Abstract
According to the 2008 National Society of Genetic Counselors (NSGC) Professional Status Survey (PSS), 31 genetic counselor respondents reported spending at least 50% of their time in the area of public health. The NSGC Public Health Special Interest Group (PHSIG) had 49 dues-paying members in 2009. The purpose of this study was to identify the work settings and public health activities in which genetic counselors participate. A novel online survey was disseminated over the NSGC PHSIG Listserv. Forty-one percent (n = 13) of public health genetic counselor respondents worked in a university medical system, while 53% (n = 17) were grant-funded and held a non-clinical appointment. The most common public health activities included educating healthcare professionals (82%) and community members (61%), research (55%), grant writing (55%) and grant administration (36%). Most respondents (82%) reported learning certain public health skills outside of their genetic counseling training programs. Differences in work settings were found, with a significantly greater percentage of public health genetic counselors working in government agencies. Genetic counselors have opportunities to become involved in public health activities as the scope of public health genetics grows. Furthermore, genetic counseling competencies are compatible with the Institute of Medicine’s “10 Essential Public Health Services.” The NSGC and genetic counseling training programs are encouraged to offer more public health learning opportunities for genetic counselors and genetic counseling students interested in this specialty area.
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References
American Board of Genetic Counseling. (2009a). Retrieved August 25, 2009 from: http://www.abgc.net/english/View.asp?x=1469.
American Board of Genetic Counseling. (2009b). Practice-based competencies. Retrieved August 7, 2009 from: http://abgc.iamonline.com/english/View.asp?x=1529.
American College of Medical Genetics. (2008). ACMG Statement on Direct-To-Consumer Genetic Testing. Available at: www.acmg.net/AM/Template.cfm?Section=Policy_Statements&Template=/CM/ContentDisplay.cfm&ContentID=2975. Accessed on July 19, 2010.
Centers for Disease Control and Prevention. (2009). Genomics for public health practitioners 2004. Available at: http://www.cdc.gov/genomics/training/GPHP/default.htm. Accessed July 3, 2009.
Crowe, S. (2008). The President’s council on bioethics: a brief history of newborn screening in the United States. Staff Discussion Paper. Retrieved July 13, 2009 from http://www.bioethics.gov/background/newborn_screening_crowe.html.
Geransar, R., & Einsiedel, E. (2008). Evaluating Online Direct-to-Consumer Marketing of Genetic Tests: Informed Choices or Buyers Beware? Genet Test, 12, 13–24.
Institute of Medicine. (2002). The future of the public’s health in the 21st Century (pp. 98–99). Washington, DC: National Academies.
Matloff, E. T., Shannon, K. M., Moyer, A., & Col, N. F. (2007). Should menopausal women at increased risk for breast cancer use tamoxifen, raloxifene, or hormone therapy? A framework for personalized risk assessment and counseling. Journal of Cancer Education, 22, 10–4.
National Society of Genetic Counselors. (2006). 2006 Professional Status Survey. Retrieved October 13, 2009 from www.nsgc.org/members_only/PSS/open_document?document=2006_PSS_RESULTS.doc.
National Society of Genetic Counselors. (2008). 2008 Professional Status Survey. Retrieved August 7, 2009 from: www.nsgc.org/career/pss_index.cfm.
National Society of Genetic Counselors Public Health Special Interest Group. (2009) Retrieved August 7, 2009 from www.nsgc.org/members_only/sig/sig_public_health.cfm.
President’s Council on Bioethics. (2008). The changing moral focus of newborn screening: An ethical analysis by the president’s council on bioethics. Retrieved March 12, 2010 from: www.bioethics.gov/reports/newborn_screening/chapter1.html.
Acknowledgements
The authors would like to thank the members of the National Society of Genetic Counselors Public Health Special Interest Group (PHSIG) for their participation in this survey, and Lori Carpenter, MS for her help in compiling the results.
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Powell, K.P., Hasegawa, L. & McWalter, K. Expanding Roles: A Survey of Public Health Genetic Counselors. J Genet Counsel 19, 593–605 (2010). https://doi.org/10.1007/s10897-010-9313-1
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DOI: https://doi.org/10.1007/s10897-010-9313-1