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The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

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Abstract

Purpose

To review published studies regarding the use, feasibility and psychometric performance of the schedule for the evaluation of individual quality of life—direct weighting (SEIQoL-DW) in clinical research.

Methods

Systematic literature review. Studies using the SEIQoL-DW were included if they were published in English and employed a quantitative design. A pre-defined checklist was used to analyse the reported results.

Results

Thirty-nine relevant articles were identified. The SEIQoL-DW has been included in studies relating to a variety of populations, including those who are severely ill. The results of convergent and discriminant validity support our hypotheses in which SEIQoL-DW was expected to correlate moderately to high with measures of global QoL, life satisfaction and mental health and weakly with measures of functional status and health.

Conclusion

The SEIQoL-DW appears to be a feasible and valid instrument. The lack of association between the Index score and health, functional status, demographic and clinical parameters may be explained by the instrument’s focus on global QoL and by that of the idiographic measurement approach reflecting the capacity of a patient to value domains other than health in life, despite having health problems. Nevertheless, continued psychometric evaluation in large populations with a longitudinal design is recommended.

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Abbreviations

ALS:

Amyotrophic lateral sclerosis

EORTC:

European Organisation for Research and Treatment of Cancer

HADS:

Hospital anxiety and depression scale

IQoL:

Individual quality of life

MCS:

Mental component summary

PCS:

Physical component summary

QoL:

Quality of life

SEIQoL-DW:

The schedule for the evaluation of individual quality of life—direct weighting

SEIQoL-DR:

The schedule for the evaluation of individual quality of life—disease related

SEIQoL-JA:

The schedule for the evaluation of individual quality of life—judgment analysis

SF-36:

Short form health survey

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Authors and Affiliations

  1. Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, P.O. Box 23 300, 141 83, Huddinge, Stockholm, Sweden

    L. Wettergren

  2. Department of Pharmacy, Uppsala University, Uppsala, Sweden

    Å. Kettis-Lindblad & L. Ring

  3. Department of Medical Psychology, Academic Medical Center, Amsterdam, The Netherlands

    M. Sprangers

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  1. L. Wettergren
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  2. Å. Kettis-Lindblad
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  3. M. Sprangers
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  4. L. Ring
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Correspondence to L. Wettergren.

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Wettergren, L., Kettis-Lindblad, Å., Sprangers, M. et al. The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW. Qual Life Res 18, 737–746 (2009). https://doi.org/10.1007/s11136-009-9490-2

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