Skip to main content

Advertisement

SpringerLink
Log in

Concept Analysis of the Patient Reported Outcomes Measurement Information System (PROMIS®) and the International Classification of Functioning, Disability and Health (ICF)

  • Published:
Quality of Life Research Aims and scope Submit manuscript

Abstract

Purpose

The Patient Reported Outcomes Measurement Information System (PROMIS®) is a US National Institutes of Health initiative that has produced self-report outcome measures, using a framework of physical, mental, and social health defined by the World Health Organization in 1948 (WHO, in Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 1948). The World Health Organization’s International Classification of Functioning, Disability and Health (ICF) is a comprehensive classification system of health and health-related domains that was put forward in 2001. The purpose of this report is to compare and contrast PROMIS and ICF conceptual frameworks to support mapping of PROMIS instruments to the ICF classification system .

Methods

We assessed the objectives and the classification schema of the PROMIS and ICF frameworks, followed by content analysis to determine whether PROMIS domain and sub-domain level health concepts can be linked to the ICF classification.

Results

Both PROMIS and ICF are relevant to all individuals, irrespective of the presence of health conditions, person characteristics, or environmental factors in which persons live. PROMIS measures are intended to assess a person’s experiences of his or her health, functional status, and well-being in multiple domains across physical, mental, and social dimensions. The ICF comprehensively describes human functioning from a biological, individual, and social perspective. The ICF supports classification of health and health-related states such as functioning, but is not a specific measure or assessment of health, per se. PROMIS domains and sub-domain concepts can be meaningfully mapped to ICF concepts.

Conclusions

Theoretical and conceptual similarities support the use of PROMIS instruments to operationalize self-reported measurement for many body function, activity and participation ICF concepts, as well as several environmental factor concepts. Differences observed in PROMIS and ICF conceptual frameworks provide a stimulus for future research and development.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1
Fig. 2

Similar content being viewed by others

References

  1. WHO (1948). Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19–22 June 1946, and entered into force on 7 April 1948.

  2. Üstün, B., & Jakob, R. (2005). Calling a spade a spade: Meaningful definitions of health conditions. Bulletin of the World Health Organization, 83, 802.

    PubMed Central  PubMed  Google Scholar 

  3. ICF (2001). International classification of functioning, disability and health. Geneva Switzerland: World Health Organization.

  4. Ustun, T. B., Chatterji, S., Bickenbach, J., Kostanjsek, N., & Schneider, M. (2003). The international classification of functioning, disability and health: A new tool for understanding disability and health. Disability and Rehabilitation, 25(11–12), 565–571.

    Article  CAS  PubMed  Google Scholar 

  5. Cieza, A., Geyh, S., Chatterji, S., Kostanjsek, N., Ustün, B., & Stucki, G. (2005). ICF linking rules: An update based on lessons learned. Journal of Rehabilitation Medicine, 37, 212–218.

    Article  PubMed  Google Scholar 

  6. Geyh, S., Cieza, A., Kolleris, B., Grimby, G., & Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): A systematic review. Quality of Life Research, 16(5), 833–851.

    Article  CAS  PubMed  Google Scholar 

  7. Riley, W. T., Rothrock, N., Bruce, B., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.

    Article  PubMed Central  PubMed  Google Scholar 

  8. Cella, D., Yount, S., Rothrock, N., et al. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45(5 Suppl 1), S3–S11.

    Article  PubMed Central  PubMed  Google Scholar 

  9. McDougall, J., Wright, V., & Rosenbaum, P. (2010). The ICF model of functioning and disability: Incorporating quality of life and human development. Developmental Neurorehabilitation, 13(3), 204–211. doi:10.3109/17518421003620525.

    Article  PubMed  Google Scholar 

  10. PROMIS® Instrument Development and Psychometric Evaluation Scientific Standards. http://www.nihpromis.org/Documents/PROMIS_Standards_050212.pdf. Accessed 19 Dec 2012.

  11. Carle, A. C., Cella, D., Cai, L., Choi, S. W., Crane, P. K., Curtis, S. M., et al. (2011). Advancing PROMIS’s methodology: Results of the third Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Psychometric Summit. Expert Rev Pharmacoecon Outcomes Res, 11(6), 677-84. doi: 10.1586/erp.11.74.

