) and school (ß = −.282) functioning. Failure to thrive was significantly affecting social (ß = −.215) and school functioning (ß = −.176). Age at time of surgery was affecting physical, emotional, social and school functioning (ß = −.686, −.627, −.865 and −.907, respectively). Parents were generally satisfied from the healthcare service with an overall satisfaction of 90.7 with the least satisfaction (79.8) in family inclusion category.

Conclusions

Transanal pull-through operation disease showed a good postoperative long-term HRQoL. Overflow incontinence and age at time of surgery had a significant negative effect on all the aspects of children’s HRQoL. Parental satisfaction was good and could be improved by more family inclusion.

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Conflict of interest

The authors declare that they have no conflict of interest.

Ethical standard

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.

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Authors and Affiliations

  1. Public Health Department, Faculty of Medicine, Zagazig University, Zagazig, Egypt

    Marwa Khalil

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  1. Marwa Khalil
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Correspondence to Marwa Khalil.

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Khalil, M. Long-term health-related quality of life for patients with Hirschsprung’s disease at 5 years after transanal endorectal pull-through operation. Qual Life Res 24, 2733–2738 (2015). https://doi.org/10.1007/s11136-015-1012-9

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  • DOI: https://doi.org/10.1007/s11136-015-1012-9

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