Abstract
This study assessed how web-based information affects parental trust in physician’s diagnosis of autism (PDA) and likelihood of seeking a second opinion. Participants of an online survey were randomly allocated to one of three hypothetical scenarios, all were given a vignette of a non-verbal 18-month-old child followed by (1) not viewing Internet results, (2) viewing results suggesting autism, or (3) viewing results suggesting language delay and rated their trust and likelihood of seeking a second opinion. When Internet results contradicted PDA, parents reported less trust in PDA and greater likelihood of seeking a second opinion. Due to the Internet’s influence on parents’ response to PDA, clinicians should discuss their differential diagnosis with parents, address Internet-related concerns, and recommend trustworthy sources.
References
Allen, K., & Rainie, L. (2002). Parents online. Pew Internet and American Life Project.
Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual & Developmental Disability, 34(2), 142–152. https://doi.org/10.1080/13668250902845202.
Beykikhoshk, A., Arandjelović, O., Phung, D., Venkatesh, S., & Caelli, T. (2015). Using twitter to learn about the autism community. Social Network Analysis and Mining, 5(1), 22. https://doi.org/10.1007/s13278-015-0261-5.
Bhandari, N., Shi, Y., & Jung, K. (2014). Seeking health information online: Does limited healthcare access matter? Journal of the American Medical Informatics Association, 21(6), 1113–1117. https://doi.org/10.1136/amiajnl-2013-002350.
Buhrmester, M., Kwang, T., & Gosling, S. D. (2011). Amazon’s mechanical Turk: A new source of inexpensive, yet high-quality, data? Perspectives on Psychological Science, 6(1), 3–5.
CDC. (2018). Autism spectrum disorder (ASD) research & tracking. https://www.cdc.gov/ncbddd/autism/research.html.
Chou, W.-Y. S., Oh, A., & Klein, W. M. P. (2018). Addressing health-related misinformation on social media. JAMA, 320(23), 2417–2418. https://doi.org/10.1001/jama.2018.16865.
Cox, E. D., Smith, M. A., & Brown, R. L. (2007). Evaluating deliberation in pediatric primary care. Pediatrics, 120(1), e68–e77.
Da Paz, N. S., Siegel, B., Coccia, M. A., & Epel, E. S. (2018). Acceptance or despair? Maternal adjustment to having a child diagnosed with autism. Journal of Autism and Developmental Disorders, 48(6), 1971–1981. https://doi.org/10.1007/s10803-017-3450-4.
Diaz, J. A., Griffith, R. A., Ng, J. J., Reinert, S. E., Friedmann, P. D., & Moulton, A. W. (2002). Patients’ use of the internet for medical information. Journal of General Internal Medicine, 17(3), 180–185.
Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015). Long-term outcomes of early intervention in 6-year-old children with autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 54(7), 580–587. https://doi.org/10.1016/j.jaac.2015.04.005.
Eysenbach, G., & Köhler, C. (2002). How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. BMJ, 324(7337), 573–577.
Halbert, C. H., Armstrong, K., Gandy, O. H., & Shaker, L. (2006). Racial differences in trust in health care providers. Archives of Internal Medicine, 166(8), 896–901.
Hesse, B. W., Nelson, D. E., Kreps, G. L., et al. (2005). Trust and sources of health information: The impact of the internet and its implications for health care providers: Findings from the first health information national trends survey. Archives of Internal Medicine, 165(22), 2618–2624. https://doi.org/10.1001/archinte.165.22.2618.
Internet World Stats. (2019). https://www.internetworldstats.com/stats.htm.
Kuehn, B. M. (2013). More than one-third of US individuals use the internet to self-diagnose. JAMA, 309(8), 756–757.
Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompkins, L. A., et al. (2006). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatric Health Care, 20(4), 245–252. https://doi.org/10.1016/j.pedhc.2005.12.008.
Mehta, S. K., & Richards, N. (2002). Parental involvement in pediatric cardiology outpatient visits. Clinical Pediatrics, 41(8), 593–596.
Moseley, K. L., Clark, S. J., Gebremariam, A., Sternthal, M. J., & Kemper, A. R. (2006). Parents’ trust in their child’s physician: Using an adapted trust in Physician Scale. Ambulatory Pediatrics, 6(1), 58–61.
Murray-García, J. L., Selby, J. V., Schmittdiel, J., Grumbach, K., & Quesenberry, C. P., Jr. (2000). Racial and ethnic differences in a patient survey: Patients’ values, ratings, and reports regarding physician primary care performance in a large health maintenance organization. Medical Care, 38, 300–310.
Paolacci, G., & Chandler, J. (2014). Inside the Turk: Understanding mechanical Turk as a participant pool. Current Directions in Psychological Science, 23(3), 184–188. https://doi.org/10.1177/0963721414531598.
Pehora, C., Gajaria, N., Stoute, M., Fracassa, S., Serebale-O’Sullivan, R., & Matava, C. T. (2015). Are parents getting it right? A survey of parents’ internet use for children’s health care information. Interactive Journal of Medical Research, 4(2), e12. https://doi.org/10.2196/ijmr.3790.
Scullard, P., Peacock, C., & Davies, P. (2010). Googling children’s health: Reliability of medical advice on the internet. Archives of Disease in Childhood, 95(8), 580–582. https://doi.org/10.1136/adc.2009.168856.
Siklos, S., & Kerns, K. A. (2007). Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders. Research in Developmental Disabilities, 28(1), 9–22. https://doi.org/10.1016/j.ridd.2005.09.003.
Sillence, E., Briggs, P., Harris, P., & Fishwick, L. (2007). Going online for health advice: Changes in usage and trust practices over the last five years. Interacting with Computers, 19(3), 397–406. https://doi.org/10.1016/j.intcom.2006.10.002.
Sood, N., Jimenez, D. E., Pham, T. B., Cordrey, K., Awadalla, N., & Milanaik, R. (2019). Paging Dr. Google: The effect of online health information on trust in pediatricians’ diagnoses. Clinical Pediatrics, 58(8), 889–896. https://doi.org/10.1177/0009922819845163.
Suma, K., Adamson, L. B., Bakeman, R., Robins, D. L., & Abrams, D. N. (2016). After early autism diagnosis: Changes in intervention and parent-child interaction. Journal of Autism and Developmental Disorders, 46(8), 2720–2733. https://doi.org/10.1007/s10803-016-2808-3.
Tang, H., & Ng, J. H. K. (2006). Googling for a diagnosis—Use of google as a diagnostic aid: internet based study. BMJ, 333(7579), 1143–1145. https://doi.org/10.1136/bmj.39003.640567.AE.
Ulrich, C. M., & Ratcliffe, S. J. (2007). Hypothetical vignettes in empirical bioethics research. In L. Jacoby & L. A. Siminoff (Eds.), Empirical methods for bioethics: A primer (Advances in Bioethics, Vol. 11, pp. 161–181). Bingley: Emerald Group Publishing Limited.
Wise, M. D., Little, A. A., Holliman, J. B., Wise, P. H., & Wang, C. J. (2010). Can state early intervention programs meet the increased demand of children suspected of having autism spectrum disorders? Journal of Developmental and Behavioral Pediatrics, 31(6), 469–476. https://doi.org/10.1097/DBP.0b013e3181e56db2.
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Pham, T., Kuznetsova, A., Gim, H. et al. The Internet’s Effect on Parental Trust in Pediatrician Diagnosis of Autism and Likelihood of Seeking a Second Opinion. J Autism Dev Disord 49, 4355–4362 (2019). https://doi.org/10.1007/s10803-019-04140-8
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DOI: https://doi.org/10.1007/s10803-019-04140-8