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The Maastricht social participation profile: development and clinimetric properties in older adults with a chronic physical illness

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Abstract

Purpose

To develop and test the Maastricht Social Participation Profile (MSPP), an instrument measuring the actual social participation by older adults with a chronic physical illness, in accordance with their own definition of social participation.

Methods

The development process consisted of a number of steps, ending with a field test in two waves (n = 412 and n = 125) among a random sample of people older than 59 years with either COPD or diabetes mellitus. Reproducibility was evaluated with intraclass correlation coefficients (ICCs) and smallest real differences at group level (SRDsgroup). Convergent and discriminant validity were evaluated with Pearson correlation coefficients between the MSPP and the Frenchay Activities Index (FAI).

Results

The MSPP consists of four indices: consumptive participation, formal social participation, informal social participation-acquaintances and informal social participation-family. Each index measured diversity and frequency of participation. ICCs ranged between 0.63 and 0.83. SRDsgroup ranged between 0.05 and 0.09. Convergent and discriminant validity were supported by the correlations between the MSPPfrequency and the FAI.

Conclusions

The MSPP has good validity and acceptable reproducibility. Its distinguishing features are its focus on actual social participation and the possibility to calculate both diversity and frequency scores.

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Acknowledgments

We would like to thank the participants in the study and those who invited them: Karianne Jonkers, Femke Lamers, Jan van Rooij, the team at the Diabetes Care Centre Maastricht and the Dutch Diabetes Organization. Furthermore, we thank Trudi van den Bos, Mieke Cardol, Ingrid Friesema, Mieke le Granse, Marike Hendriks, Femke Lamers, Tineke Schoot and Leontine van de Ven for assessing the content validity of the MSPP.

Author information

Authors and Affiliations

  1. School for Public Health and Primary Care, Maastricht University, P.O. Box 616, 6200 MD, Maastricht, The Netherlands

    Godelief M. J. Mars, Gertrudis I. J. M. Kempen, Ireen M. Proot, Ilse Mesters & Jacques T. M. van Eijk

  2. Statistics Netherlands, PDV/DOP, Room 1D02, PO Box 4481, 6401 CZ, Heerlen, The Netherlands

    Godelief M. J. Mars

  3. Rehabilitation Centre De Hoogstraat, Rembrandtkade 10, 3583 TM, Utrecht, The Netherlands

    Marcel W. M. Post

  4. Rudolf Magnus Institute for Neuroscience, University Medical Centre Utrecht, Utrecht, The Netherlands

    Marcel W. M. Post

Authors
  1. Godelief M. J. Mars
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  2. Gertrudis I. J. M. Kempen
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  3. Marcel W. M. Post
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  4. Ireen M. Proot
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  5. Ilse Mesters
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  6. Jacques T. M. van Eijk
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Corresponding author

Correspondence to Godelief M. J. Mars.

Appendix

Appendix

Below is the English version of the MSPP. It was translated in a translation - back translation procedure involving two professional translators (one native English and one native Dutch) and authors GM and JvE. The Dutch version is available from the authors.

  • Consumptive Participation: items A1, A3-8

  • Formal Social Participation: items A2, A9, A10

  • Informal Social Participation—Acquaintances: items B1-8

  • Informal Social Participation—Family: items C1-8

figure a
figure b
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Mars, G.M.J., Kempen, G.I.J.M., Post, M.W.M. et al. The Maastricht social participation profile: development and clinimetric properties in older adults with a chronic physical illness. Qual Life Res 18, 1207–1218 (2009). https://doi.org/10.1007/s11136-009-9537-4

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