Abstract
This study reports on the preferences of people with inflammatory bowel disease (IBD) for their healthcare. Overall, 477 people with IBD responded to an open-ended survey question within a larger study. We qualitatively content-analysed these responses with open coding using NVivo. Respondents expressed a desire for (1) better communication, (2) multidisciplinary care, (3) better treatment, services and specialist care, (4) whole person care, (5) health promotion, (6) proactive healthcare, (7) fewer administrative issues and (8) improved hospital experience. Patients with IBD want patient-centred, multidisciplinary care. Healthcare professionals should facilitate patients’ access to proactive care.
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Data Availability
The data that support the findings of this study are available on request from the senior author, Antonina Mikocka-Walus. The data are not publicly available due to restrictions.
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Acknowledgements
We would like to acknowledge Crohn’s & Colitis Australia and the Steering Group who established the present project.
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MF contributed to the study design, cleaned and analysed data, drafted the manuscript and approved the final draft. ACH contributed to the study design, analysis, provided feedback on drafts and approved the final draft. AMW designed the study, collected the data, contributed to data analysis, provided feedback on drafts and approved the final draft. She is the guarantor of the manuscript. No writing assistance was used.
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The authors have no conflicts of interest to declare that are relevant to the content of this article. Outside the present work, A. Mikocka-Walus served as an invited speaker at IBD-related conferences co-organised by Crohn's & Colitis Australia (a charity), Janssen and Ferring, and received a speaker's fee.
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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards. The study was approved by the Deakin University Human Ethics Advisory Group (HEAG-H 85_2018). Participation was voluntary and anonymous.
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Feeney, M., Chur-Hansen, A. & Mikocka-Walus, A. People Living with Inflammatory Bowel Disease Want Multidisciplinary Healthcare: A Qualitative Content Analysis. J Clin Psychol Med Settings 29, 570–577 (2022). https://doi.org/10.1007/s10880-021-09801-4
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DOI: https://doi.org/10.1007/s10880-021-09801-4