Abstract
Background: Few studies have investigated differences between subjective and externally assessed quality of life in individuals with a severe mental illness. In a sample of 387 patients with schizophrenia living in the community the present study investigated the association between subjective and interviewer-rated quality of life, clinical and sociodemographic factors related to the two assessments, and if discrepancies in the assessments were related to any clinical or social features of the patients. Method: The study was a Nordic multicentre study with a cross-sectional design. Instruments used were the Lancashire Quality of Life Profile, the Brief Psychiatric Rating Scale, the Interview Schedule for Social Interaction, Camberwell Assessment of Needs and General Assessment of Functioning. Results: The correlation between subjective and interviewer-rated quality of life was moderate (ICC=0.33). More severe affective symptoms, fewer emotional relations and a lower monthly income were related to poorer subjectively rated quality of life but in a stepwise multiple regression analysis accounted for only 14.1 of the variance. Poorer interviewer-rated quality of life was mainly related to a more severe psychopathology but also to a lower monthly income, fewer emotional relations and not being employed. Together these factors accounted for 45.5 of the variance. A greater discrepancy between the subjective and the interviewer rating was found in patients with less affective symptoms, unemployment, and a better social network. Conclusion: Only a moderate correlation between subjective and interviewer-assessed global quality of life was found, implying that the sources of assessment differed, as was also shown in subsequent regression models. It is concluded that both perspectives on the patient’s quality of life may be valuable for treatment planning, especially in cases where differences in quality of life assessment related to the patient’s psychopathology may be expected.
Similar content being viewed by others
References
G Lauer (1999) Concepts of quality of life in mental health care S Priebe J Oliver W Kaiser (Eds) Quality of Life and Mental Health Care Wrighton Biomedical Publishing Ltd. Petersfield, UK
L Hansson (1999) Advancing the concept of quality of life S Priebe J Oliver W Kaiser (Eds) Quality of Life and Mental Health Care Wrighton Biomedical Publishing Ltd. Petersfield, UK 19–27
F Baker J Intagliata (1982) ArticleTitleQuality of life in the evaluation of community support systems. Eval Prog Plan 5 69–79 Occurrence Handle10.1016/0149-7189(82)90059-3
J Oliver P Huxley K Bridges H Mohamad (1996) Quality of Life and Mental Health Services. Routledge London
G Awad L Voruganti (2000) ArticleTitleIntervention research in psychosis: issues related to the assessment of quality of life. Schiz Bull 26 557–564
M Atkinson S Zibin H Chuang (1997) ArticleTitleCharacterizing quality of life among patients with chronic mental illness: A critical examination of the self-report methodology. Am J Psych 154 99–105
H Katschnig (1997) How useful is the concept of quality of life in psychiatry? H Katschnig H Freeman N Sartorius (Eds) Quality of Life in Mental Disorders Wiley and Sons Ltd. West Sussex, UK 3–16
R Warner G Girolamo G Belelli C Bologna A Fioritti G Rosini (1998) ArticleTitleThe quality of life of people with schizophrenia in Boulder, Colorado, and Bologna, Italy. Schiz Bull 24 559–568
J Bobes M Gonzáes (1997) Quality of life in schizophrenia H Katschnig H Freeman N Sartorius (Eds) Quality of Life in Mental Disorder. John Wiley & Sons New York
M Barry C Crosby (1996) ArticleTitleQuality of life as an evaluative measure in assessing the impact of community care on people with long-term psychiatric disorders. Br J Psych 168 210–216
A Pinkney G Gerber H Lafave (1991) ArticleTitleQuality of life after psychiatric rehabilitation: The clients’ perspective. Acta Psychiatr Scand 83 86–91 Occurrence Handle2017916
G Sullivan K Wells B Leak (1991) ArticleTitleQuality of life of seriously mentally ill persons in Mississippi. Hosp Community Psychiatry 42 752–755
