Abstract
Adolescence is a developmental period marked by unique physical, psychological and social changes. Guidelines about working with adolescents are available to health professionals in other fields, yet few resources are tailored specifically to genetic counselors. The current qualitative study explored the experiences of genetic counselors who work with adolescent clients to determine whether challenges exist and if further training and support are needed. Semi-structured interviews were conducted with 11 genetic counselors from Australia. Interview transcripts were analyzed using thematic analysis from which 7 key themes emerged: 1) Adolescents: A distinct client group? 2) Characteristics of adolescents; 3) Strategies for working with adolescents; 4) Confidentiality; 5) Parental involvement and presence in sessions; 6) Benefits of working with adolescents; and 7) The effectiveness of past training and education. The findings hold important implications for clinical practice and may inform future training programs and guidelines for genetic counselors internationally.
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References
Austin, S. (2010). Developmentally based approaches for counseling children and adolescents. In B. S. Leroy, P. M. Veach, & D. M. Bartels (Eds.), Genetic counseling practice: Advanced concepts and skills (pp. 253–280). Hoboken: Wiley-Blackwell.
Callard, A., Williams, J., & Skirton, H. (2012). Counseling adolescents and the challenges for genetic counselors. Journal of Genetic Counseling, 21, 505–509.
Cheng, T. L., Savageau, J. A., Sattler, A. L., & DeWitt, T. G. (1993). Confidentiality in health care. A survey of knowledge, perceptions, and attitudes among high school students. Journal of the American Medical Association, 269, 1420–1424.
Children’s Hospital Boston (2010). Children’s Hospital Boston Transition Toolkit. Retrieved April 3rd, 2013, from http://newenglandconsortium.org/for-families/transition-toolkit/.
Chown, P., Kang, M., Sanci, L., Newnham, V., & Bennett, D. L. (2008). Adolescent health: Enhancing the skills of general practitioners in caring for young people from culturally diverse backgrounds. GP Resource Kit (2nd ed.). Sydney: NSW Centre for the Advancement of Adolescent Health and Transcultural Mental Health Centre.
Christie, D., & Viner, R. (2005). ABC of adolescence: adolescent development. British Medical Journal, 330, 301–304.
Duncan, R. (2004). Predictive genetic testing in young people: when is it appropriate? Journal of Paediatrics and Child Health, 40, 593–595.
Duncan, R. E., Gillam, L., Savulescu, J., Williamson, R., Rogers, J. G., & Delatycki, M. B. (2009). The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis. Familial Cancer, 9, 17–35.
Ford, C., & Bearman, P. J. M. (1999). Foregone health care among adolescents. Journal of the American Medical Association, 282, 2227–2234.
Ford, C. A., Millstein, S. G., Halpern-Felsher, B. L., & Irwin, C. E. (1997). Influence of physician confidentiality assurances on adolescents’ willingness to disclose information and seek future health care: a randomised controlled trial. Journal of the American Medical Association, 278, 1029–1034.
Gaff, C., Lynch, E., & Spencer, L. (2006). Predictive testing of eighteen year olds: counseling challenges. Journal of Genetic Counseling, 15, 245–251.
Griswold, C. M., Ashley, S. S., DeLany Dixon, S., & Scott, J. L. (2011). Genetic counselors’ experiences with adolescent patients in prenatal genetic counseling. Journal of Genetic Counseling, 20, 178–191.
Joint Adolescent Health Committee of the Royal Australasian College of Physicians. (2008). Working with young people: A training resource in adolescent health. Sydney: Royal Australasian College of Physicians.
Klein, J., Wilson, K., McNulty, M., Kapphahn, C., & Collins, K. S. (1999). Access to medical care for adolescents: results from the 1997 Commonwealth Fund Survey of the health of adolescent girls. The Journal of Adolescent Health, 25, 120–130.
Martin, A., Volkmar, F. R., & Lewis, M. (2007). Lewis’s child and adolescent psychiatry: A comprehensive textbook. Philadelphia: Lippincott Williams & Wilkins.
Oetzel, K. B., & Scherer, D. G. (2003). Therapeutic engagement with adolescents in psychotherapy. Psychotherapy: Theory, Research, Practice, Training, 40, 215–225.
Peters-Brown, T., & Fry-Mehltretter, L. (1996). Genetic counseling for pregnant adolescents. Journal of Genetic Counseling, 5, 155–168.
Reddy, D., Fleming, R., & Swain, C. (2002). Effect of mandatory parental notification on adolescent girls’ use of sexual health care services. Journal of the American Medical Association, 288, 710–714.
Sawyer, S. M., Afifi, R. A., Bearinger, L. H., Blakemore, S. J., Dick, B., Ezeh, A. C., et al. (2012). Adolescence: a foundation for future health. Lancet, 379, 1630–1640.
Silber, T. J., D’Angelo, L. J., & Greenberg, L. W. (1989). Career satisfaction in adolescent medicine. A survey of physicians trained over a 20-year period. Journal of Adolescent Health Care, 10, 126–128.
Society for Adolescent Medicine. (2004). Confidential health care for adolescents: position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 35, 160–167.
Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory. California: SAGE Publications, Inc.
Sullivan, J., & Mcconkie-Rosell, A. (2010). Helping parents to talk to their children. In C. L. Gaff & C. L. Bylund (Eds.), Family communication about genetics: Theory and practice (pp. 227–242). New York: Oxford University Press.
Veach, P. M., LeRoy, B., & Bartels, D. M. (2003). Facilitating the genetic counseling process: A practice manual. New York: Springer.
Weil, J. (2000). Psychosocial genetic counseling. Oxford: Oxford University Press.
Acknowledgments
Rony Duncan is partly supported through a Fellowship from the Invergowrie Foundation. This study was supported by the Victorian Government’s Operational Infrastructure Support Program. This study was completed in partial fulfillment of the requirements for the Master of Genetic Counselling, University of Melbourne, Victoria, Australia.
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Tse, C., Sahhar, M., Wallace, J. et al. “There’s a Whole Different Way of Working with Adolescents”: Interviews with Australian Genetic Counselors About their Experiences with Adolescent Clients. J Genet Counsel 22, 674–684 (2013). https://doi.org/10.1007/s10897-013-9601-7
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DOI: https://doi.org/10.1007/s10897-013-9601-7