Abstract
Elopement exhibited by school-aged children with special health care needs is a relatively low frequency problem behavior with the potential for severe negative consequences for the child and family. Using data from the Centers for Disease Control and Prevention (CDC) Survey of Pathways to Diagnosis and Services, our results represent one of the first empirical studies of variables that may be associated with children with special health care needs engaging in elopement. Using data from a nationally representative sample of children with special health care needs, our results revealed two variables that were statistically significant predictors of parent-reported elopement in the past year: (1) the child’s chronological age, and (2) the presence of an autism spectrum disorder (ASD) diagnosis. We found that the likelihood of an elopement event was inversely related to age, but positively associated with the presence of an ASD diagnosis. Using parent-response items from the CDC data set, we selected a set of questions to screen for risk of elopement and analyzed their psychometric properties. We discuss the need for future research to validate this screening instrument for school-aged youth with special health care needs. Our study provides an initial psychometric analysis to support a potential screening instrument for elopement events among school-aged youth that needs to be validated by a longitudinal study of its predictive validity.
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Anderson, C., Law, J. K., Daniels, A., Rice, C., Mandell, D. S., Hagopian, L., et al. (2012). Occurrence and family impact of elopement in children with autism spectrum disorders. Pediatrics, 130, 870–877.
Ballaban-Gil, K., Rapin, I., Tuchman, R., & Shinnar, S. (1996). Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder. Pediatric Neurology, 15(3), 217–223.
Bauman, M. L., & Kemper, T. L. (2005). The neurobiology of autism. Baltimore: JHU Press.
Beavers, G. A., Iwata, B. A., & Lerman, D. C. (2013). Thirty years of research on the functional analysis of problem behavior. Journal of Applied Behavior Analysis, 46(1), 1–21.
Campbell, J. M. (2003). Efficacy of behavioral interventions for reducing problem behavior in persons with autism: A quantitative synthesis of single-subject research. Research in Developmental Disabilities, 24(2), 120–138.
Centers for Disease Control and Prevention (CDC). (2011). Survey of pathways to diagnosis and services. Retrieved on January 11, 2015 from http://www.cdc.gov/nchs/slaits/spds.htm.
Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. A. (2012). Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disorders, 42(2), 257–265.
DeLong, E., DeLong, D., & Clarke-Pearson, D. (1988). Comparing the areas under two or more correlated receiver operating characteristic curves: A nonparametric approach. Biometrics, 44, 837–845.
Enders, C. K., & Bandalos, D. L. (2001). The relative performance of full information maximum likelihood estimation for missing data in structural equation models. Structural Equation Modeling: A Multidisciplinary Journal, 8, 430–457.
Gillberg, C., Billstedt, E., Sundh, V., & Gillberg, I. C. (2010). Mortality in autism: A prospective longitudinal community-based study. Journal of Autism and Developmental Disorders, 40(3), 352–357.
Glasgow, R. E., Kaplan, R. M., Ockene, J. K., Fisher, E. B., & Emmons, K. M. (2012). Patient-reported measures of psychosocial issues and health behavior should be added to electronic health records. Health Affairs, 31(3), 497–504.
Gravetter, F. J., & Wallnau, L. B. (2010). Essentials of statistics for the behavioral sciences (7th ed.). Belmont, CA: Thomas Wadsworth.
Hahs-Vaughn, D. L. (2005). A primer for using and understanding weights with national data sets. The Journal of Experimental Education, 73(3), 221–248.
Hahs-Vaughn, D. L. (2006). Analysis of data from complex samples. International Journal of Research and Method in Education, 29(2), 165–183.
Halek, M., & Bartholomeyczik, S. (2012). Description of the behaviour of wandering in people with dementia living in nursing homes: A review of the literature. Scandinavian Journal of Caring Sciences, 26(2), 404–413.
Heyvaert, M., Saenen, L., Campbell, J. M., Maes, B., & Onghena, P. (2014). Efficacy of behavioral interventions for reducing problem behavior in persons with autism: An updated quantitative synthesis of single-subject research. Research in Developmental Disabilities, 35(10), 2463–2476.
Hosmer, D. W., & Lemeshow, S. (2000). Applied logistic regression (2nd ed.). New York: Wiley.
Lang, R., Rispoli, M., Machalicek, W., White, P. J., Kang, S., Pierce, N., et al. (2009). Treatment of elopement in individuals with developmental disabilities: A systematic review. Research in Developmental Disabilities, 30, 670–681.
Lowe, K., Allen, D., Jones, E., Brophy, S., Moore, K., & James, W. (2007). Challenging behaviours: Prevalence and topographies. Journal of Intellectual Disability Research, 51(8), 625–636.
Mouridsen, S. E. (2013). Mortality and factors associated with death in autism spectrum disorders: A review. American Journal of Autism, 1, 17–25.
Mouridsen, S. E., Brønnum-Hansen, H., Rich, B., & Isager, T. (2008). Mortality and causes of death in autism spectrum disorders: An update. Autism, 12(4), 403–414.
Muthén, L., & Muthén, B. O. (2013). Mplus user’s guide (7th ed.). Los Angeles, CA: Muthén & Muthén.
National Survey of Children with Special Health Care Needs (NS-CSHCN). (2009). In 2009–2010 national survey of children with special health care needs. Retrieved on August 2, 2015 from www.childhealthdata.org.
Shavelle, R. M., Strauss, D. J., & Pickett, J. (2001). Causes of death in autism. Journal of Autism and Developmental Disorders, 31(6), 569–576.
Youden, W. J. (1950). Index for rating diagnostic tests. Cancer, 3(1), 32–35. doi:10.1002/1097-0142(1950)3:1<32:AID-CNCR2820030106>3.0.CO;2-3.
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Barnard-Brak, L., Richman, D.M. & Moreno, R. Predictors of Elopement Exhibited by School-Aged Children With Special Health Care Needs: Towards the Development of a Screening Instrument for Elopement. J Primary Prevent 37, 543–554 (2016). https://doi.org/10.1007/s10935-016-0449-0
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DOI: https://doi.org/10.1007/s10935-016-0449-0