A Lehman (1983) ArticleTitleThe well-being of chronic mental patients: assessing their quality of life. Arch Genl Psychiatry 40 369–373
H Katschnig (2000) ArticleTitleSchizophrenia and quality of life. Acta Psychiatr Scand 102 33–37 Occurrence Handle10.1034/j.1600-0447.2000.00006.x
L Voruganti R Helsegrave AG Awad MV Seeman (1998) ArticleTitleQuality of life measurement in schizophrenia: Reconciling the quest for subjectivity with the question of reliability. Psychl Med 28 165–172 Occurrence Handle10.1017/S0033291797005874
F Sainfort M Becker R Diamond (1996) ArticleTitleJudgments of quality of life of individuals with severe mental disorders: patient self-report versus provider perspectives. Am J Psychiatry 153 497–502 Occurrence Handle8599397
A Lehman L Postrado L Rachuba (1993) ArticleTitleConvergent validation of quality of life assessments for persons with severe mental illness. Qual Life Res 2 327–333 Occurrence Handle10.1007/BF00449427 Occurrence Handle8136797
EB Larsen J Gerlach (1996) ArticleTitleSubjective experience of treatment, side-effects, mental state and quality of life in chronic schizophrenic out-patients treated with depot neuroleptics. Acta Psychiatr Scand 93 381–388 Occurrence Handle8792909
M Eklund L Hansson (1998) ArticleTitleSubjectively versus independently assessed quality of life for the long-term mentally ill. Nord J Psychiatry 52 285–294 Occurrence Handle10.1080/08039489850149723
G Kemmler B Holzner C Neudorfer U Meise H Hinterhuber (1997) ArticleTitleGeneral life satisfaction and domain-specific quality of life in chronic schizophrenic patients. Qual Life Res 6 265–273 Occurrence Handle10.1023/A:1026466906643 Occurrence Handle9226984
S Tosic N Golubovic I Popovic V Popovic D Vukic Z Ciric (1997) ArticleTitleQuality of life among patients with chronic mental illness (abstract) Qual Life Res 6 731
A Lobana SK Mattoo D Basu (2001) ArticleTitleQuality of life in schizophrenia in India: Comparison of three approaches Acta Psychiatr Scand 104 51–53 Occurrence Handle10.1034/j.1600-0447.2001.104001051.x Occurrence Handle11437750
N Khatri D Romney G Pelletier (2001) ArticleTitleValidity of self-reports about quality of life among patients with schizophrenia. Psych Serv 52 534–535 Occurrence Handle10.1176/appi.ps.52.4.534
J Perry D Felce (2002) ArticleTitleSubjective and objective quality of life assessment: Responsiveness, response bias, and resident: proxy concordance. Ment Retard 40 445–456 Occurrence Handle10.1352/0047-6765(2002)040<0445:SAOQOL>2.0.CO;2 Occurrence Handle12408747
R Hays B Vickrey B Hermann et al. (1995) ArticleTitleAgreement between self reports and proxy reports of quality of life in epilepsy patients. Qual Life Res 4 159–168 Occurrence Handle10.1007/BF01833609 Occurrence Handle7780382
N Theunissen T Vogels H Koopman et al. (1998) ArticleTitleThe proxy problem: Child report versus parent report in health-related quality of life research. Qual Life Res 7 387–397 Occurrence Handle10.1023/A:1008801802877 Occurrence Handle9691719
M Doyle S Flanagan S Browne et al. (1999) ArticleTitleSubjective and external assessments of quality of life in schizophrenia: Relationship to insight. Acta Psychiatr Scand 99 466–472 Occurrence Handle10408270
L Hansson M Eklund A Bengtsson-Tops (2001) ArticleTitleThe relationship of personality dimension as measured by the temperament and character inventory and quality of life in individuals with schizophrenia or schizoaffective disorder living in the community. Qual Life Res 10 133–139 Occurrence Handle10.1023/A:1016790230228 Occurrence Handle11642683
A Bengtsson-Tops L Hansson (1999) ArticleTitleSubjective quality of life in schizophrenic patients living in the community. Relationship to clinical and social characteristics Eur Psychiatry 14 256–263 Occurrence Handle10.1016/S0924-9338(99)00173-X Occurrence Handle10572355
J Oliver P Huxley S Priebe W Kaise (1997) ArticleTitleMeasuring the quality of life of severely mentally ill people using the Lancashire Quality of Life Profile. Soc Psychiatry Psychiatr Epidemiol 32 76–83 Occurrence Handle10.1007/BF00788924 Occurrence Handle9050348
