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NIH-Funded CBPR: Self-Reported Community Partner and Investigator Perspectives

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Abstract

The community-based participatory research (CBPR) approach across health contexts has matured greatly over the last 20 years. Though contributions to the literature on the development and effectiveness of CBPR interventions have grown, the number of publications on the function and evaluation of actual community-research partnerships has not kept pace. To help address that gap, we searched National Institutes of Health archival data and identified a set of 489 CBPR projects including collaboration-building, exploratory/pilot, research, and program project grants. We found community partner contact information commonly was absent from grant records and contacted principal investigators (PIs) for community-partner contact information. Subsequently, we built upon established measures to ask principal investigators and community partners for their perceptions of participation in NIH-funded CBPR projects. Many principal investigators and community partners reported existing collaborations—between academicians and community organizations as well as among community organizations. Partners tended to agree on the appropriateness of funding levels to accomplish projects and on the community partners’ ability to recruit and retain participants, collect data, and implement interventions. Partners differed in perceptions of participation in research design, data analyses, manuscript and presentation production, and dissemination of findings. Suggestions include collection of lead community partner information without undue burden and increased standard education and involvement of community organizations in research vocabulary and practices.

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Acknowledgements

This study was funded by the NIH Evaluation Set-Aside Program, (14-5737 OD-OBSSR), administered by the former Office of Program Evaluation and Performance (OPEP), Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI), Office of the Director, National Institutes of Health. The authors thank Jaclyn M. Crouch, Mikia P. Currie, Mary Ann Guadagno, Rosanna Ng, G. Stephane Philogene, and Jennifer Sargent for their assistance with facilitating the original planning, human subjects approval process, and data collection on this project.

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Authors and Affiliations

  1. Office of Behavioral and Social Sciences Research, Division of Program Coordination, Planning, and Strategic Initiatives, National Institutes of Health, 31 Center Drive, Suite B1C19, Bethesda, MD, 20892-2027, USA

    William N. Elwood

  2. Center for Research Strategy, National Cancer Institute, Bethesda, MD, 20892-2580, USA

    James G. Corrigan

  3. Office of Behavioral and Social Sciences Research, National Institutes of Health, Bethesda, MD, 20892-2027, USA

    Kathryn A. Morris

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  1. William N. Elwood
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Correspondence to William N. Elwood.

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Elwood, W.N., Corrigan, J.G. & Morris, K.A. NIH-Funded CBPR: Self-Reported Community Partner and Investigator Perspectives. J Community Health 44, 740–748 (2019). https://doi.org/10.1007/s10900-019-00661-6

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