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Development and Preliminary Reproducibility and Validity of the Parent Adherence Report Questionnaire: A Measure of Adherence in Juvenile Idiopathic Arthritis

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Abstract

The purpose of this study was to develop and evaluate the psychometric properties of the Parent Adherence Report Questionnaire, a measure of adherence to treatment recommendations in juvenile idiopathic arthritis (JIA). Forty-one primary caregivers of children with JIA (age 1.5 to 18 years) completed a series of measures over a 3-month period. Demographic and disease-related information were obtained at baseline. To measure adherence, caregivers completed bi-weekly diaries on treatment adherence, the general adherence scale (GAS) monthly, and the PARQ at the end of 3 months. The PARQ was reassessed 2 weeks later. Medical charts were reviewed to compare bi-weekly diary reports to actual prescriptions. Intraclass correlation coefficients and kappa coefficients used to assess reproducibility indicated moderate to substantial levels of agreement for PARQ items across time. Construct validity was supported through: (1) significant correlations between the GAS and the PARQ for both exercise and medication; (2) fair agreement between the PARQ-medication and diary reports on medication-related behaviors, and (3) a significant positive correlation between the PARQ-exercise and diary reports on exercise-related behaviors. The study provides preliminary evidence of the reliability and validity of the PARQ.

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Authors and Affiliations

  1. Faculty of Medicine, Department of Medicine, McGill University, Montreal, Quebec, Canada

    Mirella De Civita & Patricia L. Dobkin

  2. Division of Clinical Epidemiology of the McGill University Health Centre (MUHC), Montreal, Canada

    Patricia L. Dobkin & Igor Karp

  3. Department of Physiotherapy, Montreal Children’s Hospital of the MUHC, Montreal, Quebec, Canada

    Debbie Ehrmann-Feldman

  4. Faculty of Medicine, School of Rehabilitation, Université de Montréal, Montreal, Canada

    Debbie Ehrmann-Feldman

  5. Faculty of Medicine, Department of Epidemiology and Biostatistics, McGill University, Montreal, Quebec, Canada

    Igor Karp

  6. Division of Rheumatology, Montreal Children’s Hospital of the MUHC, Montreal, Quebec, Canada

    Ciarán M. Duffy

  7. Department of Pediatrics, McGill University, Montreal, Quebec, Canada

    Ciarán M. Duffy

  8. McGill University Health Centre, Division of Clinical Epidemiology, L10 424, 1650 ave. Cedar, Montreal, Quebec, Canada H3G 1A4

    Mirella De Civita

Authors
  1. Mirella De Civita
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  2. Patricia L. Dobkin
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  3. Debbie Ehrmann-Feldman
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  4. Igor Karp
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  5. Ciarán M. Duffy
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Correspondence to Mirella De Civita.

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De Civita, M., Dobkin, P.L., Ehrmann-Feldman, D. et al. Development and Preliminary Reproducibility and Validity of the Parent Adherence Report Questionnaire: A Measure of Adherence in Juvenile Idiopathic Arthritis. J Clin Psychol Med Settings 12, 1–12 (2005). https://doi.org/10.1007/s10880-005-0907-y

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  • DOI: https://doi.org/10.1007/s10880-005-0907-y

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