  12. Oberhauser, C., Escorpizo, R., Boonen, A., Stucki, G., & Cieza, A. (2012). A statistical validation of the Brief ICF Core Set for osteoarthritis based on a large international sample of patients with osteoarthritis. Arthritis Care Res (Hoboken). 2012 Jun 28. doi: 10.1002/acr.21775.

  13. Kus, S., Oberhauser, C., Cieza, A. (2012). Validation of the brief International Classification of Functioning, Disability, and Health (ICF) core set for hand conditions. Journal of Hand Therapy, 25(3), 274–286; quiz 287. doi: 10.1016/j.jht.2012.02.003.

  14. Glocker, C., Kirchberger, I., Glaessel, A., Fincziczki, A., Stucki, G., & Cieza, A. (2012). Content validity of the comprehensive international classification of functioning, disability and health (ICF) core set for low back pain from the perspective of physicians: a Delphi survey. Chronic Illness. [Epub ahead of print] PubMed PMID: 22689356.

  15. Cieza, A., Brockow, T., Ewert, T., et al. (2002). Linking health-status measurements to the international classification of functioning, disability and health. Journal of Rehabilitation Medicine, 34, 205–210.

    Article  PubMed  Google Scholar 

  16. Ghazvinian, A., Noy, N. F., & Musen, M. A. (2009). Creating mappings for ontologies in biomedicine: Simple methods work. In AMIA annual symposium (AMIA 2009), San Francisco, CA.

  17. Tucker, C.A., Escorpizo, R., Cieza, A., Lai, J. S., Stucki, G., Ustun, T.B., et al. (2013). Describing the Content of the Patient Reported Outcomes Measurement Information System (PROMIS®) Using the International Classification of Functioning, Health and Disability (in review 12/2013).

Download references

Author information

Authors and Affiliations

  1. College of Health Professions and Social Work, Temple University, 3307 North Broad Street, Philadelphia, PA, 19140, USA

    Carole A. Tucker

  2. Department of Psychology, University of Southampton, Southampton, UK

    Alarcos Cieza

  3. ICF Research Branch of the WHO Collaborating Centre for the Family of International Classifications in Germany (DIMDI), Nottwil, Switzerland

    Alarcos Cieza & Gerold Stucki

  4. Department of Population and Family Health Sciences, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA

    Anne W. Riley

  5. Swiss Paraplegic Research, Nottwil, Switzerland

    Gerold Stucki

  6. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA

    Jin Shei Lai & David Cella

  7. World Health Organization, CTS Team, Geneva, Switzerland

    T. Bedirhan Ustun & Nenad Kostanjsek

  8. National Cancer Institute, National Institutes of Health, Bethesda, MA, USA

    William Riley

  9. The Children’s Hospital of Philadelphia, Philadelphia, PA, USA

    Christopher B. Forrest

  10. Department of Pediatrics, University of Pennsylvania School of Medicine, Philadelphia, PA, USA

    Christopher B. Forrest

  11. Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA, USA

    Christopher B. Forrest

Authors
  1. Carole A. Tucker
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Alarcos Cieza
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Anne W. Riley
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Gerold Stucki
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. Jin Shei Lai
    View author publications

    You can also search for this author in PubMed Google Scholar

  6. T. Bedirhan Ustun
    View author publications

    You can also search for this author in PubMed Google Scholar

  7. Nenad Kostanjsek
    View author publications

    You can also search for this author in PubMed Google Scholar

  8. William Riley
    View author publications

    You can also search for this author in PubMed Google Scholar

  9. David Cella
    View author publications

    You can also search for this author in PubMed Google Scholar

  10. Christopher B. Forrest
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Carole A. Tucker.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Tucker, C.A., Cieza, A., Riley, A.W. et al. Concept Analysis of the Patient Reported Outcomes Measurement Information System (PROMIS®) and the International Classification of Functioning, Disability and Health (ICF). Qual Life Res 23, 1677–1686 (2014). https://doi.org/10.1007/s11136-014-0622-y

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11136-014-0622-y

Keywords

Search

Navigation