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Reliability and validity of the Cystic Fibrosis Questionnaire-Revised for children and parents in Turkey: cross-sectional study

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Abstract

Purpose

The purpose of study was to translate Cystic Fibrosis Questionnaire-Revised (CFQ-R) into Turkish for children with cystic fibrosis (CF) and evaluate its reliability and validity. This is the first CF-specific health-related quality of life (HRQOL) measure validated in a Muslim country.

Methods

Fifty-one children aged 6–13 years treated at four centers in Turkey and 30 parents participated in this cross-sectional study. Demographic characteristics and disease severity parameters were recorded for all participants. All participants completed the parent or child versions of CFQ-R and KINDL questionnaires at enrollment. Reliability and construct validity analysis were carried out.

Results

Both children and parents endorsed a range of responses, with no evidence of floor or ceiling effects. Item-to-total correlations indicated that most items were more highly correlated with their intended scale than competing scales. Good internal consistency was found for majority of child and parent scales. CFQ-R scales correlated significantly with clinical indices of disease severity. Good evidence of convergent validity with a generic HRQOL scale was found.

Conclusion

Turkish versions of CFQ-R Child and Parent instruments have demonstrated adequate reliability and validity and can be utilized in clinical trials or integrated into clinical evaluation and follow-up of Turkish children with CF.

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Authors and Affiliations

  1. Department of Pediatric Allergy and Pulmonology, Medical Faculty, Celal Bayar University, Manisa, Turkey

    Hasan Yuksel & Ozge Yilmaz

  2. Department of Pediatric Pulmonology, Medical Faculty, Hacettepe University, Ankara, Turkey

    Deniz Dogru

  3. Department of Pediatric Pulmonology, Medical Faculty, Marmara University, Istanbul, Turkey

    Bulent Karadag

  4. Bursa Children’s Hospital, Bursa, Turkey

    Fatih Unal

  5. Department of Psychology, University of Miami, Coral Gables, FL, USA

    Alexandra L. Quittner

  6. 116/17 Sokak No: 7 C Blok Daire 3, 35050, Bornova, Izmir, Turkey

    Hasan Yuksel

Authors
  1. Hasan Yuksel
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  2. Ozge Yilmaz
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  3. Deniz Dogru
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  4. Bulent Karadag
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  5. Fatih Unal
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  6. Alexandra L. Quittner
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Correspondence to Hasan Yuksel.

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Yuksel, H., Yilmaz, O., Dogru, D. et al. Reliability and validity of the Cystic Fibrosis Questionnaire-Revised for children and parents in Turkey: cross-sectional study. Qual Life Res 22, 409–414 (2013). https://doi.org/10.1007/s11136-012-0152-4

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  • DOI: https://doi.org/10.1007/s11136-012-0152-4

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