L Hansson B Svensson T Björkman (1998) ArticleTitleQuality of life of the mentally ill. Reliability of the Swedish version of the Lancashire Quality of Life Profile Eur Psychiatry 13 31–34 Occurrence Handle10.1016/S0924-9338(98)80010-2
Nieuwenhuizen Particlevan A Schene W Boevink J Wolf (1998) ArticleTitleThe Lancashire quality of life profile: First experience in the Netherlands. Community Ment Health J 34 513–524 Occurrence Handle10.1023/A:1018794530481 Occurrence Handle9793741
T Kolakowska (1976) The Brief Psychiatric Rating Scale. Oxford University Press Oxford
InstitutionalAuthorNameDiagnostic statistical manual of mental disorder (1994) (DSMIV). EditionNumber4 American Psychiatric Association Washington, DC
InstitutionalAuthorNameWorld Health Organization (1993) The ICD-10 Classification of Mental and Behavioral Disorders. WHO Geneva
S Henderson P Duncan-Jones DG Byrne R Scott (1980) ArticleTitleMeasuring social relationships. The Interview Schedule for Social Interaction Psychol Med 10 723–734 Occurrence Handle7208730
AL Undén K Orth-Gomér (1989) ArticleTitleDevelopment of social support instrument for use in population surveys. Soc Sci Med 29 1387–1392 Occurrence Handle10.1016/0277-9536(89)90240-2 Occurrence Handle2629121
M Phelan M Slade G Thornicroft et al. (1995) ArticleTitleThe Camberwell Assessment of Need: The validity and reliability of an instrument to assess the needs of people with severe mental illness. Br J Psychiatry 167 589–595 Occurrence Handle8564313
L Hansson T Björkman B Svensson (1995) ArticleTitleThe assessment of needs in psychiatric patients. Interrater reliability of the Swedish version of the Camberwell assessment of needs instrument and results from a cross-sectional study Acta Psychiatr Scand 92 285–293 Occurrence Handle8848954
M Norusis (1999) SPSS for Windows 9.0. SPSS Inc. Chicago
L Hansson T Middelboe L Merinder et al. (1999) ArticleTitlePredictors of subjective quality of life in schizophrenic patients living in the community: A Nordic multicenter study. Int J Soc Psychiatry 45 247–258 Occurrence Handle10689608
A Zizzi M Barry R Cochrane (1998) ArticleTitleA mediational model of quality of life for individuals with severe mental health problems. Psychol Med 28 1221–1230 Occurrence Handle10.1017/S0033291798007338 Occurrence Handle9794029
C Mercier S King (1994) ArticleTitleA latent variable causal model of the quality of life and community tenure of psychotic patients. Acta Psych Scand 89 72–77
Å Daun (1999) Det allmänmänskliga och det kulturbundna. (in English The Human and the Culture Bound) Prisma Stockholm
L Matza J Kupersmidt M Glenn (2001) ArticleTitleAdolescents’ perceptions and standards of their relationship with their parents as a function of sociometric status. J Res Adolescence 11 245–272 Occurrence Handle10.1111/1532-7795.00012
A Antonovsky (1987) Unraveling the Mystery of Health: How People Manage Stress and Stay Well. Jossey-Bass Publishers San Francisco
A Næss (1999) Livsfilosofi. Ett personligt bidrag till känslor och förnuft (In English: Life PhilosophyA Personal Contribution to Feelings and Reason). Natur & Kultur Stockholm
A Lehman (1999) Future research in quality of life in mental health care S Priebe J Oliver W Kaiser (Eds) Quality of Life and Mental Health Care Wrighton Biomedical Publishing Ltd. Petersfield, UK 131–138
R Warner (1999) ArticleTitleThe emics and etics of quality of life assessment. Soc Psychiatry Psychiatr Epidemiol 34 117–121 Occurrence Handle10.1007/s001270050121 Occurrence Handle10327835
M Robertson J Boyle (1984) ArticleTitleEthnography: Contributions to nursing research. J Adv Nurs 9 43–49 Occurrence Handle6561216
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Bengtsson-Tops, A., Hansson, L., Sandlund, M. et al. Subjective versus interviewer assessment of global quality of life among persons with schizophrenia living in the community: A Nordic multicentre study. Qual Life Res 14, 221–229 (2005). https://doi.org/10.1007/s11136-004-3926-5
Accepted:
Issue Date:
DOI: https://doi.org/10.1007/s11136-004-3926-5