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Caregiving on the Hopi Reservation: Findings from the 2012 Hopi Survey of Cancer and Chronic Disease

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Abstract

A family caregiver provides unpaid assistance to a family member/friend with a chronic disease, illness or disability. The caregiving process can affect a caregiver’s quality of life by reducing time for themselves, for other family members and for work. The 2000 Behavioral Risk Factor Surveillance Survey estimates that 16 % of adult American Indians (AIs) are caregivers. A 2012 survey collected knowledge and personal experience data from a random sample of Hopi men and women (248 men and 252 women). Self-identified caregivers answered questions on time spent caregiving, caregiver difficulties and services requested. Approximately 20 % of the 500 Hopi participants self-identified as caregivers (N = 98), with 56 % female. Caregivers in contrast to non-caregivers had a lower percentage of ever having a mammogram (86, 89 %), a higher percentage of ever having had a Pap smear test (89.1, 85.6 %), a prostate specific antigen test (35, 30.6 %) and ever having had a colonoscopy (51.2, 44 %). Almost 21 % of caregivers reported difficulty with stress and 49 % reported it as their greatest caregiver difficulty. More males (28.6 %) identified financial burden as the greatest difficulty than females (p = 0.01). Training on patient care was the service that caregivers would like to receive most (18.2 %). The percentage of Hopi’s providing caregiving was similar to national averages, although among men, was somewhat higher than national data (44 vs. 34 %). Stress was identified as a difficulty, similar to national studies.

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Acknowledgments

The Hopi Tribe. [1] The Comprehensive. Minority Institute/Cancer Center Partnership of the National Cancer Institute funded through the Northern Arizona University-University of Arizona, Comprehensive [NAU/AZCC Partnership for Native American Cancer Prevention (NACP) 1U54CA143925-04] and [2] Arizona Department of Health Services, Arizona Biomedical Research Commission [Contract to UA: ADHS13-031255/Brown (PI)].

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Authors and Affiliations

  1. Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, USA

    Felina M. Cordova, Robin B. Harris, Nicolette I. Teufel-Shone & Lynn B. Gerald

  2. Department of Family and Community Medicine, Native American Research and Training Center, University of Arizona, Tucson, AZ, USA

    Felina M. Cordova

  3. Skin Cancer Institute, Arizona Cancer Center, The University of Arizona, 1295 N. Martin, Room A234, PO Box 24521, Tucson, AZ, 85724-5163, USA

    Robin B. Harris

  4. University of Alberta, Edmonton, Canada

    Nicolette I. Teufel-Shone

  5. College of Medicine, University of Arizona, Tucson, AZ, USA

    Peyton L. Nisson

  6. Hopi Department of Health and Human Services, The Hopi Tribe, Kykotsmovi, AZ, USA

    Lori Joshweseoma

  7. Division of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, University of Arizona, 1295 N. Martin Ave, PO Box 245211, Tucson, AZ, 85724-5163, USA

    Sylvia R. Brown

  8. Health Sciences Department, College of Health and Human Services, Student and Academic Center, Northern Arizona University, 1100 South Beaver Street #15095, Flagstaff, AZ, 86011-15095, USA

    Priscilla R. Sanderson

  9. Hopi Cancer Support Services, Kykotsmovi, AZ, USA

    Delores Ami

  10. Cancer Center, University of Arizona, Tucson, AZ, USA

    Kathylnn Saboda

  11. Department of Human Development and Family Studies, College of Human Sciences, Texas Tech University, 1301 Akron Avenue, Lubbock, TX, 79409, USA

    Ann M. Mastergeorge

  12. Arizona Respiratory Center, University of Arizona, Tucson, AZ, USA

    Lynn B. Gerald

Authors
  1. Felina M. Cordova
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  2. Robin B. Harris
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  3. Nicolette I. Teufel-Shone
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  4. Peyton L. Nisson
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  5. Lori Joshweseoma
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  6. Sylvia R. Brown
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  7. Priscilla R. Sanderson
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  8. Delores Ami
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  9. Kathylnn Saboda
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  10. Ann M. Mastergeorge
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  11. Lynn B. Gerald
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Corresponding author

Correspondence to Felina M. Cordova.

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Cordova, F.M., B. Harris, R., Teufel-Shone, N.I. et al. Caregiving on the Hopi Reservation: Findings from the 2012 Hopi Survey of Cancer and Chronic Disease. J Community Health 41, 1177–1186 (2016). https://doi.org/10.1007/s10900-016-0199-1

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  • DOI: https://doi.org/10.1007/s10900-016-0199-1

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